Search found 110 matches
- Fri Nov 23, 2012 3:12 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: stents causing neck/shoulder pain
- Replies: 5
- Views: 5665
Re: stents causing neck/shoulder pain
Thank you for the replies, I'm currently trying to get my doctor to refer me to my local vascular consultant and will report back soon.
- Tue Nov 20, 2012 4:25 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: stents causing neck/shoulder pain
- Replies: 5
- Views: 5665
stents causing neck/shoulder pain
Hi all, This is the first time I have posted for a few years since having my two procedures at euromedic in Poland. I first went to Poland on the 13th Jan 2010 where I had balloon angioplasty on my left jugular,unfortunately after having no improvements from this I returned in March for a doppler wi...
- Sun Jan 16, 2011 8:37 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Euromedic Poland and the Azygous vein - please help!
- Replies: 17
- Views: 6645
Was it a severe narrowing that you had in your azygous? Is there any way they could have missed it if they'd been looking for it properly? I don't fancy paying another 480zl for an MRI! Do you know, should it have shown up on the MRV that they did? I would like to go the EHC too but feel I have pai...
- Tue Jan 11, 2011 4:04 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Euromedic Poland and the Azygous vein - please help!
- Replies: 17
- Views: 6645
Ive had 2 treatments in Poland Jan/May and both times they said my azygous is fine even though I have progressive M.S, I managed to get Dr Haacke's full MR protocol done here in the U.K before I went to Poland and this July I sent the images to Dr Haacke and he kindly did a report for me showing var...
- Mon Dec 27, 2010 9:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ccsvi tomorrow
- Replies: 25
- Views: 5985
- Mon Dec 27, 2010 9:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: EJC Liberated in Edinburgh 27/12/2010
- Replies: 56
- Views: 15901
- Wed Nov 24, 2010 11:32 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Are some of us being under-treated?
- Replies: 36
- Views: 8177
- Wed Nov 24, 2010 9:44 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Are some of us being under-treated?
- Replies: 36
- Views: 8177
here it is Dr Simka's presentationCCSVIhusband wrote: I'd trust it's WAY higher than 5% ... and more likely in the 80s - 90s.
http://tinyurl.com/2w8t9pq
- Tue Nov 23, 2010 12:15 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Are some of us being under-treated?
- Replies: 36
- Views: 8177
Hi Interrupted, I was checked first by Dr Hartel's MRV and during the venogram in Jan, Because I have SP and spinal lesions when I returned in May I asked them to kindly check my azygous again, But was told it was fine from when first looked in Jan and they would not be checking again, At the CCSVI ...
- Mon Nov 22, 2010 1:23 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Are some of us being under-treated?
- Replies: 36
- Views: 8177
Hi, My azygous vein was missed by Euromedic in Jan and again in May, I managed to get a Mark Haacke's MR protocol done here in the U.K, And sent the images to Haacke and he did a report showing my azygous is narrowed and the problem in my left jugular is really high up and not where Euromedic have p...
- Sat Sep 04, 2010 3:07 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: annbbe - second day after procedure
- Replies: 66
- Views: 20232
- Tue Jul 13, 2010 12:23 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My second trip to Poland
- Replies: 48
- Views: 13945
Hi Brynn, sorry to hear your having such a rough time of it :( have you had a doppler to check jugulars since your last visit to Poland ? my friend had one jugular completely block after just baloon angioplasty and hear its more common with stents they felt a slight constant pain on the side it happ...
- Fri Jul 02, 2010 1:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Second Trips to Poland
- Replies: 13
- Views: 3355
glad to hear you got a chance to go back :D i just discovered from a report by Dr. Simka out of 250 ppl only 7 had anything done with their azygos vein. I wonder why. Dr. Zamboni said that ppl with ppms usually the azygos is affected. Liva wow this is such a small amount of people !! is it possible ...
- Sun Jun 27, 2010 3:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NO improvements after procedure
- Replies: 24
- Views: 7713
Hi becia
I am the same no improvements
Sadly it seems this is the case for many,
http://www.thisisms.com/ftopict-12342.html
Hope things change for the better soon
I am the same no improvements
Sadly it seems this is the case for many,
http://www.thisisms.com/ftopict-12342.html
Hope things change for the better soon
- Sun Jun 27, 2010 3:39 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Second Trips to Poland
- Replies: 13
- Views: 3355
They seem to be treating a lot more thoroughly in Bulgaria :? It's crazy they did not check your 2 azygous veins 8O I hope euromedic would understand your concerns and let you return sooner ? I'm writing them an email about my azygous not being checked and if they can tell me why they thought a veno...