This Is MS Multiple Sclerosis Knowledge & Support Community

Can not get n US yet. Was brought as gift from Europe and started taking. It needs to be taken at least 6 months according to clinical trial results to start notice improvement....yet I took first dose and a leg cramp I was suffering with for a month at night ,subsided first night... It is a liquid,...

I have been on LDN since 2003 . I have secondary progressive or primary progressive..drs. are not sure. I was on Rebif and spent almost 2 yrs of my life in bed with the flu and progressed quickly. I went to see Dr. Bihari and have not looked back since. I only take LDN, follow DR Wahls diet ( with c...

I have been on LDN for 10yrs and have been stable since starting it.(SecPMS). Wish I had started before my legs were affected. I too would like to
know if the Tecfidera can be taken with LDN or should XYMOGEN or Protandim be taken instead as an addition to LDN use?

I have been on LDN for 9 yrs. I started out with 4.5 but a few years ago went down to 3mg. I started to get stiff from 4.5) Do not take in the AM Lower your dose to 1.5mg for a month, Then go to 3mg. This is all you may need. Try your 4.5, since you have them after a month on 3mg and see if you can ...

1eye, you should look into Hyperbaric Oxygen for you ankle to heal. It may be covered by insurance.
I know the oxygen chambers are used for healing burns and differ types of sores.(also lots of face lifts)
Regards to your sweet Mrs.!

Kiki

I have been trying to figure this out for years. I feel so much better when I do not eat. I walk better too. I tried gluten free diet,...no difference. What i do know for sure, too much sugar or carbs..and I HURT all over . I need to take 3 motrin to feel better,so I am guessing it is inflamation ca...

I have been trying to figure this out for years. I feel so much better when I do not eat. I walk better too. I tried gluten free diet,...no difference. What i do know for sure, too much sugar or carbs..and I HURT all over . I need to take 3 motrin to feel better,so I am guessing it is inflamation ca...

Ditto. Ditto!!!!

Ditto from me too. Thank you to all involved in putting this together. Wish I could have stayed to chat after. It was so wonderful putting a face to the TIMS names and I am sorry I did not get to meet all of you. To those I met......you are as genuine in person as you are on line. Till we meet again...

Dr. Sclafani: Has anyone been treated for stenosis in the sigmoid sinus? Donnchadh yes there are many reports of stenting of dural sinuses in the literature. But none to my knowledge have been reported in patients with MS or other demyelinating diseases. I have only been looking at these sinuses in...

Dr. Sclafani: Has anyone been treated for stenosis in the sigmoid sinus? Donnchadh yes there are many reports of stenting of dural sinuses in the literature. But none to my knowledge have been reported in patients with MS or other demyelinating diseases. I have only been looking at these sinuses in...

I walk as though I have had a few drinks anyway...what's one more!!!
Count me in.


Kiki

It just happens to be Restaurant Week in NY the week of conference.
FYI...Google NYC Restaurant Week . You need to make reservations to make sure you get in.



Kiki

Yes Laura
I live close enough also, LI. I can't get going in the mornings so this was a good excuse to see a play Thursday night and just wake up and scoot downstairs. I should even have time to comb my hair!LOL

Kiki

Does anyone have a list of patients attending?? Not real names, our TIMS names would be more recognizable? Maybe we should wear 2 name badges.
I just booked a room.for Thursday night....very$$$ think of it as my LIBERATION VACATION CELEBRATION!
Anyone going from Thursday??

Kiki