Search found 24 matches

by dianabee
Thu Aug 18, 2011 8:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BLOOD CLOTS AFTER ANGIOPLASTY IN JUGULAR VEIN
Replies: 10
Views: 3420

could it be a clot?

i hope i am posting this in the right spot. i had ccsvi treatment in april. in the last few weeks i am feeling tighness on the right side, like pressure. it gets intense, especially when bending over, or lying down with head propped even slightly. when just sitting, i feel just a slight discomfort a...
by dianabee
Sat Jul 23, 2011 11:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Feeling of high "pressure" in neck 3 months post-p
Replies: 1
Views: 1934

Feeling of high "pressure" in neck 3 months post-p

I had my CcSvi procedure in April and with the exception of a killer headache the first 48 hours, I've been symtom-free, until a few weeks ago. I am not sure this is related to the procedure, but I really don't see how it couldn't be: I'm experiencing what feels like pressure buildup in my neck (fro...
by dianabee
Wed Jun 15, 2011 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366039

Presenters?

From the link, www.ccsvisymposium.com/ : Target Audience The symposium will be of value to interventional radiologists, vascular surgeons, neurologists and other medical professionals who work with MS patients or who specialize in endovascular therapy. Learning Objectives Upon completion of this ac...
by dianabee
Sun Jun 12, 2011 9:22 am
Forum: General Discussion
Topic: Question about cognitive decline
Replies: 8
Views: 2718

welcome jw, you're right it's different for everyone. i have had to deal with cognitive issues but then i detected and corrected my zinc deficiency and things cleared up. ... i spent 15 years depleting my body's nutrient stores, via being a strict strict vegan. i am only 5 years into building those...
by dianabee
Sun Jun 12, 2011 6:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 346343

CCSVI tracking 06/09/2011 MS HISTORY Name (if want to give other than TIMS login name): dianabee Male/Female: (M/F) F Age: 55 Date(s) & type of neurological diagnosis RRMS Lesion locations (most affected side, if known), number: 25+, cortical, subcortical MS treatments: Copaxone Rebif MS symptom...
by dianabee
Sat Jun 11, 2011 7:08 pm
Forum: MS in the Golden Years
Topic: How old do you have to be to be in this age group?
Replies: 5
Views: 7927

Re: How old do you have to be to be in this age group?

TeeBee1 wrote:IWhen does one start ones golden years?
That is funny I was just wondering the same thing! Maybe if we have to ask, we are old enough!
by dianabee
Sat Jun 11, 2011 6:59 pm
Forum: General Discussion
Topic: Question about cognitive decline
Replies: 8
Views: 2718

Re: Question about cognitive decline

My name is Joe, and I was recently diagnosed with MS. I am a 25 year old grad student studying high-energy particle physics, and I love what I do so much. I am horrified at the thought that the cognitive decline associated with MS might prohibit me from doing what I love. I know it probably varies ...
by dianabee
Sat Jun 11, 2011 6:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FYI Medicare and CCSVI
Replies: 57
Views: 12405

Coverage

My Albany procedures this past December were mostly covered by Medicare (except about a thousand out of fifteen). However, I last week went to a local IR w/ some CCSVI background who told me Medicare is no longer covering it. That is interesting. I had the procedure 2 days ago; I double checked aga...
by dianabee
Sat Jun 11, 2011 6:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: had venoplasty this week! Now for the bad news...
Replies: 6
Views: 2380

48 hours post-procedure

Thx everyone for the responses. I left a msg At the clinic and if things get worse I will page the doctor. The excruciating headache subsided this morning, and all that is left of it is a swollen gland and slightly swollen below the ear. The fever also has subsided so I think I have turned a corner ...
by dianabee
Sat Jun 11, 2011 7:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BNAC funding status
Replies: 9
Views: 2666

I hope you were able to respond to bnac directly on their page, as well. And know you are not alone on this!
by dianabee
Fri Jun 10, 2011 8:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: had venoplasty this week! Now for the bad news...
Replies: 6
Views: 2380

had venoplasty this week! Now for the bad news...

I just spent the past few days in Albany. We made the 6 hour trip by car. Everything went as expected. I had occluded ijvs but the azygous vein was fine. Took a little too long to come out of the anethstesia. My neck was tender the same day and the day after. After 24 hours, we started the trip back...
by dianabee
Thu May 26, 2011 2:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 16971

Reimbursement

I am just shocked that this happened to you. I am not familiar with bcbs but if this is a ppo arrangement and the provider is in network, the provider has to accept whatever payment bcbs sends, which would mean you should get the entire 10 thousand back. so unacceptable on aac's part. Hopefully the...
by dianabee
Mon May 23, 2011 10:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FYI Medicare and CCSVI
Replies: 57
Views: 12405

medicare (US) coverage

First, I believe this thread is in reference to Medicare in the US; not private insurance, or medicare in other countries such as Canada or Australia. I believe there is another thread regarding a specific private insurer, and that is a seperate issue. Regarding Medicare in the US, I have not heard ...
by dianabee
Mon May 23, 2011 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FYI Medicare and CCSVI
Replies: 57
Views: 12405

To put the earlier quote into context, that given was before I had my procedure with Dr. Makris. Medicare did indeed cover this procedure. I think the key is to code the procedure as treatment for venous problems (which when you think about it is a more accurate description) rather then as a "...
by dianabee
Mon May 23, 2011 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FYI Medicare and CCSVI
Replies: 57
Views: 12405

Medicare covers procedure

There are a couple of different threads out here about Meficare denying coverage. First let me say I have not seen any posts where a patient has actually received a denial letter from Medicare. I have seen only references about it from provider offices and one letter where they said they would not c...

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