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Sir, I wad dxd PPMS in 2003 ( From the very beginning no RRMS or SPMS ?) ,Aquiductal Stenosis in 2004(rejected by surgeons saying “Arrested Hydrocephalus”, Non-compressive myelopathy in 2004,Demyelination & ?Prograssive MS in 2006.I was having WBC Count of >14000 in 2006 and was given IMURAN 50 ...

Hi all, I am giving below My symptoms and diagnosis in chronological order. 1.2001 >> Erectile Dysfunction 2.2001 >> Feeling extrem fatigue ==gone after few weeks. 3.2003 >> Waking difficulty. Difficulty in passing urine and urine leakage .. Constipation Dxd PPMS.Had first relapse. 4.2004 >> Dxd &qu...

Hi All, Good News !!!! FDA approves Ampyra ,the first MS drug of its kind to improve walking speed FDA approves drug for multiple sclerosis By Georgiann Caruso, CNN Medical News January 22, 2010 8:03 p.m. EST EJ Levy chases after her niece and nephew -- something that would have been impossible four...

Hi all, I had been to the new neuro yester day and she came up with a new idea altogether.Her point is I had have three relapses since 2003 and no new area is affected ,hance it could be some thing other than MS ?????? and she is looking for vestibular pathology at the dorsal spine and prescribed a ...

Hello group members, My diagnosis were first in 2003,PPMS,2004 >>Aquiductal Stenosis >>2006 ?Progressive MS.In case of PPMS people don't get a relapse... but i had two relapse for sure one in 2006 and the other in 2009 Aug and i feel it could be RPMS......But i had good period and bad as well ,which...

Hi fellow MSers, Happy new year to u all,may God the almighty fulfills all your dreams n wishes in 2010.I m writing this with a lots of hope before going to the doctor.I had two attacks of vertigo once, with and without vomiting two three yeas before i was dx MS.I have balance problem along with oth...

Hi group members, I am Bibek from India,had several diagnosis since 2003.First PPMS than Aqueductal stenosis in 2004 , Deymelinatory dieses ? Progressive MS in 2003.In your opinion is it looks a case to try out CCSVI angle ?I have gone through the posts in this site and know there are much knowledge...

bbk, have you looked into local options related to ccsvi? and i think i recall that you had a supplement regimen in place, was that you? Yes Jimmilegs,u got it right it is me.Unfortunately the ccsvi option cannot be further evaluated ,as it is still not approved by neuros (over here the neuros are ...

Hi all, I am having a relapse for last one and half months ,rather more than that.At first my neuro gave me myetilepredinsolone 16 mg*2 a day for five days taking which i felt wonderful for a day or two and than back to square one.One and half months before the conditions are extremely bad and i wen...

Hi all, I have read in some book that stem cell treatment doesn't works well with PPMS patient.I m neither a medical person nor have i researched much on this subject but i am surprised when MS is a disorder of the immune system ,why only in case of PPMS it fails to work ?I m dxd Progressive MS,may ...

In 2004 i was dx "AQUEDUCTAL STENOSIS" and referred to Neurosurgery dept for having an operation,but the Neurosurgery dept denied saying " the MR brain shown mild to moderate ventricular dilation,it appears to be arrested hydrocephalus and not the cause of present neurological status&...

Hi all, First i was dxd as having "Aqueductal stenosis" and was referred to the surgery dept for an operation,but the surgeons refused saying "It appears to be arrested hydrocephelus".I do have sweling and red spots at the feet , Bladder and bowel disfunction,difficulty in walkin...

Yes...For three months i did it and saw the amazing result.I did PRANAYAMA ( The breathing exercise)along with the yogasana.And the result was more energy,more flexibility more confidence.Foe MS patients it needs to be done for a longer period of time (say One year +).
Regards,
Bibek.

Hi fellow Msers, I am having a relapse ,I took 3 1000mg steroid (Methylprednisolone Sodium Succinate),though feeling better but not any way near the before relapse situation.Does it takes time to show it’s effect ? How long ?.The swelling at my feet ,weakness at the lumber still there preventing wal...

Hi all, I m having bladder dysfunction since 2003.Initially it started like i feel the sensation and try to void but it won't ,with lot of efforts (putting pressure at the pelvic region ) ,i somehow used to pass it ,but may not be completely. Now it is like i feel like urinating and it automatically...