Search found 14 matches

by tlynn
Fri Aug 17, 2012 12:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: barometric pressure may be doing a lot more than we thought
Replies: 10
Views: 5235

Re: barometric pressure may be doing a lot more than we thou

Finally! I get worse the same time every year. It becomes noticeable in Aug. and goes on for about 5 months. It is not the heat as I live over on the coast. I brought up barometric pressure to my Dr. years ago and he had no comment.
by tlynn
Tue Apr 13, 2010 8:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Primary Progressive and accidents
Replies: 34
Views: 10047

I had all kinds of wrecks with horses when I was a kid and was rear ended in a car when I was about 30. I was diagnosed with myelitis however when I was 29. I am now 51 and have SPMS. I'm sure the car thing did'nt help.
by tlynn
Tue Apr 13, 2010 8:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta in Albany, NY - Thank you, Kacey!
Replies: 315
Views: 88977

I talked with Debbie Hill yesterday she has same job as Megan and she advised another two weeks.
by tlynn
Fri Apr 09, 2010 9:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 4-AP
Replies: 2
Views: 1686

4-AP

Is anybody taking 4-AP that has been liberated? If so, what were the circumstances? Did you stop it before liberation, after or continued with it. Any information would much be appreciated.
by tlynn
Thu Mar 25, 2010 9:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI-procedure done 3 weeks ago in New Delhi, India.
Replies: 11
Views: 4566

Hi Heather,

That is awesome!! What was your edss Score? What type of MS have you been dianosed with? When were you diagnosed? How old are you? I know these are alot of questions but the excitment gets the better of us.

Terri
by tlynn
Fri Mar 12, 2010 9:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Straining?
Replies: 0
Views: 1398

Straining?

Hi Folks, Just wanted to get people's idea's and comments about this. Do you think straining contributes to CCSVI? Before I was diagnosed I did alot of heavy work around the house and in the yard. Some women after the rigors of childbirth begin having MS symptoms. Some men seem to have MS worse than...
by tlynn
Tue Mar 09, 2010 7:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New update on husband/ waste of time
Replies: 28
Views: 9103

You would think that the neuros when you are first diagnosed would run a baseline doppler even if they do not plan on doing anything. Maybe this is something people should do on their own.
by tlynn
Fri Feb 05, 2010 11:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment in Long Term MS Patients
Replies: 14
Views: 4868

Hi Toby,

Go to the CCSVI tracking project topic it is the 7th one down and it will tell you about the people that have had the procedure and their symtoms before and after treatment.
by tlynn
Tue Feb 02, 2010 1:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: vasoconstrictors, vasodilators
Replies: 12
Views: 11036

Hi KC,

Is Ambien a vasodilator or constrictor? I can't find any info. on it.
by tlynn
Fri Jan 22, 2010 1:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brynn's Trip To Poland! I am Here!
Replies: 52
Views: 13467

Hi Brynn,

Awesome to hear your news. You must be giddy.
by tlynn
Wed Jan 20, 2010 1:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Altitude and blood flow
Replies: 78
Views: 28546

I believe atmospheric pressure has a lot to do with the way we feel. I got a book from the library "Weather For Dummies". There is a whole section on health. I wonder if one contributing factor to there being more MS cases futher north is because of the atmospheric pressure.
by tlynn
Sun Jan 17, 2010 11:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: vasoconstrictors, vasodilators
Replies: 12
Views: 11036

Talk about doing everything wrong!! Wheaaaa! My problems started when I started taking Imitrex (vasoconstrictor) for migraines that started about 5 years ago. So I have been taking Imitrex at least once a month for the last five years. coincindently I started having MS symtoms a few months after sta...
by tlynn
Thu Jan 07, 2010 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV Protocol
Replies: 0
Views: 1695

MRV Protocol

Can somebody give me a website where I can print the MRV protocols out. I have Dr. Hackke's SWI MRI protocol but don't know if they are the same as the MRV.
by tlynn
Tue Dec 29, 2009 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody going to chelate the iron or attempt to?
Replies: 59
Views: 13684

Anybody going to chelate the iron or attempt to?

Hi everyone,

I read on the internet that giving blood once a month helps with iron build up. This makes sense because all my problems started when I started perimenopause.

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