Search found 83 matches

by ariehs
Fri Nov 25, 2016 4:28 am
Forum: Diet
Topic: HELP me with MS water fasting
Replies: 8
Views: 6331

Re: HELP me with MS water fasting

Yes, 21 days is quite extreme and not something that it is safe to just jump into. People who use long-term water fasting generally train their way up to that. "Cure" is also an inappropriate word. It might help, even help a lot, but it's no silver bullet. It's very individual. I do intermittent fas...
by ariehs
Tue Nov 12, 2013 10:26 am
Forum: Gilenya
Topic: FDA continues to investigate possible Gilenya link to PML
Replies: 2
Views: 2484

Re: FDA continues to investigate possible Gilenya link to PM

Do you know if the patient had ever been on tysabri? I (along with many others) was on tysabri for quite some time before switching to Gilenya.
by ariehs
Tue Nov 12, 2013 10:23 am
Forum: Gilenya
Topic: Upset stomach
Replies: 1
Views: 2295

Re: Upset stomach

Hi Katzeg. I don't have a lot to add, other than I know a few (3) people on Gilenya IRL, and I've been on it since January. None of us have noticed any stomach issues that can be traced to Gilenya. Sorry I can't offer more. Just a few anecdotal points. I certainly don't remember reading anything abo...
by ariehs
Mon Mar 11, 2013 1:23 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 159 cases of PML with 29 deaths for Tysabri MS patients
Replies: 29
Views: 9823

Re: 159 cases of PML with 29 deaths for Tysabri MS patients

Meanwhile, I know someone whose been on it for 17 months, but she's had NO help from it. If I were her, I'd have dropped it ages ago. Being on Tysabri for that length of time would have cost approx $ 65000-$ 70000 and that's a conservative estimate. And you say she is getting no benefit from using ...
by ariehs
Mon Mar 11, 2013 1:15 pm
Forum: Natural Approach
Topic: Vitamin D3 for neuros, but none for patients
Replies: 1
Views: 1391

Re: Vitamin D3 for neuros, but none for patients

One doesn't need a prescription for vitamin d. They aren't depriving anyone by not writing prescriptions, and there are neuros out there who actively promote it. It seems odd if the same neuros are saying the would take it, but wouldn't recommend it to patients - I'm guessing that there are just dif...
by ariehs
Tue Feb 05, 2013 2:15 pm
Forum: Parents with MS
Topic: Trying to decide...
Replies: 7
Views: 5703

Re: Trying to decide...

I'm a 30 y/o father with MS. I can only say that you AND your partner need to be aware going in what your limitations are, and that they might increase. There are times when I would LOVE to help my wife, and I simply can't. She takes on an extra burden. Both of our lives are better, for having our s...
by ariehs
Tue Feb 05, 2013 2:11 pm
Forum: Parents with MS
Topic: idea for schools
Replies: 1
Views: 4110

Re: idea for schools

What part of the world are you in?
by ariehs
Tue Feb 05, 2013 1:54 pm
Forum: Gilenya
Topic: Gilenya and Erectile Disfunction
Replies: 2
Views: 3545

Re: Gilenya and Erectile Disfunction

I wasn't supposed to have a waiting period between tysabri & gilenya, but the hospital f***ed up and I went a week past when I would have normally had my next infusion. That was a BAD week for my, symptom-wise - fatigue, drop-foot, neurogenic bladder, parasethia, "hug", etc. Things started to improv...
by ariehs
Sat Feb 02, 2013 1:55 pm
Forum: Gilenya
Topic: A severe side effect response to gilenya
Replies: 13
Views: 10149

Re: A severe side effect response to gilenya

As to the "sudden death"s - When you have thousands or tens-of-thousands of people in a trial , it happens sometimes that things happen to them unrelated to the drug. Hi again, ariehs, I hate to keep pounding on this topic, but I think it's important to give our TiMS readers the most accurate info ...
by ariehs
Fri Jan 25, 2013 5:51 pm
Forum: Reading Nook
Topic: E-BOOKS ROCK!
Replies: 6
Views: 4913

Re: E-BOOKS ROCK!

I've been reading ebooks on various handhelds since 1999, and cell-phones since the first big-screen phones (pre-smartphones). Since I got a kindle, though, that's become my primary reading method.
by ariehs
Fri Jan 25, 2013 5:26 pm
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 17989

Re: Got it done - Dr. Slavin's Protocol

Hello! I was away from this website for a long time... I don't really know why. Life just got busy. I started relapsing again 14 months after the treatment with the CTCI, so while that was great (3-4 a year down to nothing for over a year!!!) I had to start looking at new options. In 2011 I had 2 re...
by ariehs
Fri Jan 25, 2013 5:08 pm
Forum: Gilenya
Topic: A severe side effect response to gilenya
Replies: 13
Views: 10149

Re: A severe side effect response to gilenya

Besides the sudden death side effect 8O , my medical history hits a couple of the other warnings/precautions (macular edema, HIGH blood pressure), so Gilenya doesn't sound like it's for me. Although my neuro would love for me to take something. Anything. She doesn't care what I choose. Before I beg...
by ariehs
Fri Jan 25, 2013 4:55 pm
Forum: Gilenya
Topic: Gilenya and Erectile Disfunction
Replies: 2
Views: 3545

Gilenya and Erectile Disfunction

Since being diagnosed I've had a varying mild-to-moderate case of ED and anorgasmia. I tried cialis and viagra to treat, and while they certainly worked, I always found it difficult to get the timing right - which just added more stress to a stressful symptom. Since starting Gilenya, I've felt like ...
by ariehs
Fri Jan 25, 2013 4:45 pm
Forum: Gilenya
Topic: Gilenya and LDN
Replies: 4
Views: 8124

Re: Gilenya and LDN

I've been taking LDN since mid-2009. I started taking Gilenya 10 days ago. My neurologis was aware of the LDN, and said it wasn't a problem. The study that's following me on Gilenya is aware of the LDN and says it's not a problem. I haven't worried about it, and so far everything is going swimmingly...