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by bestadmom
Mon Jul 09, 2012 6:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: And you thought Montel didn't know Jack..
Replies: 14
Views: 1985

Re: And you thought Montel didn't know Jack..

Cece, I agree with you 100% and bet the appointment is already set.
by bestadmom
Sun Jul 08, 2012 4:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Different Rose (sweeter-smelling?)
Replies: 6
Views: 1168

Re: A Different Rose (sweeter-smelling?)

My husband's friend told him it had just come on and he turned the channel 15 minutes into the show. I didn't know who was on it until they spoke. I did like seeing Hauser because now there's a face with the name, but I felt like he was performing and was insincere
by bestadmom
Sat Jul 07, 2012 6:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Different Rose (sweeter-smelling?)
Replies: 6
Views: 1168

Re: A Different Rose (sweeter-smelling?)

I watched the first half hour and managed to fall asleep as my blood bolied. I sure hope my veins are still opened!

It felt like a PBS version of a Biogen infomercial.....validated by the addition of the academics.
by bestadmom
Sat Jun 02, 2012 7:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Moffitt in FL suspends CCSVI procedures
Replies: 3
Views: 1364

Re: Moffitt in FL suspends CCSVI procedures

Moffitt gave Dr. Arslan a hard time for awhile. They are a cancer center. No surprise that they aren't doing the procedure. Dr. Arslan left.
by bestadmom
Wed May 23, 2012 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1754964

Re: DrSclafani answers some questions

Cece,

Email or PM me pls!

mb
by bestadmom
Tue May 22, 2012 7:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1754964

Re: DrSclafani answers some questions

The FDA statement, which is very one-sided, makes me believe there's a bigger agenda than Dr. Mehta not having and IDE. The dr in CA who instigated it was targeting Dr. Arata. The Italian MS Society trying to sue Zamboni was ludacris. The backlash against CCSVI seems to be louder and there is disreg...
by bestadmom
Tue May 22, 2012 5:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1754964

Re: DrSclafani answers some questions

.[/quote]
drsclafani wrote:By the way, why anyone would have objections to treating obstructions of veins of the brain while allowing treatment of obstructions of the veins of the leg is beyond my comprehension.

The turf wars are worse now than ever and it's getting uglier by the day.
by bestadmom
Fri May 11, 2012 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I was interviewed on CBC News regarding CCSVI and FDA
Replies: 18
Views: 2933

Re: I was interviewed on CBC News regarding CCSVI and FDA

Hey Marc,

You did good! The camera definitely distorted you. But what you said is what matters.

Michelle
by bestadmom
Thu May 10, 2012 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FDA Issues Warning on CCSVI
Replies: 70
Views: 7817

Re: FDA Shutting Down CCSVI Research

Hey Squeakycat,

It sounds like my neuro, Aaron Miller, the head neuro for the NMSS talking. The only thing missing was "You are going to die on the table."
by bestadmom
Thu May 10, 2012 8:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FDA Issues Warning on CCSVI
Replies: 70
Views: 7817

Re: FDA Shutting Down CCSVI Research

It took one day for the NMSS to jump into the game and turn it around to benefit their biggest supporters - pharma and the neuros.

http://www.nationalmssociety.org/news/n ... x?nid=6354
by bestadmom
Wed May 09, 2012 8:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FDA Issues Warning on CCSVI
Replies: 70
Views: 7817

Re: FDA Shutting Down CCSVI Research

Thanks for posting mossmanor! BNAC is amazing . I was in the first big ccsvi study along with a few other old-time tims members in Sept 2009. BNAC is top notch. I'm on their patient advisory board and very proud of the studies they are doing, the discoveries they keep making and their deedication to...
by bestadmom
Wed May 09, 2012 7:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FDA Issues Warning on CCSVI
Replies: 70
Views: 7817

Re: FDA Shutting Down CCSVI Research

And what about BNAC @ SUNY Buffalo? They have a treatment trial going on and are the lead researchers for everything ccsvi. They are a research university, publishing constantly, and they could never proceed without all the proper approvals in place. I think Mehta screwed up, but I also bet the lobb...
by bestadmom
Wed Apr 18, 2012 7:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been treated by Dr. Arslan?
Replies: 12
Views: 1745

Re: Has anyone been treated by Dr. Arslan?

Good luck but you won't need it. I've met Dr. Arslan and he's great. He worked under Dake in VA and as been plugged into CCSVI since the beginning. He's warm and friendly and genuine. I personally know Barbara Garcia, Nicki Beagle Watts and several others treated by him (most more than once), and th...
by bestadmom
Sat Mar 24, 2012 5:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1754964

Re: DrSclafani answers some questions

I'm sooo happy you are ok. Listen to your body and take care of it, my good (great) doctor. There's a world of family, friends, and patients who love you. Rest up and force yourself to relax.
by bestadmom
Thu Mar 08, 2012 2:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Third CCSVI treatment tomorrow
Replies: 29
Views: 2861

Re: Third CCSVI treatment tomorrow

I hope you find relief right away. Good good tomorrow!

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