Search found 9 matches

by pamf
Fri Jan 01, 2010 12:58 pm
Forum: General Discussion
Topic: Raynaud's Phenomenon & MS
Replies: 51
Views: 23872

Just following up on this, something I've concluded is that my Raynaud's seems to occur specifically when my core temperature has cooled. I can go out kayaking (as I did today, for example) and my hands will just about freeze off me, but the rest of me is warm, so I don't get Raynaud's. If, however,...
by pamf
Mon Dec 21, 2009 3:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Yoga - inverted poses and CCSVI
Replies: 5
Views: 2259

Thanks all, so far. I'll stay tuned.

Zinamaria - indeed, yoga has become a way of life for me on a number of levels. I have come to appreciate the benefits of the less vigorous forms as well, particularly in relation to taming the mind.

I'll look forward to seeing your findings. Thank you!

Pam
by pamf
Mon Dec 21, 2009 2:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Yoga - inverted poses and CCSVI
Replies: 5
Views: 2259

Yoga - inverted poses and CCSVI

I've been wondering if anyone has any thoughts/insights on whether or not inverted yoga poses are a good thing for people with CCSVI/MS. I can't do headstand due to neck problems, but shoulderstand is done quite often at the yoga class I attend. We hold the pose for about 5 mins or so. I've started ...
by pamf
Fri Dec 18, 2009 2:52 pm
Forum: General Discussion
Topic: Raynaud's Phenomenon & MS
Replies: 51
Views: 23872

For the record, I have Raynaud's too. It started up about 3 years ago. I was diagnosed with MS this year. I've suspected it's related. I also have chronic idiopathic urticaria, which started 8 years ago and is also temperature related.
by pamf
Wed Nov 25, 2009 8:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medical Myths website Re: CCSVI - Comments please
Replies: 27
Views: 6581

Looking at the site, I don't pick up any sense of compassion or altruism at all, which I would look for in a doctor who actually cares about people and doesn't have some sort of personal agenda. Posting photos of obese people and citing them as "examples" of everything that's wrong is pret...
by pamf
Mon Nov 23, 2009 2:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Visible effects of CCSVI, simple at home test
Replies: 34
Views: 16136

This is interesting, because I have this problem. I used to go to a gym at lunchtime. I'd return to my office with a tomato face and pray that no-one came by until it had calmed down (my boss invariably did). I have frequently felt very embarrassed about how red my face goes when I exercise (which I...
by pamf
Tue Nov 17, 2009 2:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many veins are affected by CCSVI?
Replies: 14
Views: 4311

The question raised in this thread is one that I have pondered. In addition to MS, I have chronic idiopathic urticaria as well as Raynaud's Syndrome. Both of these conditions relate to temperature change, principally cooling. I have therefore wondered if they somehow relate to circulation, ie if the...
by pamf
Fri Nov 13, 2009 12:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr F A Schelling's proposal re ligature of jugular vein
Replies: 15
Views: 6106

Thank you

Just wanted to say thank you to those who have posted replies to my question, and esp to Zap for contacting Dr Schelling. I think I grasp the basics of what is being suggested, ie there are potentially 2 issues: reflux, and back-jets, from 2 different areas, to put it very simply. I will continue to...
by pamf
Wed Nov 11, 2009 1:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr F A Schelling's proposal re ligature of jugular vein
Replies: 15
Views: 6106

Dr F A Schelling's proposal re ligature of jugular vein

Hello all - I am new to posting, although I have been reading up on the subject of CCSVI in recent weeks, including on this forum. I came across this website (click here) relating to Dr Schelling's findings regarding CCSVI. You will see on this page (click here) he makes the following statement: To ...

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