Search found 37 matches

by Sarahbellum
Tue Dec 22, 2009 6:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New official Facebook page for "Buffalo CCSVI Study&quo
Replies: 4
Views: 2542

how to get to the Buffalo CCSVI study facebook page

In the Facebook search box, type

Buffalo CCSVI Study

and it should pop up.

Let me know if you have any troubles.
by Sarahbellum
Tue Dec 22, 2009 6:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New official Facebook page for "Buffalo CCSVI Study&quo
Replies: 4
Views: 2542

New official Facebook page for "Buffalo CCSVI Study&quo

Launched on 12/22/09. Please become a fan!

Buffalo CCSVI Study

Also now on Twitter.
by Sarahbellum
Sun Dec 20, 2009 5:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 12/20/09 BuffaloNews article re:BNAC's study of CCSVI theory
Replies: 2
Views: 2279

12/20/09 BuffaloNews article re:BNAC's study of CCSVI theory

Go to http://www.buffalonews.com/home/story/899766.html

The results of the preliminary study will be announced in early February.

Go to http://www.BNAC.net for more information.
by Sarahbellum
Wed Dec 16, 2009 5:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to give to Buffalo study so they can complete research
Replies: 6
Views: 3053

Start tying Buffalo Neuroimaging Analysis Center and you will see the drop down to select.

They are working on adding BNAC.
by Sarahbellum
Tue Dec 15, 2009 8:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I just made a donation to the Buffalo study
Replies: 12
Views: 3230

HOw to give to Buffalo study so they can complete research

I just started a new topic "How to give to Buffalo study so they can complete the research." It has all the information you need to give by credit card online, by check or money order and who to contact re: a gift of stock or a wire transfers. You will probably want to do a wire transfer f...
by Sarahbellum
Tue Dec 15, 2009 8:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to give to Buffalo study so they can complete research
Replies: 6
Views: 3053

How to give to Buffalo study so they can complete research

Thank you, everybody for your interest in helping this study get completed. They need to raise $5million and with the help of TIMSers, they can make a dent! To give on line, go to http://ubfoundation.buffalo.edu/giving/v2/index.php?action=use-parameters Select "Search other funds" and ente...
by Sarahbellum
Mon Dec 14, 2009 8:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I just made a donation to the Buffalo study
Replies: 12
Views: 3230

Let's have a "Holiday of Hope!"

Thanks, everybody. They can't complete this study without our help.
www.bnac.net to make a gift.
by Sarahbellum
Mon Dec 14, 2009 8:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I just made a donation to the Buffalo study
Replies: 12
Views: 3230

Let's have a "Holiday of Hope!"

Thanks, everybody. They can't complete this study without our help.
www.bnac.net to make a gift.
by Sarahbellum
Sun Dec 13, 2009 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Neuroimaging Analysis Center (BNAC) wishes us all...
Replies: 0
Views: 2064

Buffalo Neuroimaging Analysis Center (BNAC) wishes us all...

a HOLIDAY OF HOPE Here is my most recent post about the Buffalo study. It's been terrific to get to know this amazing team of researchers who are hard at work to complete the analysis of the 1st 500 subjects. They will announce the results in EARLY FEBRUARY, just 6 weeks away. They need our help to ...
by Sarahbellum
Sun Dec 06, 2009 5:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Radeck, how are you?
Replies: 0
Views: 1824

Radeck, how are you?

If you are checking in, please know that there are lots of people out here keeping you in their prayers.
by Sarahbellum
Sun Nov 22, 2009 7:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Unblinding?
Replies: 2
Views: 2042

Re: Unblinding?

Hi... sorry if this is posted elsewhere, but I searched a bit and couldn't find a definite answer... The University of Buffalo press release ( http://www.buffalo.edu/news/10562 ) indicates that the first part of their study will be unblinded sometime in November ... any ideas as to when exactly? Wo...
by Sarahbellum
Tue Oct 20, 2009 6:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Response of Italian MS Society
Replies: 59
Views: 13689

Thank God for Zamboni and Dake, the two "true" neuros who only really care about people with MS and not about their pride..[/quote] Point of information: NEITHER ZAMBONI NOR DAKE ARE NEUROLOGISTS. Zamboni is a vascular surgeon and Dake is an interventional radiologist. The Zamboni theory i...
by Sarahbellum
Tue Oct 13, 2009 9:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment coming to the east coast...soon......
Replies: 14
Views: 4616

Hopefully the Jacobs Neurological diagnostic test numbers will support the next step, and we should have an idea about them soon. Define "soon." I am subject 400 something out of 1,700 and I won't be tested until November at the Jacobs so don't hold your breath. Soon may be a year from no...
by Sarahbellum
Mon Oct 12, 2009 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why not list CCSVI on Patients Like Me as a treatment?
Replies: 6
Views: 2748

Why not list CCSVI on Patients Like Me as a treatment?

There are some posts about CCSVI but no members report this as a treatment.

Is there a specific reason why CCSVIers are not using that site to report? I find it a helpful site.
by Sarahbellum
Mon Oct 12, 2009 5:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What does INR stand for?
Replies: 3
Views: 1985

Answered my own question

Still wish there weren't so many abbreviations! Except CCSVI is ok since it takes forever to even say.

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