Search found 96 matches

by CNClear
Wed Aug 25, 2010 12:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: All Users Post Here At Least Once
Replies: 13
Views: 3017

Bonzo... It IS hard! We all empathize with you about that...the two things that have helped me a lot are... Fake it till you make it...in other words, even if you don't feel like smiling, hoping, helping, moving...what ever is positive...do it anyway. For instance, if you smile, even if your heart i...
by CNClear
Thu Jan 14, 2010 7:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 106675

Hi Beth, I took Copaxone for 2 years and Avonex for the next 2 and with out a doubt, I wish I had NEVER taken ANY...I have never felt so bad in my life and I continually got worse. I should have stopped them sooner, but my neuro was SO insistent! And he kept telling me that I would get used to them,...
by CNClear
Mon Jan 11, 2010 8:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Palo Alto 1/20 to 1/22!!
Replies: 22
Views: 6473

Beth, Really glad to hear how well you're doing! SammyJo, you're website has been a real help, I've given out the address a few times, especially to the docs at Kaiser... If you would, please, try to find out from Dake where the rest of us stand with regard to the study, getting the procedure, etc. ...
by CNClear
Thu Jan 07, 2010 7:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371215

I have had a skin problem that has some of the same characteristics as psoriasis, but after many tests and biopsies, it was concluded that because of the ANA test results, it was something autoimmune, but despite a lot of tests, they can't narrow it down...the drs. looked at lupus, pemphigus, some t...
by CNClear
Thu Dec 17, 2009 1:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent manufacturers
Replies: 38
Views: 7110

Re: We need t interest business in stents!!

I am going to start working on a presentation that I can start using to spark interest. In the meantime, I encourage anyone with any contact such as that mentioned in this topic to use it to see what interest they can spark. i.e. lots of money to be made in stenting veins, especially other than CSV...
by CNClear
Thu Dec 17, 2009 11:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent manufacturers
Replies: 38
Views: 7110

Doesn't it sound crazy...the stuff we ARE wishing for???!

All I want for Christmas is my 2 blocked veins (to show up, so they can be fixed...)
by CNClear
Thu Dec 17, 2009 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 55075

Mark,

I am counting on it working that way..., if not, what is the alternative....a really long stent?

Thanks for all the input!

Lisa (aka, CNClear)
by CNClear
Thu Dec 17, 2009 11:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Dake has been busy
Replies: 16
Views: 5002

Sharon, The pharma company that wanted to meet with me after the first of the year regarding funding for CCSVI, has stepped up their timing and now wants to meet with me asap...I understand Dake has a really good CCSVI PP presentation...have you seen it or do you know if it is on line somewhere? If ...
by CNClear
Tue Dec 15, 2009 8:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 55075

Bingo!
by CNClear
Mon Dec 14, 2009 8:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finding cures is not even remotely a consideration by pharma
Replies: 26
Views: 6669

Jay123...where can we find more about the 'supposed email' ?

Thanks,
Lisa
by CNClear
Mon Dec 14, 2009 4:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No one will listen
Replies: 14
Views: 6931

Bear... Ron White used to come to a small comedy club and we could go see him for $10 a show! One of my favorite RW lines is "...when I got stopped for a DUI, the arresting officer told me I had the right to remain silent...Too bad for me, I had the right, but not the ability..." The genie...
by CNClear
Mon Dec 14, 2009 3:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Acupuncture for neck veins
Replies: 35
Views: 9541

Guess I should've figured that out for myself...lol...but thanks for giving me the shortcut... I emailed your herb lady to ask about the UTI herbal treatment. I told her that you referred me, but that I couldn't give her a name, just Judipom...from the TIMS board... That would sure be a big help! I ...
by CNClear
Mon Dec 14, 2009 3:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 55075

You both make good points...isn't it a shame, though...(guess I'll keep my images to myself, too...)

Lisa
by CNClear
Mon Dec 14, 2009 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No one will listen
Replies: 14
Views: 6931

What about "The Doctors" (relatively new show on in the afternoon) they are always saying they want to know about stuff like this...or Dr. Oz? The only thing that worries me about getting the word out is that is the reason Dake had to stop doing the procedures and start a study/trial...bec...
by CNClear
Mon Dec 14, 2009 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 55075

Did anyone get to hold one of the stents? I did, and when I squeezed it, it sprung right back to its original shape and it seemed pretty indestructible given where it would be going...maybe some people have more 'acid' (or something similiar) in their systems that tends to break down the stent stren...

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