Search found 110 matches

by sunlounger
Fri Nov 23, 2012 3:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: stents causing neck/shoulder pain
Replies: 5
Views: 4844

Re: stents causing neck/shoulder pain

Thank you for the replies, I'm currently trying to get my doctor to refer me to my local vascular consultant and will report back soon.
by sunlounger
Tue Nov 20, 2012 4:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: stents causing neck/shoulder pain
Replies: 5
Views: 4844

stents causing neck/shoulder pain

Hi all, This is the first time I have posted for a few years since having my two procedures at euromedic in Poland. I first went to Poland on the 13th Jan 2010 where I had balloon angioplasty on my left jugular,unfortunately after having no improvements from this I returned in March for a doppler wi...
by sunlounger
Sun Jan 16, 2011 8:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Euromedic Poland and the Azygous vein - please help!
Replies: 17
Views: 4395

Was it a severe narrowing that you had in your azygous? Is there any way they could have missed it if they'd been looking for it properly? I don't fancy paying another 480zl for an MRI! Do you know, should it have shown up on the MRV that they did? I would like to go the EHC too but feel I have pai...
by sunlounger
Tue Jan 11, 2011 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Euromedic Poland and the Azygous vein - please help!
Replies: 17
Views: 4395

Ive had 2 treatments in Poland Jan/May and both times they said my azygous is fine even though I have progressive M.S, I managed to get Dr Haacke's full MR protocol done here in the U.K before I went to Poland and this July I sent the images to Dr Haacke and he kindly did a report for me showing var...
by sunlounger
Mon Dec 27, 2010 9:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 4297

good luck tomorrow :D
by sunlounger
Mon Dec 27, 2010 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: EJC Liberated in Edinburgh 27/12/2010
Replies: 56
Views: 12007

great news thanks for the update
by sunlounger
Wed Nov 24, 2010 11:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

Hi CCSVI husband,

I think we have got are wires crossed somewhere,

Although I have been to Poland twice I would not go back,

Just thought you might like to see his report :)

I know it should be 85-90% and not 5%,
by sunlounger
Wed Nov 24, 2010 9:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

CCSVIhusband wrote: I'd trust it's WAY higher than 5% ... and more likely in the 80s - 90s.
here it is Dr Simka's presentation :wink:

http://tinyurl.com/2w8t9pq
by sunlounger
Tue Nov 23, 2010 12:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

Hi Interrupted, I was checked first by Dr Hartel's MRV and during the venogram in Jan, Because I have SP and spinal lesions when I returned in May I asked them to kindly check my azygous again, But was told it was fine from when first looked in Jan and they would not be checking again, At the CCSVI ...
by sunlounger
Mon Nov 22, 2010 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 5691

Hi, My azygous vein was missed by Euromedic in Jan and again in May, I managed to get a Mark Haacke's MR protocol done here in the U.K, And sent the images to Haacke and he did a report showing my azygous is narrowed and the problem in my left jugular is really high up and not where Euromedic have p...
by sunlounger
Sat Sep 04, 2010 3:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 15650

Hi anna,

it's great to hear your doing so well,
really impressive your able to run again :D
hoping your continue to improve,

thanks for the update,

best wishes,

sunlounger
by sunlounger
Tue Jul 13, 2010 12:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10262

Hi Brynn, sorry to hear your having such a rough time of it :( have you had a doppler to check jugulars since your last visit to Poland ? my friend had one jugular completely block after just baloon angioplasty and hear its more common with stents they felt a slight constant pain on the side it happ...
by sunlounger
Fri Jul 02, 2010 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second Trips to Poland
Replies: 13
Views: 2093

glad to hear you got a chance to go back :D i just discovered from a report by Dr. Simka out of 250 ppl only 7 had anything done with their azygos vein. I wonder why. Dr. Zamboni said that ppl with ppms usually the azygos is affected. Liva wow this is such a small amount of people !! is it possible ...
by sunlounger
Sun Jun 27, 2010 3:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 5509

Hi becia :D

I am the same no improvements :(
Sadly it seems this is the case for many,

http://www.thisisms.com/ftopict-12342.html

Hope things change for the better soon :D
by sunlounger
Sun Jun 27, 2010 3:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second Trips to Poland
Replies: 13
Views: 2093

They seem to be treating a lot more thoroughly in Bulgaria :? It's crazy they did not check your 2 azygous veins 8O I hope euromedic would understand your concerns and let you return sooner ? I'm writing them an email about my azygous not being checked and if they can tell me why they thought a veno...