Search found 65 matches

by BBE
Fri Feb 12, 2010 1:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: this is interesting... PKAN
Replies: 8
Views: 3028

the only link I found...
Deferiprone, an orally deliverable iron chelator, ameliorates experimental autoimmune encephalomyelitis
http://msj.sagepub.com/cgi/content/abstract/13/9/1118
by BBE
Fri Feb 05, 2010 1:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Slovakia, Europe
Replies: 384
Views: 82633

Posted new links. I hope it will work now...
by BBE
Fri Feb 05, 2010 2:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Slovakia, Europe
Replies: 384
Views: 82633

Simple translation of BNAC Newsletter from Dr. Zivadinov in Slovak language. Please share to others...
http://www.upnito.sk/subor/0548eb5e77fa ... d032e.html
or
http://www.megaupload.com/?d=SF098VGU
by BBE
Mon Jan 25, 2010 4:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 10309

In case of restenosis after ballooning do you have to pay again for the whole procedure incl. stents or just the extra costs?
by BBE
Tue Dec 15, 2009 2:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Diet and CCSVI
Replies: 31
Views: 9765

Honestly, do you take all the 20 and more supplements every day? I can`t convince my girlfriend to take them every day. We make many breaks and take the daily dose in e.g. three days. She is concerned there is something inside that accumulates.
by BBE
Tue Dec 01, 2009 6:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Info prior to take the Doppler test
Replies: 13
Views: 3432

It`s not easy to answer your question and at the moment it`s also impossible because no one knows except Zamboni etc. It is very likely that your radiologist won`t find anything on your neck. The documents you mentioned are IMHO useless.
by BBE
Sun Nov 29, 2009 2:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS expert questions CCSVI...
Replies: 44
Views: 10393

2. Dr. Zamboni studied Sardinian children who had jugular venous malformations (“So-Called Primary Venous Aneurysms” pub.1990) 20 years later, 90% of this group had CDMS. MS takes many years to develop. Just as Budd Chiari (a venous disease of the liver) is diagnosed in young adults. Shall we wait ...
by BBE
Thu Nov 26, 2009 6:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We had good news and bad news
Replies: 41
Views: 28436

Needled ;) or in other words...the first in western europe. Because Poland is in central europe...
So I would simply say Zamboni`s team was first in Europe and Dr. Simka`s team the 2nd in Europe.
by BBE
Mon Nov 23, 2009 11:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian MS Society Homepage!!!!
Replies: 13
Views: 3192

1. Does the MS Society recommend people travel to get potential treatments related to this new idea? The MS Society believes that this is a question to be addressed by the individual to their neurologist/physician. It is noteworthy that the treatment ideas in question are very new and not scientifi...
by BBE
Fri Nov 20, 2009 1:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and yawning
Replies: 7
Views: 2517

CCSVI and yawning

I don`t remember if it was mentioned somewhere, but I noticed that my girlfriend is yawning too often in the mornings, until she gets up from bed. It`s like once a minute. I think that happens also before going to sleep and also when she wakes up in the middle of the night. I never do that in that t...
by BBE
Wed Nov 18, 2009 12:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 128580

Andrew, do you have any idea of the impact of IBT on "healthy" people.
Is the inclined bed recommended for anybody regardless of condition, e.g. for better sleep or so? Do you have your bed inclined?
by BBE
Sun Nov 08, 2009 10:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 348887

MS HISTORY Name: My wife Male/Female: F Age: 26 Date(s) & type of neurological diagnosis: 04/2008 RRMS Lesion locations (most affected side, if known), number: up to 30 MS treatments: Copaxone, supplements MS symptoms before stenosis intervention: Fatigue, occasional headaches, middle insomnia, ...
by BBE
Thu Nov 05, 2009 11:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to really perform USG Doppler?
Replies: 3
Views: 2193

I am sure he will, but I would suggest you to compare your MRV findings with Doppler from Simka after the examination...
by BBE
Thu Nov 05, 2009 4:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to really perform USG Doppler?
Replies: 3
Views: 2193

How to really perform USG Doppler?

Last week we managed to get the examination and USG in one of the best institutes for vascular and heart diseases in Slovakia. When I started explaining to one young doctor (angiologist) about CCSVI and showed him the report from Dr. Simka he was very surprised and decided to call all his colleagues...

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