Search found 29 matches

by turtle_fi
Mon Feb 22, 2010 11:14 am
Forum: General Discussion
Topic: the MS liver
Replies: 46
Views: 17160

still more to think about this liver issue. i recently went for my 5 year checkup on the liver issues, and they found that my FNH (wow it has a name) http://en.wikipedia.org/wiki/Focal_nodular_hyperplasia has grown from 4 cm to 7 cm in 6 years.. then, I found out that FNH is most common for women ag...
by turtle_fi
Thu Sep 17, 2009 10:43 am
Forum: General Discussion
Topic: Inclined Therapy I.T. Multiple Sclerosis & Varicose Vein
Replies: 192
Views: 76858

but if you lift the head just 5-10 cm, i guess there should not be any extra pressure on spine and pelvis. normal people might have that high pillows (i use a very flat one, neck does not appreciate high pillows)

i need to go and try one of these beds at the shop.. to feel the position.
by turtle_fi
Thu Sep 17, 2009 10:39 am
Forum: General Discussion
Topic: the MS liver
Replies: 46
Views: 17160

interesting topic, this one. my liver values in blood tests have been going up and down during the past years, maybe 10 years altogether. up values are not related to drugs or alcohol (have been banned both for some time to test). they even took liver biopsy (horrible) few years back to find out the...
by turtle_fi
Sun Sep 13, 2009 11:32 am
Forum: General Discussion
Topic: Inclined Therapy I.T. Multiple Sclerosis & Varicose Vein
Replies: 192
Views: 76858

Hi and thank you for this thread, very interesting. i have not read the whole thread, but i'm still interested to give it a go. i'm just wondering, if motorized bed like in the pic below would be ok (i would really like the easy adjustment of head side), or does it require a completely flat bed tilt...
by turtle_fi
Thu Sep 10, 2009 11:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 8853

about the sonography question, maybe this wikipedia article might help: http://en.wikipedia.org/wiki/Medical_ultrasonography to me it sounds that e.g. doppler is one method to enhance sonography. "Diagnostic sonography (ultrasonography) is an ultrasound-based diagnostic imaging technique used t...
by turtle_fi
Thu Sep 10, 2009 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 8853

hello from helsinki! so nice to see more finnish people here. i'm waiting for my neurologist appointment becoming soon, and would really like to hear how it went for your wife's appointments! i'm covered by finnish health system, so i go to helsinki university hospital for checkups. they do have goo...
by turtle_fi
Sat Sep 05, 2009 2:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Smoking, CCSVI and MS
Replies: 3
Views: 2277

we should have some cross-check that is ccsvi related to smoking and how.. i have been smoking over 15 years, i know it can't be good but have not had good enough reason to quit..
by turtle_fi
Sat Sep 05, 2009 1:30 am
Forum: General Discussion
Topic: Getting a spinal tap...
Replies: 16
Views: 5329

i really recommend some soothing drug to be taken before (they gave me something before, but dose was not enough last time) i have had the test 2 times. first time was bad, but excellent compared to the other. it was taken in sitting position and bending forward. one try was enough. i was ok afterwa...
by turtle_fi
Fri Aug 21, 2009 7:06 am
Forum: General Discussion
Topic: they have successfully reversed ms in mice
Replies: 31
Views: 7168

this "stopping ms on mice" news was a bit puzzling. how do they cause mice those ms-like symptoms, when they don't know what triggers ms symptoms on humans? maybe this is just stupid from me..
by turtle_fi
Fri Aug 21, 2009 7:03 am
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1115
Views: 232174

hmm. maybe this would be worth testing for me too. i have always had dry skin, and especially in young age it was bad. i still easily have skin infections that go on forever (months at least)

diet low-carb which is high in fat helps my skin to be "greased from inside".
by turtle_fi
Thu Aug 20, 2009 10:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI skeptics
Replies: 202
Views: 33151

i have been thinking that is it possible that neurologists might be against the ccsvi theory, due to that
a) drug industry and drug research is a major money business
b) theory goes out of their expertise with neurological system to vascular system?
by turtle_fi
Mon Aug 17, 2009 1:38 pm
Forum: General Discussion
Topic: Parasitic infection is found to benefit MS patients
Replies: 27
Views: 8883

I'll help look but I thought we discussed this about a year and some states were and some states weren't accepting blood. really red cross accepting blood donations from people with ms? i was so sad i had to stop donating, since my blood is of popular O brand, but in Finland, they don't accept my b...
by turtle_fi
Mon Aug 17, 2009 1:19 pm
Forum: General Discussion
Topic: SIGNIFICANCE(?) OF THE FAROE ISLANDS
Replies: 38
Views: 8825

very interesting studies. if i understood correctly, they are saying that ms comes originally from infection, and has spread e.g. with the vikings to US. and the british bought it to faroe islands.
by turtle_fi
Sun Aug 16, 2009 10:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: relapsing/relapsing & collateral vein formation
Replies: 3
Views: 2433

i have been thinking that several patients in finnish site said that bowing neck down front may cause very nasty sensation in the whole body, like a flash going through it.
well this would make sense, if bowing your head makes the veins even more narrow..
by turtle_fi
Sun Aug 16, 2009 7:09 am
Forum: General Discussion
Topic: Parasitic infection is found to benefit MS patients
Replies: 27
Views: 8883

hey there, recently saw an article musing on the disparity in MS between the finnish and the sami of northern finland. also have recently been reading about the poor soil/groundwater selenium status, in addition to low national vitamin D, in finland. the finnish govt has been working to address bot...

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