This Is MS Multiple Sclerosis Knowledge & Support Community

Has anyone out there had any luck with a brace for foot drop? I have foot drop in one foot and seems to be getting worse. However, I am still strong in that leg. I have seen numerous braces advertised but hate to waste $$ on a device that won't help. Also I am skeptical of much advertising. Thanks f...

I quit avonex about a year ago after almost 5 years of injections. I was never convinced it helped me & I hATE shots. My neuro wasn't too happy but he does let me make my own decisions. I'm walk with a limp that slowly gets worse throughout the day & just think it is the way I am progressing...

When I'm tired, achy, cranky, etc., if I do a little yoga I do find myself refreshed and feeling some better. Sometimes it is just hard to force myself to exercise. But it does make me feel better.

Ellen

Used to roll my eyes at yoga also. Was a runner, aerobic exerciser, tennis player. Can't do those anymore....love yoga!

ellen

Anybody having any walking improvements on ampyra? I've been on it over a month now but have so much knee pain I'm not sure I can give it a good try now.

Thanks for feed back,

Ellen

Would like to know if anyone has received ampyra through rx channels yet? I've had rx from neuro, blood work done, and am waiting to hear...it has been a little over 1 week. Hopefully, insurance won't pose a problem and will have reasonable co-pay.

Thanks for any feed back,

Ellen

To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk...

Hey Katie...that is just the book I have! I've done gentle yoga classes for a couple of years now. Its great for mind and body. I used to run, play tennis, and do aerobics. Wish I still could but yoga is what I do now.

Ellen

There are yoga classes designed for people with various issues including ms. I would highly recommend it. Also there are books on the subject. Hope you can find something that will meet your needs.

Ellen

I have major needle issues and started passing out during my first emg. Dr. rescheduled appt and gave me a low dose of valium. Made it through the next time.

Ellen

Actually dx'd the first time in '97. Then told not ms...sounded good to me and symptoms had gone away. I had several yrs of not much in way of problems. Exercised, ran, played tennis, etc. Then started slight foot drop, tingling, fatigue in 2001. After dx's of shin splints and fibro finally had a ne...

I was dx'd w ms 5 yrs ago at age 56. One leg doesn't work right, fatigue, balance off, drop foot but I still have muscle strength. Maybe from yrs of exercise and running. Still work part time. gotta have insurance!

ellen

I so-o miss the running. If you have never run you just can't quite understand. But I do encourage others to run if they can.

ellen

Perhaps. But the drug companies make so much money off of MS they will keep it under wraps as long as possible.

Sorry to feel so negative but I have waited so-o long for fampridine to become available and I see it being put off constantly.

ellen