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Dealing with MS pain is tricky. I find it very difficult to articulate my nerve pain. I think the best description is a feeling of an electric current being passed through my body - feeling the affect mainly in the shoulders, back and legs. It makes me want to hunch my shoulders in order to give me ...

Hi Everyone, It is quite a while since I last posted on this board and a quick scan and search indicated that this thread might be the most appropriate for the subject that I wanted to discuss. I was treated in Poland in March this year and had both jugulars ballooned and a stent inserted in the lef...

Johnson As it happens the MRV was relatively cheap in Poland - much cheaper than in the UK or the USA. In any event it is now part of the package. I know that sometimes the problem cannot be identified with either the doppler or the MRV but will be picked up on the venogram - if the slight risk of a...

Hi Mark Interesting theory! I too am having some doubts about the value of MRV comparitive to a doppler test by an experienced operator. I have just returned from Poland having had both tests. To this day I don't know whether or not the MRV revealed any stenosis. This information was not given to me...

Hi openmind (and everyone else who may be reading this thread) This is my first post since returning from Poland yesterday after having the 'liberation' procedure last Thursday the 25th March. These thoughts may be a little jumbled and when my mind becomes clearer I may post in a more logical consid...

I know the feeling.

Perhaps I need to think of something original?

Michele, I like the new postscipt - 'Warrior' - very apt!

Hi zia

ditto - and safe journey. Will you be there anytime between 22 - 27th? I will be flying Whizz air - arriving about midnight?

Regards

Hi Mark I think that you are right. I personally had no real hopes of getting anything done on the NHS, which is why I booked Poland last November. I had gone to see my doctor in early October, well before CCSVI was out in the public domain. I surprised myself that I got this far. It would be a comp...

Hi Brynn

Sorry for my careless error. I won't make that error again.

Regards

I am so pleased that everything seems to be working out well. Thank you for keeping us all informed.

I'm off to Poland next week and my main anxiety relates to the longevity of the treatment if stents are not used. So many patients seem to be going back a second time. With this prospect in mind I was interested in Brynn's comment that his 2nd visit worked out slightly less expensive than the first ...

Hi Michele What you say makes a lot of sense and thank you for posting in your roving mode - very considerate. From what I've read on other threads, Ella has had a stent inserted and appears to be doing well. I'm so pleased. I look forward to hearing more news in due course. We will be exchanging pl...

I also posted an update on anther thread. Basically, my situation is as follows: 2 days ago I had the CT scan and the test also included a dye being injected into my veins to try to detect a blockage. This test was done under the NHS. A previous doppler test had proved negative. Unfortunately, I wil...

I hope that this is the most appropriate thread? Where does a CT Angiogram Intercranial stand in comparison with an MRV for detecting CCSVI? The MRV is often called 'the gold standard test'. Is the CT scan on a par or lower down the scale? Yesterday, I had the CT scan and the test also included a dy...