This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Everyone, I just though that I would up-date a little. I haven't been here since Dec '03, I think. I'm on LDN now 13 months and am still doing well. No Progression, no new symptoms. I am just getting over a flare of old symptoms, though. :cry: A lot has happened...My Dear Husband passed away in J...

I hate them all and the uncertainty of when they will hit. Rain, snow, heat, cold, spring, summer, fall and winter...Lol. You never know what kind of weather or circumstance will bring on your MS SEs. Normally it's the heat and/or humidity that cause me the most suffering. But I guess I vote with ev...

Hi all new friends and some old ones (not in age) :lol: Susie....what book did you happen to pick up? It must have been one from the nineteenth century. Can you have MS and find happiness? Of course you can and do. I have had MS for 35 years and I'm happy......been married to same wonderful man for ...

Hi Everyone, nice to meet you all. I am Sally, 62. married 35yrs to the same man :lol: . three children, 6 grands. and one dog. DX in 1976, Symptoms since 1964 (about the time some of you were born :wink: . Started out RR now SP since 1995/96. Was on 'Avonex then Copaxone and now finally LDN, which ...

I am forwarding this from Sandra Lee from spotlight ldn forum: Are you on LDN? YES How long? 2 months How many mg's? 3.5 mg When do you take it? between 9 & 11 pm What kind of MS do you have? RRMS Positive changes since/while taking LDN? MUCH improved speech and brain clarity, better balance, MU...

Hi Joyce.

Thanks for pat on back!

Love ya, Sally

Hi Collette and Amy, I Have been on LDN now for a little over 8 months. I like it....I haven't had any new symptoms or progressed in disability in that time. There are others who have ben on it 1,2,3,4 or more years, with the same response. Maybe some of them will post here and tell you more. I have...

Hello Joy,

Nice to Meet you. I am also a grandmother 0f 3 and mother of 3.

I was dx in 1976 and am spms now...I am taking LDN and so far so good.

I'm sorry that you are having a tough time with symptoms right now......I do hope you find relief or remission soon.

Gentle Hugs, Sally

Hi Gomey. Sounds like, after sticking it out four years, you are doing exactly the right thing.....You are still there. This nasty desease has brolen up a lot of relationships, including marriages. My hubby and I have been married 34 yrs and only 4 yrs when I was DX with MS. He is one of the good on...

Hi Josephine,

What is Sativex? I have never heard of it.

Thanks, Sally

Thanks for the link Christy.....Sounds promising! I wonder when it will be available for use?

Thanks, and nice to meet you.

Are you on LDN? Yes How long? 8 months How many mg's? 3 When do you take it? 10:30 PM What kind of MS do you have (rrms, spms, ppms)? spms Positive changes since/while taking LDN? Better balance, clearer mind, more energy and no flares. Negative changes since/while taking LDN? None Any relapses whil...