Search found 23 matches

by jewelia
Thu Jan 06, 2011 2:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 64215

Hi Bruce, Thanks for encouraging words. Immediately thoughts of re-stenosis come to mind but I have to remind myself that it is still early days and things can still improve. But even if they don't, that's OK because I went into this knowing that 1/3 patients experience no change in symptoms. I am j...
by jewelia
Wed Jan 05, 2011 8:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 64215

Hi all, I accidently started a new topic on the forum instead of posting here to report on my procedure on Monday with Dr. Englander. Everything went well - it took a little over an hour and she found one blockage in the left jugular just below the clavicle. It had to be ballooned twice as the first...
by jewelia
Wed Jan 05, 2011 7:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Had my procedure!
Replies: 2
Views: 1831

Had my procedure!

Hi all, I just thought I'd let you know I had a successful procedure done on Monday, Jan.3 by Dr. Englander. I had a blockage in the left jugular vein just below the clavicle (about 60-70% stenosed). It had to be ballooned twice - the 1st time it did not hold as the balloon wasn't centered properly,...
by jewelia
Thu Dec 02, 2010 7:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 64215

Thank you all for giving your dates...it has helped me tremendously in dealing with the waiting. I received my call this morning offerering me a date - Jan.3/11 which I accepted. What a way to start off the New Year! I will be treated by Dr. Englander. I am full of gratitude and appreciation to you ...
by jewelia
Wed Dec 01, 2010 1:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 64215

Yes, this is getting exciting! You can add me to the list...

Jewelia;CAN;June 7;TBA

I'm from Toronto, Ontario. :)
by jewelia
Tue Sep 28, 2010 1:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204057

Today I was called and offered a date for treatment in Albany, NY: Oct. 27th. There was a cancellation... original call: May 24th... since I am from Canada, treatment will be in clinic... was quoted $3000 for venography, $2000 for angioplasty, $2000 per stent (if required) - but was told that start...
by jewelia
Mon Feb 15, 2010 12:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Publicity - The Doctors TV Show - VOTE!!!
Replies: 40
Views: 9801

Me too! Terrific idea. Let's keep it going...
by jewelia
Mon Feb 08, 2010 2:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dear TIMS
Replies: 50
Views: 11502

Sending you and your family love & light blessings and wishes for a speedy recovery for your father. You have been a beacon of light for many on this forum and I am truly grateful.
by jewelia
Sun Jan 17, 2010 6:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sharing Common Symptoms....
Replies: 45
Views: 14885

Hi all, I also have low blood pressure and suffer from cold hands and feet. I used to think it was poor circulation...hmmm maybe it is after all! Sometimes I have difficulty getting and staying warm which is why we are heading down south for a holiday to D.R. to get some sunshine and Vitamin D and r...
by jewelia
Sat Jan 09, 2010 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 244319

Hello everyone, My husband finally put some wooden blocks under the head of our bed (6") and we have been sleeping inclined since December 13/09. The first night I didn't sleep very well - in the morning I woke up feeling muscle stiffness in my neck and back, however this just lasted for one da...
by jewelia
Thu Jan 07, 2010 6:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6th Jan 2010 (Katowice) - POST-OP
Replies: 101
Views: 22231

Adam, I send my love & healing blessings to you. Please take it easy and try to relax... our thoughts are with you on your healing journey.
(P.S. my son's name is Adam too!)
by jewelia
Tue Jan 05, 2010 5:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Front Lines
Replies: 50
Views: 13751

Dear Shiraz, That is great news! Thank you - I am so grateful that you have shared your experience in Barrie. Would you mind my asking where you received the doppler ultrasound? Perhaps my GP can write a requistion (in Toronto) to have it done at the clinic that you went to. I am seeing my neurologi...
by jewelia
Tue Dec 15, 2009 9:40 pm
Forum: Natural Approach
Topic: of iron and MS
Replies: 190
Views: 74856

Hi, There is some good information about iron chelation in the brain using antioxidants (Green tea extract EGCG). As study is currently being done on MS patients examining the benefits of taking EGCG. It is something that we can do on our own and is relatively inexpensive. I'm going to try it in add...
by jewelia
Mon Dec 14, 2009 7:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV & Doppler Ultrasound in Canada?
Replies: 63
Views: 17713

Dear Simon, The same woman who has arranged the testing at False Creek Surgical Centre in Vancouver is also setting this up in Gatineau. You can call her toll free - her name is Yaseem Sayeed. She can expain it to you more and answer any questions you may have. Tel: 1-877-871-4315( Toll Free) , 604-...
by jewelia
Mon Dec 14, 2009 6:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV & Doppler Ultrasound in Canada?
Replies: 63
Views: 17713

Much appreciated Fiddler!

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