This Is MS Multiple Sclerosis Knowledge & Support Community

I am soooooooo excited for you and all of us here...this is something...at least we have something...we have all been blessed in some way by your success. Please keep telling us your story(even the little things matter so much!!!). Hopefully one day we will all be able to share OUR stories of succes...

YES...checking into CCSVI...will check in here and there on that forum...going to get checked out soon...scared!!!

Leetz

WELCOME...look under CCSVI postings...

Leetz

hoever there is an abundance of info on poland and ccsvi here under ccvsi....search around this site....goodluck to you...

leetz

love actually.........the tingle happens to me quick fast...hands fall asleep...legs too!!!

LEETZ

haved not got it done yet....but thank you for the info...

Leetz

small jeg...

thank you so much for your post..i will post after they test and read it...so good that you have the copies...check into poss. interventional radiologist's to take a look at it...maybe some one here can chime in???

Leetz

I am so happy for you...God Bless...

Leetz

I started out able to walk fine............Now not so much...cane...etc..Avonex made me feel worse...Campath 4 months in noooo results...CCSVI look into it....

LEETZ

getting MRV in upstate NY (Albany)....Jan. 5th 2010.. thanks to my wonderful doctor...i am just scared that they won't read it right...what to do?????

LEETZ

will keep my ears open...let you know if i hear anything...have you noticed any gooood changes since the infusions???

LEETZ

GOING to see an ENT was what came before my diagnoses of MS...they should have already run test(s) on you to r/o an inner ear issue...it would be worth a try...just as a rule out type thing...good luck to you!!!

Leetz

NOT SURE ABOUT FERTILITY...did you get campath????I did like 4 months ago...i have NOT seen any change as of yet...

Leetz

MECH..INCLINED.. I too tried avonex...i got worse....tried it for 2 months...then off...on ldn(only took away pain) some of it...then in trial for campath--been 4 months still the same...use a cane and can't stand for long at all...spastic..brainfog- can't focus on anything...pain pain pain..ms hugg...

Hopefully Meridith Veira will fight the cause...her husband needs her to as well us!!!Good Work!!!

Leetz