Search found 16 matches
- Sun Oct 25, 2009 6:10 pm
- Forum: Introductions
- Topic: I'm excited to have found this site!
- Replies: 6
- Views: 2031
Re: you were 30
ok..hi, im joe..what are you doing at this time? beta? etc?..been to the steroid shop..im older..54...male...got the phonecall march 7, 06...its either m.s. or a brain tumor....i thot....alex, can i get m.s. for 100?...no pity party in this convo...tell me about your travel...joe I'm still taking B...
- Sun Oct 25, 2009 1:43 pm
- Forum: General Discussion
- Topic: Sick of people treating you like a disease
- Replies: 8
- Views: 2394
You have received so many great comments and support! It is great that ou are moving forward with your life and a vacation before your second child arrives is excellent. (We have two daughters and it does get busier!) However, one suggestion on the much needed and expensive trip is travel insurance...
- Fri Oct 23, 2009 4:00 am
- Forum: Daily Life
- Topic: Social Security Disability
- Replies: 6
- Views: 3309
thank you jimmylegs, ugh...I'm sorry your friend was turned down. It sounds as if he is the classic person that SS insurance is for! It makes you wonder what the heck we've been paying into the system for so long for. :/ I can look for some pro bono help the first time perhaps. That's a good idea. W...
- Thu Oct 22, 2009 4:58 pm
- Forum: Regimens
- Topic: Solumedrol
- Replies: 6
- Views: 3691
thank you. I think I'm going to talk to them about quitting after 3 days instead of doing the 5. I have known that it was bad for you all along but it is hard to be ready with articulate arguments and firm in insisting on alternatives. And...it's scary too! I would like to be able to put all trust i...
- Thu Oct 22, 2009 2:36 pm
- Forum: Daily Life
- Topic: Social Security Disability
- Replies: 6
- Views: 3309
- Thu Oct 22, 2009 12:19 pm
- Forum: Daily Life
- Topic: Social Security Disability
- Replies: 6
- Views: 3309
Social Security Disability
:oops: This is so hard for me to write about. I've been a bit of a work-a-holic and LOVED every career I've ever had all of my life. Since the episode that pulled the world out from under me a year and a half ago I have not been able to work and am facing the fact that for right now I'm going to hav...
- Thu Oct 22, 2009 11:48 am
- Forum: Betaseron
- Topic: Clinical effectiveness
- Replies: 20
- Views: 31241
Within a two years of starting beta seron (I had been doing fairly well with basically no drugs for about 15 years, I had the episode from hell. In a nut shell, it could have left me wheelchair bound or worse. Now a year and a half after that one, I've got another episode. Worse than the ones I used...
- Thu Oct 22, 2009 11:36 am
- Forum: Betaseron
- Topic: New Autoinjection Device, Betaject(R) 3
- Replies: 2
- Views: 10905
Re: Problems with the new Betaseron injector
I've been using the new injector (Betaject -3) for about 4 months now and find it less user-friendly than the older versions. This version is mechanically less smooth, needs two hands to operate (which make some injection sites much more difficult). But, more troublesome is that I am seeing injecti...
- Thu Oct 22, 2009 11:26 am
- Forum: General Discussion
- Topic: Sick of people treating you like a disease
- Replies: 8
- Views: 2394
- Thu Oct 22, 2009 11:23 am
- Forum: General Discussion
- Topic: Sick of people treating you like a disease
- Replies: 8
- Views: 2394
Re: Sick of people treating you like a disease
I worry enough about everything, and yes even having MS, but I still want to enjoy my life! And people treating me like this just makes me worry more and feel depressed! Do any of you (who actually understand where I'm coming form) have any advice? Do you travel and do you find it affects your MS a...
- Thu Oct 22, 2009 11:10 am
- Forum: Introductions
- Topic: I'm excited to have found this site!
- Replies: 6
- Views: 2031
So, forgive my ignorance, when you say you received a Stanford appointment do you have a professorship there now? I have an appointment with Dr. Dake to be evaluated for CCSVI and possibly treated. If you haven't heard of this, you might check out the CCSVI topic here. It is very exciting, but it i...
- Thu Oct 22, 2009 10:06 am
- Forum: Drug Pipeline
- Topic: Plasma Exchange
- Replies: 12
- Views: 6044
I actually had very good results with PLEX last year. I had an exacerbation that was not responding to steroids at all and continuing to get worse- I posted the details of it on my introduction thread. (though I forgot to say the lesion was at C-2 and covered over 85% of my spine by the time it was ...
- Thu Oct 22, 2009 6:34 am
- Forum: Regimens
- Topic: Solumedrol
- Replies: 6
- Views: 3691
Solumedrol
I've been searching the forums for information about the use of Solumedrol during an exacerbation. That has always been the standard response from any neuro that I have been with. 1000mg/day IV for 5 days. I HATE what it does to me- fat and grumpy. Last year an episode hit me that was really life en...
- Thu Oct 22, 2009 6:03 am
- Forum: Introductions
- Topic: I'm excited to have found this site!
- Replies: 6
- Views: 2031
Hello Beth, Yes, that is a big thing too. I never want to talk about it very much and didn't want to be one of those people that talks about their ailments all the time. ( lol though as you get older that tendency creeps up on you :oops: ) And that was much easier as you said when my symptoms weren'...
- Wed Oct 21, 2009 9:29 pm
- Forum: Drug Pipeline
- Topic: IV steroids protocol success in PPMS
- Replies: 13
- Views: 6722
yikes... I'm just very new to the site so I usually hold back before I post but I'm reading this and all of the dosages you are talking about are so small! My neuro puts me on 1000 Mg/day of IV solumedrol for 5 days when I have serious exacerbation with new lesions. I've had this done to me probably...