Search found 202 matches

by dlb
Sun Aug 23, 2015 7:01 pm
Forum: General Discussion
Topic: lyme disease or MS
Replies: 10
Views: 6832

Re: lyme disease or MS

hi Linda,
I sent you a PM, but I have sine looked at the date of your post.... I am sure my reply is way past you finding help!!
by dlb
Mon Jul 16, 2012 11:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kirsty Duncan encounters stone wall of majority politics
Replies: 3
Views: 1100

Re: Kirsty Duncan encounters stone wall of majority politics

I sent an email to Kirsty Duncan, MP last week to ask for her opinion about the TAMSI study that is being conducted here in Alberta. I wanted to know what her opinion about that study is. My own gut feeling is that if it is being conducted by people who are trying to stonewall CCSVI treatment, then ...
by dlb
Mon Jul 16, 2012 11:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

Re: DrSclafani answers some questions

Dr. Sclafani,
Regarding your last case study and other patients whose veins don't remain patent..... Is something like Ehlers Danlos at play, where collagen is not typical? Is that a possibility for veins not holding up after venoplasty? Just thoughts I have.... We are all so different!
by dlb
Wed Apr 04, 2012 6:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

Re: DrSclafani answers some questions

Dr. Sclafani As an engineer I like to make decisions based on facts, figures and statistics. Unfortunately when it comes to CCSVI treatment there seems to be a relative lack of such information. For quantitative data the best I can find are the charts at http://www.ccsvi-tracking.com/ . The issue o...
by dlb
Sun Mar 25, 2012 7:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

Re: DrSclafani answers some questions

Wishing you the best for a speedy recovery, Dr. S.... SaintLouis is absolutely right! Taking vitamin C, even orange or pineapple juice with the iron will aide in the absorption. That was my advice when my iron stores were very low after donating bone marrow to a family member years ago. I can add th...
by dlb
Fri Jan 13, 2012 8:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4150

Re: How are you doing since treatment??

Currently having first major relapse in two years. Oh Pam, Sorry to hear you are having a relapse. Hope it is short-lived! For myself, I feel like some of my balance, bladder, vision improvements have maybe shifted slightly for the worse in the last couple of months..... I know that I haven't been ...
by dlb
Sat Sep 24, 2011 10:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SASKATCHEWAN ENTERING PARTNERSHIP TO ADVANCE MS RESEARCH
Replies: 10
Views: 1707

Re: SASKATCHEWAN ENTERING PARTNERSHIP TO ADVANCE MS RESEARCH

Cece, I am guessing that Dr. Siskin's booking to the end of 2012 likely includes this set of 80-90.... because from what I'm reading, this has been in the making for a bit of time now. I also read that there will be about a 2 year time commitment expected of the patients that participate. I think th...
by dlb
Fri Sep 23, 2011 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SASKATCHEWAN ENTERING PARTNERSHIP TO ADVANCE MS RESEARCH
Replies: 10
Views: 1707

Re: SASKATCHEWAN ENTERING PARTNERSHIP TO ADVANCE MS RESEARCH

80-90 PwMS get to participate. That will be some lottery for the MSer's in SK. It is a wonderful start for Canadians with MS and typical of Saskatchewan to be leading the way. Healthcare has always been front & center in SK. I am impressed at the wisdom in making a study from a group of patients to ...
by dlb
Thu Sep 22, 2011 7:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHY WE NEED VALVES
Replies: 58
Views: 6656

Re: WHY WE NEED VALVES

I am not sure whether those of who have valve problems can ever have working valves. Mine were ballooned, not disrupted or torn. Based on my improvements in health, I am better off without the valves as obstructions, although maybe not as well off as I'd be if I had normal, functional valves. But n...
by dlb
Sat Sep 17, 2011 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DR TREVOR TUCKER PHD
Replies: 28
Views: 3817

Re: DR TREVOR TUCKER PHD

The fluid dynamics in my body since CCSVI procedure are a mystery to me! Much less swelling in my ankles/feet, perspiration - so i'm able to tolerate heat, obviously better blood circulation - warmth in my extremities. Lovin' it all!
by dlb
Tue Aug 30, 2011 7:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Legs on fire
Replies: 12
Views: 1623

Wish there was some relief for you gals :(

Deb
by dlb
Mon Aug 08, 2011 4:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

Re: images from my procedure...

Can anyone help me? I have tried to look at the images from the 2 cds that I got from AAC but I can't - neither on my Mac or hubby's PC. Have been on the go since my return from Brooklyn, but I tried a second time today and no luck - not that I'll likely make any sense of anything there anyways, bu...
by dlb
Mon Aug 08, 2011 12:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

images from my procedure...

Can anyone help me? I have tried to look at the images from the 2 cds that I got from AAC but I can't - neither on my Mac or hubby's PC. Have been on the go since my return from Brooklyn, but I tried a second time today and no luck - not that I'll likely make any sense of anything there anyways, but...
by dlb
Fri Aug 05, 2011 12:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1615983

Hi, Dr. Sclafani performed my CCSVI intervention back in December 2010. I currently have SPMS, for approximately 2 years. RRMS since 1989. I have never taken any of the DMDs. I'm doing very well since the procedure. My EDSS score went from 3.5 to 1.5. (Tested ~2 months post procedure). Now I'm doin...
by dlb
Thu Aug 04, 2011 5:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sweating in MS
Replies: 19
Views: 4295

I used to sweat like a mannequin, now I sweat like a person. ;) Ditto! I thought when I was in NYC in July that it was the humidity & heat combo that was possibly the reason for me breaking into a sweat for the first time in my life. I just spent a week in Arizona and was sweating just as much here...