This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for the response Arcee. Look forward to hearing more about this when there's more to be known.

Arcee and Loobie -- thanks for the in-depth update. ...while the stents are safe for many MR machines, each particular stent brand and size has to be cross-checked with a special guide to confirm that it has been tested. The particular ones we have were not yet in this documentation for the 3.0 Tesl...

Bumping for Judipom

Absolutely Judi! I feel much worse on the grey cloudy low-pressure days. However, the hardest is when the weather change is abrupt. A sudden change from high pressure to low pressure is the most challenging. So, another walking barometer here. There was an in-depth thread here a while back about dew...

Cat,

I don't post that often but have followed your journey and been rooting for you. Holy smokes - 50 hours a week! Am really glad to hear you're doing so well. Look forward to hearing of that continuing in the future!

Take care,
Donna

Hey Prof8 - a mixed congrats on the pancake vein find! ... because it's not a trial for MS per se. It's a vascular trial to see what happens if you fix stenosis using stents in the veins. This is the first that I heard this -- I have hope again! Alex told me I'm at the top of the chart pile but when...

My visible disability is not so bad - but I am so sick of the cognitive effects, and I do not want them to progress another whit if I can help it. My memory, ability to plan, think ahead - my executive function - ihas been degrading for years it seems ... I may not be on the verge of needing a devi...

Here's a link to a decent overview of cognitive testing and rehab: http://www.angiomaalliance.org/pages.aspx?content=83

Austin, Yes, I certainly have cognitive deficits -- not glaring but they're there. I don't know about you but both my physical and mental abilities drop way off as I fatigue in the day. And, yes, it seems like more lists are required to complete complex sequential activities. A friend from another f...

Sounds like you've got your plan Chris. Good luck!

...Would it be wrong to say, "No I don't want a stent, you can balloon me this time and if I restenosis you can then put one in me."... Chris, From my conversations with folks at Dr. Dake's and a conversation with him in August, I'm likely going to be following soon behind you at Stanford...

Radeck, This was one of my big concerns -- a stent getting loose and floating about before it endothelialized in the vein. And, I know that you gave quite a bit of thought in regards to your high stenosis. I'm sorry for this unbelievable "complication" -- calling it that makes it sound tri...

Radeck,

I've been watching your journey as someone who is in line behind you. Am so so sorry to hear this. Please take good care.

Donna

i have an idea, we can apply for funding to do a study where we get healthy naysayers to volunteer to have their jugular veins clamped 90% shut and see what happens to them. Oh, ROFL Jimmy! Not only have you prompted changes in my magnesium and zinc regimen, you've provided good laughter medicine. ...

Excellent report -- glad to hear it!