This Is MS Multiple Sclerosis Knowledge & Support Community

Flynn,

I just started talking Baclofen about 1 month ago and have had a similar experience. It seemed to work when I was taking a small dose but my walking has gotten worse with the higher dose.

I am considering not taking it any further. I am going to give it about another week.

MRI, MRV and doppler scan's. The biggest question is where to send it. I have gotten a couple of leads already but I am still looking at other options.

Guys, As I said earlier, I really appreciate all of this. I had all these tests done and I have been sitting on them. It seems a real waste unless I take some action with them. Lovebug...this might be a bit of a personal question and you can "personal message" me if this is more appropriat...

Nasti, PCakes, Oreo,

Thanks guys. I really appreciate the help!

I was hoping that someone could provide me with a little direction. I have had the MRI, MRV and Doppler scans completed and would now like to send them to someone to review. Seaton imaging in Buffalo NY did the MRI and MRV and Toronto Diagnostic Imaging did the Doppler scans for me. Can someone make...

LR1234, Can I ask you a quick question? I have been doing the protocol for a few months but I am now going to start adding the live extract. How do you do this? I have standard 1ml syringes. Do you just mix 1/2 B1 and 1/2 liver extract? The other question that I have is that I have been doing 1ml ev...

Eveable,

If you don't mind me asking did you get your MRI/MRV and dopplers done and send them to Albany or did you do all of this at the Albany clinic?

LR1234, I get the B1 from a Naturalpath that I work with in our town. The syringes and stuff I get from a local drug store. It is pretty easy to do. I was a little nervous at first because of the anaphylactic shock issue but once I was confident that I did not have a reaction, things were fine. I ha...

Shye,

Thanks for that. I spoke to my naturalpath. She seems to think that I injected into fat instead of the muscle. It has taken some time but the bump has gone down and the color is almost back to normal. I was a little concerned for a while. Thanks again for the info.

I was wondering if anyone has had a similar experience. I have been doing B1 injections for a little over a month and things have been going well. I have run into one issue. A couple of weeks ago I was doing an injection and had a site reaction. The injection site on my butt has gotten red/almost br...

savouryourlife,

Can I ask...where did you have your doppler done?

Mapame,

Do you mind if I ask whether or not you had an MRI/MRV completed at the same time? I went and had the MRI/MRV done in Buffalo at Seaton Imaging but they did not complete the doppler scan. I have been looking for someone to do the doppler scans for me. Thanks for posting this.

Shye/LR1234, Do either of you have any other information regarding the anaphylactic shock reaction? I have been doing B12 injections for a couple of months and have just received the B1. I was going to start the B1 injections also but I wanted to check this issue out first. I have not had any reatio...

Thanks again LR 1234. I did not have the doppler done.

I wanted to post a comment and would look for any feedback. I started taking Rebif shortly after my diagnosis in 2006. At first on 44 then at the 22 because of liver enzyme issues. I had an MRI recently and my Nero told me that there was some increase in lesions so I should entertain looking at the ...