Search found 148 matches

by Shannon
Mon Aug 06, 2012 3:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS breakthrough may provide new understanding
Replies: 19
Views: 4947

Re: MS breakthrough may provide new understanding

My initial MS symptoms were definately related to a trauma. I was brought down by a heavy backpack in college on a sheet of ice, just about passed out from it, and went to the emergency room. Approximately one month later I was back in the emergency room with parasthesias in my left arm which slowly...
by Shannon
Tue Aug 23, 2011 4:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: getting to know your blood-brain barrier
Replies: 42
Views: 9323

I would like to try a gluten free diet, but I have looked into it and don't really think I could do it. Is anyone here doing this diet and can you give some advice or recipes that work for you? Thanks!
by Shannon
Mon Aug 22, 2011 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: getting to know your blood-brain barrier
Replies: 42
Views: 9323

This is a great thread! There is so much great information, and I will be going through it again because I know I missed so much. I'm learning a lot! By the way, for Fiona, and anyone else who feels that the technical stuff is all to much to take (this includes me), here is a video you should watch:...
by Shannon
Sun Aug 21, 2011 7:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Genetics and CCSVI/MS--shared CNVs
Replies: 30
Views: 6324

Identical twins. A recent study of 3 sets of indentical twins, (called "MZ twins" for monozygotic) where one twin had MS, and the sibling did not, brought forward the following information: There was no discernable genetic difference between the immune system of the twin with MS, and the ...
by Shannon
Sat Aug 20, 2011 3:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Genetics and CCSVI/MS--shared CNVs
Replies: 30
Views: 6324

Hi - I am a university biology student, with only 4 classes left until I graduate. School starts again for me Sept. 1st! :D I am taking Neuroanatomy and the second semester of Organic Chemistry. Wish me luck... I just wanted to clarify that we all indeed are born with one genome and that it is the s...
by Shannon
Fri Aug 12, 2011 6:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Massive study disputes Zamboni theory of multiple sclerosis
Replies: 63
Views: 11574

(Same with smoking and lung cancer - smoking is not the cause of lung cancer, it is a major risk factor – the cause of lung cancer is some sort of cell dysfunction). ...cell dysfunction caused by inhaling known carcinogens! NHE I guess in this argument, CCSVI could be a known "MS-ogen." L...
by Shannon
Wed Jun 29, 2011 6:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

Thanks so much for clarifying that Johnson (or whatever your name is)! I see the answer to one of my questions is that Cortisone and Prednisone are in the same group of drugs, which I should have known by looking at the suffix -sone- in both. The trouble for me is how incredibly good I feel when I h...
by Shannon
Wed Jun 29, 2011 12:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

So, why give Cortisone instead of Prednisone? I assume they must have a similar purpose, in titrating down the steroid dose and reducing inflammation? Is Prednisone the same as Cortisone under a different name? I am just wondering, because 1eye had such a bad response to Cortisone, but I do pretty g...
by Shannon
Mon Jun 27, 2011 6:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

That's bad news. :( I get oral prednisone to come down from the IV steroids. Is this the same as cortisol, or similar? I know you're in Canada, so maybe just another name for the same thing? I know that steroids and prednisone lower the immune system and make us prone to infection, too. The thing ab...
by Shannon
Mon Jun 27, 2011 10:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

I was suggesting that it could possibly explain how infections, whether bacterial or viral, can exacerbate symptoms of MS. My last exacerbation, the worst I've had thus far, came following being exposed to a child who turned out to have had Hand Foot and Mouth Disease when visiting my house. Others ...
by Shannon
Mon Jun 27, 2011 8:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

Or, an alternative explaination, such as that described here: http://discovermagazine.com/2011/apr/16-interview-lynn-margulis-not-controversial-right/article_view?b_start:int=2&-C= Perhaps we have spirochetes DNA in our genomes which interacts with subsequent bacterial infections in ways that we...
by Shannon
Sun Jun 26, 2011 3:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

I would not characterize being treated as having gone into MS remission, or anything like that 1eye. I had relief from gastric troubles, but that was about all. Then again, my memory is so bad! One thing that perplexes me is how my head gets so incredibly hot sometimes, that even my kids touch me an...
by Shannon
Sat Jun 25, 2011 11:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood vessel pathology suggested in sepsis
Replies: 25
Views: 5604

My comment would be these two points: 1) I suspect that my H. Pylori infection came from my husband, who already had a history of gastric ulcers before I married him, and subsequently I developed "MS" shortly after we were married. 2) Once I was suspected to have bleeding ulcers, from over...
by Shannon
Thu Jun 23, 2011 4:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Viruses and CCSVI
Replies: 19
Views: 4478

I had my DNA sequenced, and it turns out I am 99% European, at least maternally, descending from the Saami U5, my line is, U51b. The Saami are the oldest known Europeans, similar to our native american indians, only Scandinavian! I also had an elevated risk for MS, along with atrial fibrillation, ps...
by Shannon
Thu Jun 23, 2011 3:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Viruses and CCSVI
Replies: 19
Views: 4478

Hi again - I found the article: < shortened url > While I was looking for it I also found a couple of interesting things about how our genomes are largely bacterial. You can also look up the discovery that gonorrhea has aquired a part of the human genome. Genetics fascinates me more than anything el...

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