Search found 121 matches

by CCmom
Wed Dec 02, 2009 3:26 pm
Forum: Low Dose Naltrexone
Topic: LDN: All fuzz, no buzz
Replies: 6
Views: 3941

My son says that he has a very high tolerance for alcohol, but he has nothing to compare it to, as he started LDN before he ever decided to drink. (He was diagnosed at age 13.)

But, he doesn't drink often, and he does seem to be able to hold his liquor really well.
by CCmom
Wed Dec 02, 2009 3:21 pm
Forum: Low Dose Naltrexone
Topic: LDN during the day question
Replies: 3
Views: 4871

It has always been my understanding that LDN should be taken in conjunction with your sleep cycle... When my son first started taking it, he would take it an hour or so before he went to bed for the evening. As he matured (he was only 13 when diagnosed) he started taking it at the same time every ev...
by CCmom
Wed Dec 02, 2009 2:59 pm
Forum: Under 25 with MS
Topic: Hello, everyone!
Replies: 0
Views: 7311

Hello, everyone!

I have been away for quite some time, but I see that I am still listed as a moderator for this forum! I joined this forum years ago, when my son was diagnosed with MS at age 13. He is now 21, just finished up college, and is doing amazingly well. I don't have as much time on my hands as I would like...
by CCmom
Thu Apr 12, 2007 4:17 am
Forum: Low Dose Naltrexone
Topic: Update on Colby
Replies: 3
Views: 3368

Thank you, LisaBee...How are you doing?

I see alot of new faces around here, but not so many of the old ones! I hope this means that everyone is doing so well that they don't have time to sit and type anymore!

Kim
by CCmom
Tue Apr 10, 2007 6:24 am
Forum: Low Dose Naltrexone
Topic: Update on Colby
Replies: 3
Views: 3368

Update on Colby

I am so sorry that I haven't been around to fill you in on Colby's progress on LDN. I think of you often, and I guess in this case, no news really IS good news! For those who don't know me, I am the mother of a 19 year old who was diagnosed with a very progressive form of MS at age 13. After 2 years...
by CCmom
Thu Oct 13, 2005 11:45 am
Forum: Low Dose Naltrexone
Topic: How we all doing on LDN?
Replies: 31
Views: 16211

My good friend, Cherie just gave me a nudge and told me to get my butt back here and fill you guys in. I have really drifted away from the forums over the past few months, but not for bad reasons! Everyone here has helped me so much in the past, and I never should have left you hanging like this! Co...
by CCmom
Fri Jun 17, 2005 9:59 am
Forum: Low Dose Naltrexone
Topic: waiting time after Avonex before starting LDN?
Replies: 2
Views: 3218

My son took his last Rebif injection on a Sunday night, and started the LDN on Tuesday night, when his next injection would have been due. You might ask your doctor or whoever prescribes the LDN about the Cellcept. It could be different with that. Good luck to you in finding someone to prescribe LDN...
by CCmom
Fri Jun 17, 2005 9:56 am
Forum: General Discussion
Topic: My Husband is Newly Diagnosed
Replies: 6
Views: 2989

My son is 17, and was diagnosed at age 13. I understand totally how you are feeling right now. There is some excellent advice in the posts above, but for yourself, do just exactly what you are doing...Learn all you can. Some of the fear and anxiety will subside as you become more informed. This is a...
by CCmom
Fri Jun 17, 2005 9:53 am
Forum: General Discussion
Topic: confused doctors
Replies: 5
Views: 2908

My son has had so many different diagnosis' that we have lost count. He's 17 years old now, this started at age 13. First, we were told that he had multiple inoperable brain tumors. Then, acute disseminated encephalomyelitis. An MS specialist was called in on the case, but told us there was "no way"...
by CCmom
Thu Jun 02, 2005 11:03 am
Forum: Copaxone
Topic: Copaxone injection site reactions related to body weight?
Replies: 5
Views: 6390

My son is 17, 6'2", and weighs 220 pounds. He has a terrible time with injection site reactions. He gives his own injections, but has terrible soreness in all the areas he uses. He rotates well, but it just hasn't helped. The nurse suggested yesterday that we reset the depth of the autoinjector, tha...
by CCmom
Thu Jun 02, 2005 10:51 am
Forum: Parenting Kids With MS
Topic: School Issues
Replies: 2
Views: 7048

I am not the original poster here, but I can surely relate to the conversation! My 17 year old son was diagnosed at age 13. As far as school goes, it has been a long hard battle, but I must admit the school staff has been very cooperative. How old is your son, bluesky? Is he on any treatment? I've b...
by CCmom
Thu Jun 02, 2005 10:43 am
Forum: Under 25 with MS
Topic: Resources for Kids WITH MS?
Replies: 3
Views: 6918

George's group is the only one like that I am aware of. And I've been looking for 4 years, now! My son is 17 and has MS, but I have been unsuccessful and keeping him regularly in touch with any of the other teens I have found, no matter how hard I try! Good luck! He was diagnosed at age 13, so I wou...
by CCmom
Thu Jun 02, 2005 10:30 am
Forum: Low Dose Naltrexone
Topic: HELP! Need a new doc to prescribe my LDN
Replies: 2
Views: 3399

If you will pm me, I will give you info on an inexpensive phone consult. I am hesitant to post info on the boards anymore, since there seems to be a question as to what happened with Dr. Scott. Our new neuro agreed to prescribe for Colby, so we are definitely getting somewhere with all of this. Kim
by CCmom
Thu Jun 02, 2005 10:26 am
Forum: Low Dose Naltrexone
Topic: LDN very first impressions
Replies: 2
Views: 2825

My 17 year old son went from Rebif to LDN, and I'm sure he would agree totally with that signature, Stalvos! Good for you! Hope you have nothing but improvements from here on in! My son is starting LDN again next week, his neuro had requested that we try Copaxone alone, which we did, and now we are ...
by CCmom
Tue Apr 12, 2005 6:44 am
Forum: Avonex
Topic: interferon side effects.
Replies: 3
Views: 3701

My son did not have seizures on the interferons, but did have a progressive decline in his condition. He also experienced severe problems with cognitive issues. He is now taking Copaxone and LDN, and doing much better. Good luck to you!

Kim