This Is MS Multiple Sclerosis Knowledge & Support Community

Merlyn, this is Daisyduck. We just returned from Stanford after the checkup (MRS only) and speaking to Dr. Dake. He thinks that "the plumbing looks good," meaning the four stents are all in their proper place in full working order with no clotting, and we talked about my having reverted so...

I used to think they did not want to jeapordize our health, but that probably isn't it. Daisyduck

I am in California, guys. We have a blood mobile comes around, and I wanted to just go and donate there, especially since I am A neg. In California there seems to be a prohibition about taking blood from us, and I wondered also if they use my blood, would I be passing on something bad to others? Tha...

With regard to phlebotomies, I too asked to donate blood and was rejected because of MS. So instead of offering blood for donation, why not try and ask to have blood taken under medical supervision at a hospital under a doctor's prescription, which blood could then be destroyed? I plan to ask Dr. Da...

Thanks for your support and interest. As I woke up this morning, I remembered that after surgery last year I was able to walk to the bathroom without touching walls for balance and support. Not true any more. I would not be as concerned about the experiences of one single person, but from reading th...

Bruce: In response to your post, I had surgery at Stanford one year ago in June and will be going back for my checkup end of June. A year ago Dr. Dake place four stents into my veins: Left jug, both subclavian, and the azygous. I had nice improvement in bladder and bowel functions, heat resistance, ...

Dear Mitch: I have had the disease for 30 years, used to be RR and then became slow progressive. I used a cane, and even with it had a difficult time getting very far for very long. I had four stents placed at Stanford last June, and I have had subtle but important positive changes in how I get arou...

That's Canadian TV, 11/21, 7-8 p.m. their time is, what, three hours before California time? and we can get to it online? Good. I am really looking forward to this. Daisyduck

Seems to my eyes tyou need to be "stented." My husband who took a look (a chiropractor) said that at the very least your subclavians need treatment. Did Dr. Dake see these pics? Daisyduck

I do, and oddlty I recall so many things avout that surgery even though I was feeling no pain!
Forrester came with Dake on his rounds the morning after surgery, but I do not know if he was in O.R. the night before, though I assume so. Daisyduck

Sou: I agree with your throught-provoking, interesting and realistic view point. I have said to all of us in this forum to please, at least for the time being, let's not "marry" CCSVI and MS on this forum if just awhile longer. I so want to see treatment for as many CCSVI sufferers as poss...

The eventual legal hassles appear to be inevidible because of all the vested interest in MS, including but not limited to the various MS foundations and the high-priced drug manufacturers. I've felt for a long time that we should focus on the stenosis part of this disease and treat that as reparable...

Marie, this is good thinking. As far as Dr. Dake goes, we are the stage 1 trial people, the forerunners, before he has to start the clinical trials, and the information he got by treating us and our follow-ups will be most important to his work and to others after us. Already he has adjusted his MRV...

Hi: It was what I thought was chronic and hugely painful sinus headaches that caused me to make the initial call to Dr. Dake after I had dismissed the entire thing back in May of this year. When I called, Dr. Dake actually answered his own phone, wow! We spoke awhile, and he recommeded I go see an E...

With regard to factors in MS that remain unexplained like areas of cold climate having a greater than average number of incidents, I also think this may have to do with vitamins and sunlight or a lack thereof. One factor I wonder about is the genetic predisposition which apparently exists, as well. ...