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by CureIous
Sat Apr 20, 2019 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67005

Re: Notes from CureIous' at Stanford

Thats the problem, we're talking about a nickle titanium stent that was made for veins, not for the vasculature that directly feeds the lungs. There is some kind of really nasty looking inflammtory process upper right lobe that has them stumped so far, I've been tested for just about everything, all...
by CureIous
Fri Apr 19, 2019 9:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67005

Re: Notes from CureIous' at Stanford

Medical protects medical. That simple. I should forward them two mri/ post op reports, one from August 2009, one from April 2010, then ask if they would like to amend their glowing presentation propaganda on Dr. Dake to include " pioneered groundbreaking cath procedure on MS patients in 2009", only ...
by CureIous
Sat Apr 13, 2019 8:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67005

Re: Notes from CureIous' at Stanford

Copied from my reply on another thread. Just bored so what the heck. Its not helpful (CCSVI Treatment) because treating doctors are not research doctors, just good guessers for a fee. Zamboni was doomed from the start with his poorly structured trials. Once the IR's figured out that treating then re...
by CureIous
Sat Apr 13, 2019 7:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-Zamboni CCSVI
Replies: 1
Views: 365

Re: Post-Zamboni CCSVI

Its not helpful because treating doctors are not research doctors, just good guessers for a fee. Zamboni was doomed from the start with his poorly structured trials. Once the IR's figured out that treating then retreating endlessly was a futile attempt they bailed like rats from a sinking ship. But ...
by CureIous
Sun Apr 08, 2018 11:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI alive and well in Poland. Fascinating article.
Replies: 4
Views: 1640

CCSVI alive and well in Poland. Fascinating article.

This popped up on my now pretty scant CCSVI Google news alert, not much there these days just the usual big pharma media claptrap about all that went awry 5-10 years ago, pretty boring stuff with lots of generalities and few specifics and almost no science. Anyways this piece was a refreshing traips...
by CureIous
Fri Mar 30, 2018 4:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI Atlanta legit???
Replies: 6
Views: 1586

Re: Is CCSVI Atlanta legit???

I just read this an I’m really discouraged. It seems like any doctor trying to perform CCSVI is being harassed and shut down. Is there anyone who can help people with CCSVI out there? https://www.medpagetoday.com/special-reports/states-of-disgrace/72033 I hear ya Rhonda, but that article itself is ...
by CureIous
Fri Dec 08, 2017 11:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI dead - surely an apology needed from Cheerleader
Replies: 40
Views: 4784

Re: CCSVI dead - surely an apology needed from Cheerleader

Apology, thats funny. PTA cannot possibly work on all/most/some patients, because the narrowings change in both intensity and location on a daily/weekly/monthly basis. Just cannot get it through all those thick heads out there who claim some level of scientific expertise. PTA today and back tomorrow...
by CureIous
Thu May 18, 2017 1:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4225

Re: ISNVD 2017 in Italy

Not being cryptic at all. Most the info is right here, either on my thread or this one. Fact is no one really cares, and I care little myself to bother posting the particulars, which will make little difference at this point. If anything I may write to Stanford, still mulling that over. Not as if I ...
by CureIous
Sun May 14, 2017 8:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4225

Re: ISNVD 2017 in Italy

Sorry Curious. I would think being symptom free was a good thing. Sorry I can't recall your posts from 2009. I will try to look them up. Best of health to you. Rogan Most of what you see online insofar as all this stent nonsense is concerned is cherry picked b.s. and I assure you, if you knew the e...
by CureIous
Fri May 12, 2017 6:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4225

Re: ISNVD 2017 in Italy

lol. the patent ignorance and short term memories on this thread are appalling. Dake and his careless wanton placement of stents ad hoc caused as much harm as good. Unfortunately there is no cure for being starstruck. You would all think differently if you had straight out been lied to your face to ...
by CureIous
Sat Apr 08, 2017 6:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Apology needed from Cheerleader and Cece
Replies: 54
Views: 5919

Re: Apology needed from Cheerleader and Cece

believe me after the way that I got shafted by this stupid ccsvi Alliance nonprofits I have every reason to come in here and start throwing names around. As far as I am concerned wheelchair Kamikaze owes me an apology so does Mitch sturgeon. Along with a thank you for not dragging their precious Al...
by CureIous
Mon Apr 03, 2017 12:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67005

Re: Notes from CureIous' at Stanford

Greetings. When did you have the accident that dislodged your stent and do you think that is related to your hand symptoms and cervical spine lesions? Best regards, Vesta Greetings. When did you have the accident that dislodged your stent and do you think that is related to your hand symptoms and c...
by CureIous
Sun Apr 02, 2017 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67005

Re: Notes from CureIous' at Stanford

I hold true to my policy of honesty insofar as this CCSVI treatment, and/or its effects on my RRMS. Good bad ugly. Let me of course start with the positives here some 8 years hence: 1. My particular flavor of MS would be considered mild by the medical textbooks, at least in 2008 prior to learning of...
by CureIous
Sun Apr 02, 2017 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4225

Re: ISNVD 2017 in Italy

Here is the upload in full color .pdf format which can be downloaded. I prefer that over the .doc but will link that too. FULL COLOR http://photos.imageevent.com/markandsuzy/setonscan/ISNVD-CCSVI%20POSTER%202016.pdf WORD DOC http://photos.imageevent.com/markandsuzy/setonscan/poster%20poster%20CCSVI%...
by CureIous
Sun Apr 02, 2017 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4225

Re: ISNVD 2017 in Italy

Dr. Owiesy will be there (again) this time too. Hopefully the rock stars of CCSVI will take a minute and listen to what he has to say. It would by far be in their best interests. I found this (maybe it was shared in your thread): https://www.researchgate.net/publication/313761978_Autonomic_signalin...