Search found 68 matches

by kinga
Sun Jan 10, 2010 7:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The kinds of venous malformations that have been found
Replies: 47
Views: 10445

Why-
I'm patient of Dr Simka and Dr Kostecki,both of them are not really willing to operate due to risk.
by kinga
Sun Jan 10, 2010 1:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The kinds of venous malformations that have been found
Replies: 47
Views: 10445

ozarkcanoer- as far I understood what doctors said,my azygos is probably stenosed so bad is completely closed at some point.Problem is,they say this kind of surgery is 3x more risky that stenting of vena cava (procedure for cancer patients in case of tumor blocking blood flow) so they are afraid to ...
by kinga
Sat Jan 09, 2010 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The kinds of venous malformations that have been found
Replies: 47
Views: 10445

hi,
-closed azygos vein-
this is what I have,unfortunately...
by kinga
Fri Jan 01, 2010 8:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6th Jan 2010 (Katowice) - POST-OP
Replies: 101
Views: 17191

I wish You luck,Mark!!!
by kinga
Tue Dec 29, 2009 12:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Identifying anatomy
Replies: 8
Views: 3730

I found fantastic place to learn more on human anatomy-its at http://www.visiblebody.com/start .It has 7 days free trial,in my opinion plenty of time to see where our veins are :wink: takes few minutes to load but I think its worth waiting.Images are 3D.
by kinga
Sun Dec 27, 2009 12:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: If you have received a CCSVI diagnosis....
Replies: 17
Views: 6017

Cheer-
If You could post for me also...
woman,35,diagnosed MS 2002,doppler October 2009 showed reflux and valves problem on both sides,MRV November 2009 showed azygous vein blockage,no jugular veins problems.Doctors suggest balooning to resolve azygous vein problem.
Thanks a lot!
by kinga
Fri Dec 18, 2009 4:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Please sign this petition for Poland
Replies: 7
Views: 2271

PLEASE HELP US! and sign polish version of petition!
by kinga
Wed Dec 09, 2009 12:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A public THANK YOU to Dr. Dake
Replies: 14
Views: 2685

Thank You,Dr Dake! and please don't leave us alone in this fight!
by kinga
Mon Nov 30, 2009 2:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 42996

Radeck,don't even think like that! we all pray for You! and waiting for you here!
by kinga
Sat Nov 28, 2009 1:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turned down at Stanford
Replies: 15
Views: 3153

I thought Dr. Dake was catching and correcting problems in the azygous vein or am I wrong? I know it doesn't show up in the MRV, but doesn't he see it in the venography? now thats interesting :? I have blocked azygos and it was revealed by MRV...on doppler Simka saw turbulence and valve problem in ...
by kinga
Fri Nov 27, 2009 12:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 159589

Brainteaser I'm happy everything went well! I wish You smooth recovery! "good luck" for Wonky1!
by kinga
Fri Nov 27, 2009 12:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: position dependent stenosis?
Replies: 4
Views: 1741

thank you Cure
by kinga
Thu Nov 26, 2009 7:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 42996

I'm so sorry,Radeck-hope You will be better soon.I'm wishing You quick recovery without further complications.Oh,God,open heart surgery :(
by kinga
Thu Nov 26, 2009 1:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: position dependent stenosis?
Replies: 4
Views: 1741

position dependent stenosis?

I need Your help !
I know, i've been reading somewhere about stenosis that is dependent on position of our body-is present only in some positions of our body...but I can not remember where I saw it...somebody help?
by kinga
Thu Nov 26, 2009 11:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News from Rici, a polish patient being operated
Replies: 105
Views: 25508

Here is Ricci's report after 1 month+1 week after the procedure: 1.He can now stand on one foot longer 2.He now can wash himself standing with no breaks for rest-doesn't feel exhausted in the middle of the process 3.He can bend over the sink to wash his face-no unwanted movements,no balance problems...