Search found 218 matches

by ClaireParry
Tue Nov 22, 2011 2:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood Clot????
Replies: 3
Views: 1100

Blood Clot????

Hi everyone, Its been a year since my last unsuccessful CCSVI treatment in Poland. I've had no problems following surgery, just no improvements either..... However, last night I had this pain in the area of my left jugular and the same today with a 'pressure' type headache. Would a blood clot take s...
by ClaireParry
Thu Nov 25, 2010 1:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

I'm sure that someone here far more knowledgeable than me will correct this - but I though I'd read that the Iliac can only be accessed from the left side? That certainly didn't happen to me.When I asked if they would recheck the Azygous I was told no as it appeared normal 1st time. Both times I was...
by ClaireParry
Thu Nov 25, 2010 9:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gains, losses and Gains???
Replies: 1
Views: 1006

Hi, I hope someone has an answer here for you!

I also wonder the same thing - for some people do improvements take longer? Perhaps in some people iron deposits are more ' stubborn ' and so improvements are not immediate?

May be this is me just wishing!
by ClaireParry
Thu Nov 25, 2010 9:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

I also will not return to Poland. Been twice with no real improvements. I don't doubt that what they are doing they are doing well but they fail when it comes to being thorough. I'm not convinced that I don't have blockages elsewhere than my jugs. I would have had stents had they thought they were n...
by ClaireParry
Sun Nov 14, 2010 12:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Follow Up Doppler
Replies: 12
Views: 2193

Hi, For me the improvement is very little if any. I'm not completely despondent however, I believe my jugs are open as my spasticity seems to be a little improved, may be for me the improvements are longer coming....... I do feel as someone mentioned in an earlier thread, under treated. Despite aski...
by ClaireParry
Tue Nov 09, 2010 9:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Reality check for me
Replies: 10
Views: 2307

Vivavie - thats how I feel. Treated in Poland and I am convinced I have been under treated. I'm not confident that all veins were checked, and thats why I'm not ready to throw in the towel totally yet. I'll sit back though and see what happens in other locations......
by ClaireParry
Tue Nov 09, 2010 9:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Reality check for me
Replies: 10
Views: 2307

Hi pklittle, I'm with you here. I've had it done twice now with some benefit but nothing miraculous, time will tell. While I still believe that CCSVI has its place in the MS puzzle, its just a part and its time to watch and see what happens with the research, while still pushing for research in our ...
by ClaireParry
Tue Nov 09, 2010 7:15 am
Forum: Stem Cells
Topic: HSCT - A proposed cure for MS
Replies: 29
Views: 10581

How expensive is this, George?
by ClaireParry
Mon Nov 08, 2010 4:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation and low sodium/pottasium
Replies: 1
Views: 1261

Liberation and low sodium/pottasium

Hi, after having further ballooning on Friday I had benefits Sat/Sun morning. Definitely 'looser' which made my walking better. I was very excited. Today its all gone and I've been wondering...... The bloods I had taken here show to be very low (although not dangerously) in sodium and potassium. Bor...
by ClaireParry
Sun Nov 07, 2010 8:45 am
Forum: Natural Approach
Topic: Nattokinase
Replies: 4
Views: 3532

Re: Nattokinase

We suggest that nattokinase may increase risk of intracerebral hemorrhage in patients who have bleeding-prone cerebral microangiopathy and are receiving other antithrombotic agent at the same time. NHE Does this suggest that it is safe to take if you are NOT on any other anticoagulant or not suffer...
by ClaireParry
Sun Nov 07, 2010 12:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Slow Learner
Replies: 7
Views: 1405

If I have a glass - or may be 2! - of wine my walking gets better???

I think the alcohol relaxes me and I'm not so anxious re falling over!!

However, haven't tried it out while on anti-coagulants!

Claire
by ClaireParry
Thu Nov 04, 2010 2:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: diagnosed - MRV images added, page 5&6!
Replies: 93
Views: 12160

Thats great news Cece.
by ClaireParry
Thu Nov 04, 2010 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: relapse 5 mos post liberation
Replies: 14
Views: 3204

Sorry to hear that Nasti - sending positive thoughts!!
by ClaireParry
Thu Nov 04, 2010 1:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Follow Up Doppler
Replies: 12
Views: 2193

Thanks Blossom, Esta. I hope something comes of this so much. Billmeik, didn't think to look at the numbers :roll: To focused on whether I needed an op or not. Mark - will def ask if they will check all necessary veins. I really want this done properly. Kevin - can't believe we're here at the same t...
by ClaireParry
Thu Nov 04, 2010 6:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Follow Up Doppler
Replies: 12
Views: 2193

Follow Up Doppler

I've just seen Dr Ludyga for a follow up Doppler. I'm slightly disappointed to say the least. My MS is worse than it ever has been and I really was pinning my hopes on that both my veins have collapsed again. However, it would seem that the right vein has an 'ok' flow but he sees something on the ri...