Search found 38 matches

by pinpricks
Wed Apr 15, 2009 9:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 488852

WOWWWW again :D :D :D :D
Great discovery!!
Go ahead and proceed ...

--
Had EMG last week.
Talk to the neuro in charge of exam.
Result sent to my neuro end of this month.
Will see ...

Take care.
by pinpricks
Mon Apr 06, 2009 6:17 am
Forum: General Discussion
Topic: possible MS?
Replies: 29
Views: 5893

Hey, So far, her list of symptoms are (BUT NEVER IN THE SUMMER..usually between Nov and April for the lat 3 years): I don't "think is typical in MS this seasonal pattern but i'm not a doctor ... -Brutal "cluster" headaches - pain in one spot of the head, then gone and appears somewhe...
by pinpricks
Sat Apr 04, 2009 10:34 am
Forum: General Discussion
Topic: Jelinek's website
Replies: 10
Views: 2844

mmmmmmm ... :?
It's written you can eat pasta, wheat ... etc
It's against the gluten free diet!
Who wrote this? any proof that it is what we have to do?
by pinpricks
Sat Apr 04, 2009 10:21 am
Forum: General Discussion
Topic: itchy scalp! and no its not dandruff...
Replies: 4
Views: 4067

I'm not diagnosed with MS but ...
I have this thing for 8 months now.
It's a prickly feeling + tingling. My problems started in my scalp like this.
I have this feeling also on legs and face.
When i awake it's almost not there.
I tried B complex ... nothing.
by pinpricks
Fri Apr 03, 2009 2:07 pm
Forum: Introductions
Topic: Uncertain - Please Help?
Replies: 29
Views: 7067

Hmm... I am hesitant to think that BFS is my answer, because asy ou said, with BFS there is no weakness. But my entire body is pretty much wrought with weakness. From my feet to my fingers to my neck to my eyes. In BFS there is what they call "perceived weakness" different than "true...
by pinpricks
Fri Apr 03, 2009 1:25 pm
Forum: Introductions
Topic: Uncertain - Please Help?
Replies: 29
Views: 7067

I'm glad you stopped Klonopin. It's very addictive. I had a VERY VERY bad experience when withdrawing from 3 years usage (cause, Tinnitus). I almost lost my job. --- Anyway, as far as i know, and if you read my story nothing can be done for twitching. Only time will do the job. Twitching is annoying...
by pinpricks
Fri Apr 03, 2009 10:13 am
Forum: Introductions
Topic: Uncertain - Please Help?
Replies: 29
Views: 7067

Ok ... so we got the same type i think. You have it on the head. I have it mostly on legs now (all the nightmare begun in October last year). Sudden "kick" then gone ... then another place. Sometime many "kicks" at the same place. Sometime it's like you, very light. ---- I have t...
by pinpricks
Fri Apr 03, 2009 9:17 am
Forum: Introductions
Topic: Uncertain - Please Help?
Replies: 29
Views: 7067

Check this also. It mimic MS: Hughes Syndrome (up to 5% MS in fact have this) http://www.hughes-syndrome.org/ I will ask myself my doc when i will see him since i have no weakness at all. ---- Can you better describe your "random" pain .. it seems i have it (a sentence is better than singl...
by pinpricks
Thu Apr 02, 2009 4:32 pm
Forum: Introductions
Topic: Uncertain - Please Help?
Replies: 29
Views: 7067

You have some symptoms i experience now and i experienced in 1992. If you read my story: In 1992 it all started from nowhere - Twitching (as you have) everywhere - Stabbing pain in my left ear (like someone was hammering nails inside) - Paresthesia (feeling water flowing on my skin) - Shaking like c...
by pinpricks
Wed Apr 01, 2009 4:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 488852

Paper to puruse, offered by a friend FOUND HERE the whole paper is available at the free link Thermoregulatory system. Recently, one study has assessed the thermoregulatory center and its impact on multiple sclerosis (3). In this study of a single subject .... .................. evaporation. Thus v...
by pinpricks
Wed Apr 01, 2009 12:07 pm
Forum: General Discussion
Topic: Hughes Syndrome mimics MS ...
Replies: 3
Views: 3241

lionheart wrote:Yeah, but how about MRI and lesions? I'm afraid that if you have relevant symptoms plus lesions on the MRI....it is MS and nth can change it. Alas.
i said ...
... unless you had a really clear diag.
Take care.
by pinpricks
Tue Mar 31, 2009 2:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 488852

Thank you. As i understand there is blockage (or restriction) in the return path. So that as heart pumps blood then there is more pressure before the restriction. I took a look where are those veins. Since the jugular vein is descending, standing up would be better to facilitate the return path in t...
by pinpricks
Tue Mar 31, 2009 10:28 am
Forum: General Discussion
Topic: Worm therapie ...
Replies: 0
Views: 2158

Worm therapie ...

Hi Worm therapies CAN dampen autoimmune disease. http://news.softpedia.com/images/news2/Bacterial-Toxin-Used-as-Insecticide-Kills-Intestinal-Worms-2.jpg http://dailystrength.org/c/Multiple-Sclerosis-MS/forum/In-The-News/2538326-can-drinking-worm-eggs-treat Since i have IBS, some college told me this...
by pinpricks
Tue Mar 31, 2009 10:16 am
Forum: General Discussion
Topic: Hughes Syndrome mimics MS ...
Replies: 3
Views: 3241

Hughes Syndrome mimics MS ...

HI You may, some of you, take a look at this and ask your doc, unless you had a really clear diag. < shortened url > Also http://www.hughes-syndrome.org/images/logo.gif http://www.hughes-syndrome.org/background.htm Some peoples have been misdiagnosed and cured by taking Aspirin (50-60mg), heparin or...
by pinpricks
Tue Mar 31, 2009 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 488852

I agree.
The conclusion is not what it is said.
Anyway, how a problem in the brain could do such thing far away as "sou" said???
I was locking to ME patients and they find there is this type of problem but in the vessels of the brain itself.

Take care.

Go to advanced search