Search found 55 matches
- Sun Aug 01, 2010 10:26 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Is Campath helping you?
- Replies: 8
- Views: 4607
15 months post campath
Am on a TON of meds, but they are for HBP, neuropathic pain (cymbalta), and vits B and D. Now I also take provigil, because I work long hours and was falling asleep at the wheel. Hated to add this, but preferable to hugging a tree at 50 miles an hour, or harming someone else. Definately feel the eff...
- Sun Aug 01, 2010 10:06 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Campath 12mg - 2nd
- Replies: 6
- Views: 3806
campath s/p round 2
The palpatations are still with me almost 3 months post, however they are much resolved. My cardiac w/u was normal. Subjectively, I feel like I am slipping. However, objectively, I am improving. I guess the least I can say is that I am holding my own. Still working long hours full time, but doing le...
- Thu Jun 17, 2010 3:23 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Campath 12mg - 2nd
- Replies: 6
- Views: 3806
I finished my second set of infusions about 3 weeks ago. Like the first time, I tolerated it well, without any symptoms to speak of. I didn't even get a rash this time, just a red face and chest that resolved fairly quickly. One strange thing is that the night I finished the 3rd infusion, I started ...
- Tue Oct 13, 2009 3:52 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: HELLO EVERYONE!! JUST GOT CAMPATH 2 MONTHS AGO!!!
- Replies: 15
- Views: 7338
- Tue Oct 13, 2009 3:48 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Flu shot, post campath: Yes or no?
- Replies: 6
- Views: 3572
- Wed Oct 07, 2009 6:54 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: awesome results
- Replies: 36
- Views: 11588
- Mon Oct 05, 2009 7:16 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: 8 month update, and a long rant.. enjoy....
- Replies: 9
- Views: 5210
At almost 6 months, I am doing very well. I no longer have the wierd neuropathic pain in my groin, but still take the cymbalta. I DID cut back from 80 mg to 60. Yesterday I developed bad eye pain. I thought I scratched my cornea, but now I am wondering if I have optic neuritis? Anyway, other than th...
- Sun Sep 27, 2009 7:09 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Five month update, shamless self promotion, and a question?
- Replies: 5
- Views: 3999
I am five months post Campath. My counts dropped to expected levels, and have been rising slowly and consistantly. I have not been sick once with any illness. I have not caught my DD's bad, bad cold. I feel better than I have in 20 years! I am ready and willing to sign up for year Two! O do not miss...
- Sun Sep 27, 2009 7:01 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: awesome results
- Replies: 36
- Views: 11588
I am sooo happy to hear from someone 3+_years in!!! I am at 5 months, but feel better than I have in 20 years! I wonder what happens after the year 2 infusions. If they offer them yearly, I AM IN!!! This is the best news I have had in some time! Please respond, as I need incouragement. I have found ...
- Sun Sep 27, 2009 6:50 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Flu shot, post campath: Yes or no?
- Replies: 6
- Views: 3572
Trixie: Thanks for posting! My research nurse finally told me it is okay, as long as I don't get any live viruses. The flu shot is a dead virus. I got it about 2 weeks ago, and all is good. As a healthcare worker (RN) my state has mandated it unless I have a very specific dr's note. Any way, I am fi...
- Fri Sep 25, 2009 6:47 pm
- Forum: General Discussion
- Topic: BIG dose o'prednisone ?
- Replies: 12
- Views: 3349
- Fri Sep 11, 2009 8:57 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: awesome results
- Replies: 36
- Views: 11588
- Tue Sep 08, 2009 6:17 pm
- Forum: General Discussion
- Topic: Worried about my daughter
- Replies: 12
- Views: 3552
I have had similar concerns, altho with less dramatic presentation, with my DD that is 21. I have long thought her to be clumsey and uncoordinated, well before my dx. Does anyone see something familiar here? Anyway, since she got mono a year ago, she has not seemed weel, and really messed up her jun...
- Tue Sep 08, 2009 1:45 pm
- Forum: Reading Nook
- Topic: Reading Group
- Replies: 55
- Views: 35613
- Mon Sep 07, 2009 10:37 pm
- Forum: Reading Nook
- Topic: Reading Group
- Replies: 55
- Views: 35613