Search found 301 matches
- Mon Dec 08, 2014 1:52 pm
- Forum: Undiagnosed
- Topic: When meds didn't work they also tested me for this...
- Replies: 2
- Views: 1262
Re: When meds didn't work they also tested me for this...
yes you are very right...just wanted to pass it on..
- Sat Dec 06, 2014 10:35 pm
- Forum: Undiagnosed
- Topic: Is this PPMS? Please help
- Replies: 1
- Views: 1232
Re: Is this PPMS? Please help
Hi...I don't know what to tell you beside...You would really have to see a Neurologist for further testing...Primary Progressive Multiple Sclerosis is different than Relapse Remitting and Secondary Progressive...You should check out the threads here and see if there is any information that might be ...
- Sat Dec 06, 2014 10:25 pm
- Forum: Introductions
- Topic: "Almost" diagnosed
- Replies: 3
- Views: 1983
Re: "Almost" diagnosed
Welcome aboard and please update us on how you are doing....
- Sat Dec 06, 2014 9:50 pm
- Forum: Undiagnosed
- Topic: When meds didn't work they also tested me for this...
- Replies: 2
- Views: 1262
When meds didn't work they also tested me for this...
...can mimic plan ol M.S.... Neuromyelitis Optica (NMO)... I tested negative, .. (still have Multiple Sclerosis) but no meds were working for me so he thought maybe it could be NMO since the spinal tap was positive for oligodendrites (sp.)...thought I would spread the word because I guess there is a...
- Sat Dec 06, 2014 7:48 pm
- Forum: Undiagnosed
- Topic: Young with MS?
- Replies: 27
- Views: 4255
Re: Young with MS?
Trust your body... see a Neurologist that can offer you the proper avenues for diagnosis...glad you joined...god bless you
- Sat Dec 06, 2014 7:26 pm
- Forum: Undiagnosed
- Topic: My symptoms...should I worry?
- Replies: 5
- Views: 1358
Re: My symptoms...should I worry?
Get checked by Neurologist! Don't waste time. It really could be a number of different things...just some advice (not a Doctor)...get back to us and let us know how your doing!
- Sat Dec 06, 2014 7:22 pm
- Forum: Undiagnosed
- Topic: Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinions...
- Replies: 26
- Views: 6216
Re: Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinion
Please please go to see a Neurologist! Leaving it up to your GP is very risky, it is much better to know what is really happening rather than to test drugs that may not even help those of us already diagnosed... if you look into it I am sure you will find that Multiple Sclerosis is not easy to diagn...
- Sat Aug 03, 2013 12:07 am
- Forum: Introductions
- Topic: Dealing with a parent with MS.
- Replies: 5
- Views: 1757
Re: Dealing with a parent with MS.
wow...some great advice! well same here I got diagnosed when my daughter was 12 or 13...she has been right here with me...18 now and she is staying close to home for college. I think as parents with this horrible disease, we do depend on those that are closest to us. I think this disease has brought...
- Fri Aug 02, 2013 11:24 pm
- Forum: Regimens
- Topic: My Regimen
- Replies: 2
- Views: 2582
Re: My Regimen
wow...that's a lot of meds....you were right..did you ever think of taking milk thistle for your liver? That is a heavy load on your liver girl! Think some people that take a lot of medication also take that to help liver along...(of course you must ask doctor first to make sure it does not interact...
- Fri Aug 02, 2013 11:17 pm
- Forum: Low Dose Naltrexone
- Topic: LDN - Diagnosed Less Than a Year Ago
- Replies: 1
- Views: 3378
Re: LDN - Diagnosed Less Than a Year Ago
blessings to you...
- Fri Aug 02, 2013 11:15 pm
- Forum: Introductions
- Topic: Hello
- Replies: 3
- Views: 1202
Re: Hello
I would suggest getting an MRI of your spinal cord (this is where my lesions are hiding)....if your really desperate than ask your Doctor for a spinal tap (ouch...but remember the earlier it is diagnosed the better) I went at LEAST 8 years with out diagnosis and lost a lot of my functions, also not ...
- Fri Aug 02, 2013 11:06 pm
- Forum: General Discussion
- Topic: Drug relieved MS constipation but induced diarrhoea
- Replies: 4
- Views: 1496
Re: Drug relieved MS constipation but induced diarrhoea
i use mira-lax...drink it in coffee doesn't matter...been good to me...
- Fri Aug 02, 2013 9:58 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Experiences with Tysabri
- Replies: 66
- Views: 83072
Re: Experiences with Tysabri
oh sorry forgot! tested JC Negative..
- Fri Aug 02, 2013 9:54 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Experiences with Tysabri
- Replies: 66
- Views: 83072
Re: Experiences with Tysabri
Hi everyone... I got Tysabri for 14 months and decided to stop taking the infusions as I did not feel the little bit of "lift" it once gave me. My EDSS is 5.5 and I have RRMS. I have been in a wheel chair for about 2 years now, can still stand and walk baby steps in the bathroom with assis...
- Tue Jan 15, 2013 1:25 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Experiences with Tysabri
- Replies: 66
- Views: 83072
Re: Experiences with Tysabri
thank you all for your input! God Bless