This Is MS Multiple Sclerosis Knowledge & Support Community

I'm hearing more and more about stent problems. Why are the CCSVI treating doctors continuing to be so cavalier about the use of stents when there are clearly serious concerns about thrombosis and long term patency? This to me is going to hurt the CCSVI research cause and hurt a lot of desperate pat...

That sounds like a change, because I had asked about blood thinners and dr. Mandato (Siskin's partner) said that no, there is no reason for them post angioplasty. Good to hear about the change, as the reports of thrombosis post angio were worrying.

I have read at least two cases of people having numbness in the hand/arm post procedure here on TIMS. I wish you the best, I have had transverse myelitis and leg numbness is extremely annoying.

I only wonder if the side effects of the procedure are as benign as we have believed until now...

another good read on placebo, on how they are getting stronger and baffling researchers:

http://www.wired.com/medtech/drugs/maga ... ntPage=all

I'm sure you can find major names who are doing it openly even--the Vascular Group in Albany (Dr. Mehta), Dr. Siskin and his group, the Arizona group... even if you don't get other names...

Is it Multiple Sclerosis or CCSVI? Get tested! ThisIsMS forum: http://tinyurl.com/25ks43k When people go to that link it will take them here, plus the place where they land is the link to ENDOVASCULAR TODAY. Or to go directly to the link, http://tinyurl.com/24qs4vj LadyGazelle, tinyurl.com allows y...

They are calling people in the order that they contacted Dr. Mehta back in February when they first started recruiting for their study. Because the IRB approval is taking so long, they are treating people outside of a study through insurance. I got the call as well a few days ago.

Ok, so I have a new lesion from my last MRI, on the corpus callosum. Apparently can be "Dawson's fingers" in that area. I thought I remember some mention of a connection between Schelling's theories about vascular involvement and Dawson's fingers. Has anyone read anything about this or bee...

these lists are extremely subjective. Undertreatment = not using stents if pt doesn't respond to repeated ballooning? There's a strong argument to say that ANY stenting at this point in time is overtreatment. Period. Migration risks aside, the long term patency data on stents in the next is simply n...

great news you have there, Flash, and your wife is smart from keeping you away from this crazy place :wink: Never mind the nutters who jumped on you about publicly posting DR SISKIN's name (cos, like, he "came out" on his own flippin' website). Anyway. Desperate situations breed overzealou...

Dr. S, could you elaborate or perhaps list some of the non-MS related possible complications of untreated venous blockages? And are these complications things that are documented in the literature (and therefore accepted by all IRs) or rather more complications that you personally have seen from you...

So happy for the both of you. I'm curious, if you don't mind sharing, whist your wife's MS history is like. You did mention that she was was in pretty good shape. I am in that boat in that I'm relatively well (can't run or walk miles or anything though, but still...). So for now I'm waiting as I'm a...

It's possible that the pts will all be more heavily sedated to preserve the blinding. Furthermore it's also highly probable that no one will receive anticoagulants, because stents are not being used. Drs Siskin and Mandato do not use them, and when I emailed Dr. Mandato about it, he emphasized that ...

Margarine vs butter: Choose soft margarine: The American Heart Association recommends the use of margarine as a substitute for butter. We are excited that many brands of soft margarine do not contain trans fat anymore. Check the Nutrition Facts label and choose one with zero trans fat and no more t...

there are other points that i take exception to, but all in all, i do not think that they were intentionally biased as much as they were biased by the current publications which, other than zamboni, are lacking. It makes me quite unhappy that khan's opinion paper was accepted because of the weight ...