Search found 16 matches

by Caralea
Sun Oct 25, 2009 6:10 pm
Forum: Introductions
Topic: I'm excited to have found this site!
Replies: 6
Views: 2031

Re: you were 30

ok..hi, im joe..what are you doing at this time? beta? etc?..been to the steroid shop..im older..54...male...got the phonecall march 7, 06...its either m.s. or a brain tumor....i thot....alex, can i get m.s. for 100?...no pity party in this convo...tell me about your travel...joe I'm still taking B...
by Caralea
Sun Oct 25, 2009 1:43 pm
Forum: General Discussion
Topic: Sick of people treating you like a disease
Replies: 8
Views: 2394

You have received so many great comments and support! It is great that ou are moving forward with your life and a vacation before your second child arrives is excellent. (We have two daughters and it does get busier!) However, one suggestion on the much needed and expensive trip is travel insurance...
by Caralea
Fri Oct 23, 2009 4:00 am
Forum: Daily Life
Topic: Social Security Disability
Replies: 6
Views: 3309

thank you jimmylegs, ugh...I'm sorry your friend was turned down. It sounds as if he is the classic person that SS insurance is for! It makes you wonder what the heck we've been paying into the system for so long for. :/ I can look for some pro bono help the first time perhaps. That's a good idea. W...
by Caralea
Thu Oct 22, 2009 4:58 pm
Forum: Regimens
Topic: Solumedrol
Replies: 6
Views: 3691

thank you. I think I'm going to talk to them about quitting after 3 days instead of doing the 5. I have known that it was bad for you all along but it is hard to be ready with articulate arguments and firm in insisting on alternatives. And...it's scary too! I would like to be able to put all trust i...
by Caralea
Thu Oct 22, 2009 2:36 pm
Forum: Daily Life
Topic: Social Security Disability
Replies: 6
Views: 3309

Thank you for the feedback. I think this is what I will do. I may talk to the Att one more time and see what the charges would be doing it the first and second time as opposed to just taking it on after the first rejection.

Thank you!
by Caralea
Thu Oct 22, 2009 12:19 pm
Forum: Daily Life
Topic: Social Security Disability
Replies: 6
Views: 3309

Social Security Disability

:oops: This is so hard for me to write about. I've been a bit of a work-a-holic and LOVED every career I've ever had all of my life. Since the episode that pulled the world out from under me a year and a half ago I have not been able to work and am facing the fact that for right now I'm going to hav...
by Caralea
Thu Oct 22, 2009 11:48 am
Forum: Betaseron
Topic: Clinical effectiveness
Replies: 20
Views: 31241

Within a two years of starting beta seron (I had been doing fairly well with basically no drugs for about 15 years, I had the episode from hell. In a nut shell, it could have left me wheelchair bound or worse. Now a year and a half after that one, I've got another episode. Worse than the ones I used...
by Caralea
Thu Oct 22, 2009 11:36 am
Forum: Betaseron
Topic: New Autoinjection Device, Betaject(R) 3
Replies: 2
Views: 10905

Re: Problems with the new Betaseron injector

I've been using the new injector (Betaject -3) for about 4 months now and find it less user-friendly than the older versions. This version is mechanically less smooth, needs two hands to operate (which make some injection sites much more difficult). But, more troublesome is that I am seeing injecti...
by Caralea
Thu Oct 22, 2009 11:26 am
Forum: General Discussion
Topic: Sick of people treating you like a disease
Replies: 8
Views: 2394

Oh! and fabulous for you that you are going with a Midwife!! Just find another one that has a more informed attitude. I had both of my boys at home and in my pre MS life was a midwife that attended over 200 births (as assistant for most of those and primary the last couple of years)

:D
by Caralea
Thu Oct 22, 2009 11:23 am
Forum: General Discussion
Topic: Sick of people treating you like a disease
Replies: 8
Views: 2394

Re: Sick of people treating you like a disease

I worry enough about everything, and yes even having MS, but I still want to enjoy my life! And people treating me like this just makes me worry more and feel depressed! Do any of you (who actually understand where I'm coming form) have any advice? Do you travel and do you find it affects your MS a...
by Caralea
Thu Oct 22, 2009 11:10 am
Forum: Introductions
Topic: I'm excited to have found this site!
Replies: 6
Views: 2031

So, forgive my ignorance, when you say you received a Stanford appointment do you have a professorship there now? I have an appointment with Dr. Dake to be evaluated for CCSVI and possibly treated. If you haven't heard of this, you might check out the CCSVI topic here. It is very exciting, but it i...
by Caralea
Thu Oct 22, 2009 10:06 am
Forum: Drug Pipeline
Topic: Plasma Exchange
Replies: 12
Views: 6044

I actually had very good results with PLEX last year. I had an exacerbation that was not responding to steroids at all and continuing to get worse- I posted the details of it on my introduction thread. (though I forgot to say the lesion was at C-2 and covered over 85% of my spine by the time it was ...
by Caralea
Thu Oct 22, 2009 6:34 am
Forum: Regimens
Topic: Solumedrol
Replies: 6
Views: 3691

Solumedrol

I've been searching the forums for information about the use of Solumedrol during an exacerbation. That has always been the standard response from any neuro that I have been with. 1000mg/day IV for 5 days. I HATE what it does to me- fat and grumpy. Last year an episode hit me that was really life en...
by Caralea
Thu Oct 22, 2009 6:03 am
Forum: Introductions
Topic: I'm excited to have found this site!
Replies: 6
Views: 2031

Hello Beth, Yes, that is a big thing too. I never want to talk about it very much and didn't want to be one of those people that talks about their ailments all the time. ( lol though as you get older that tendency creeps up on you :oops: ) And that was much easier as you said when my symptoms weren'...
by Caralea
Wed Oct 21, 2009 9:29 pm
Forum: Drug Pipeline
Topic: IV steroids protocol success in PPMS
Replies: 13
Views: 6722

yikes... I'm just very new to the site so I usually hold back before I post but I'm reading this and all of the dosages you are talking about are so small! My neuro puts me on 1000 Mg/day of IV solumedrol for 5 days when I have serious exacerbation with new lesions. I've had this done to me probably...

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