This Is MS Multiple Sclerosis Knowledge & Support Community

Hello All, I moved to Oregon about a year ago. I've had MS for over 12 years & experience lots of symptoms, extreme nerve pain & muscle spasms, cognitive problems moderate & higher, perceptual problems, dizziness, foot drag, difficulty walking, coordination problems (run into walls, drop...

If you suspect MS you should be sent for an evaluation by a neurologist. They need to do an MRI and possibly a lumbar puncture. But dizziness is a hard symptom to pinpoint. You should also see an ENT (ear nose & throat) specialist so they can rule out an inner ear disturbance. Especially when di...

I find it absurd to speculate that horseback riding is what sent Anne Romney into remission. I know a woman with MS who swears she is healed by prayer; another with Grave's disease that also said it's prayer that sent her illness into remission. So the rest of us who pray aren't doing something righ...

Thanks euphoniaa for the links & correction. However in my case any disorder of the retina could lead me to another detachment. So it's definitely a concern for any MS patient who has had any disorder involving their retinas. In fact there are even certain yoga positions my eye doctor warned me ...

Google Ann Romney & multiple sclerosis - there's an interview with her & her husband, I believe on Fox news but I was paying more attention to what she said about her MS than the network that hosted the interview. She looked like a model, and like so many with MS who are in remission, made v...

Thank you very much - nothing is certain yet. is the U of Oregon in Portland? If so, I believe that's about a 2 hour drive one way from the coast. A bit impractical and we may have to rethink the move if clinics along the coast aren't able to offer complete medical services. But you know what they s...

Thanks for posting this Cece - if it was posted before, I missed it. There is little information about the deceased although the article certainly brings up the profit/loss potential: Anderson wrote. He rates Novartis’s shares “outperform” and estimates that by 2015 Gilenya sales will reach $1.4 bil...

Hi Alicia, I think my urologist is expecting the same thing as your docs did - the symptoms to go away on their own. But it's going on 3 months now and the pain is worse, not better. I'll see my neuro the 20th and see if he thinks it's an MS flare or rule it out as your neuro did. It's infuriating. ...

Thank you so much oreo! Your neuro's response is one I intend to bring to both my own neurologist & urologist and see what kind of response I get. You're right there are two issues, and the fact I'm having pain in my upper legs & abdomen makes my uro insist the MS is attacking the entire are...

Hi, I've had SP since 2002. It has definitely progressed though the main symptoms have varied over the years. I seem to be SP with relapses but I never recover my base line. In 2002 I wasn't walking with a cane. That started about 2005 and since then I can get by with a cane but now I do better with...

I'm SP since 2002 and posted recently that I thought I'd also developed interstitial cystitis. The urologist has since changed his mind and is now saying it's an MS related flare. He "kind of" makes sense because as he points out my symptoms aren't exactly like interstitial cystitis, howev...

Hi everyone, I may be relocating to coastal Oregon. I know there are few neurologists on the coast and realize I may have to find a neurologist in either Portland, Eugene, Salem, Corvalis or ?? I was wondering if anyone here lives in Oregon and has a neurologist they like if you could PM me with tha...

Thanks, Muskan & Selmahope. I'm taking all that into consideration. My urologist did prescribe pyridium (sp?) (you can get it OTC or by script which is cheaper usually if you have drug coverage). That's the anti-spasmodic. He's hoping that's going to take care of it. Selmahope, the anti-depressa...

It's unrelated Lyndacarol. All tests have been done to rule out bladder cancer and there is no insulin problem in my case. Thanks for your thoughts. But I am looking for anyone with MS and interstitial cystitis which has nothing to do with Actos. Could be no one in this forum is experiencing both di...

Not good news - finally talked to my urologist and he does think it's interstitial cystitis which he said can go hand in hand with MS. If anyone else has IC and MS, I'd really like to hear how you're coping with the unbearable pain. I do know stress triggers it & that sometimes PT can help relie...