This Is MS Multiple Sclerosis Knowledge & Support Community

Well it's WheelieBob's turn to have the procedure on the 12th. We arrived in Tychy this morning so we are adjusting to the time change. Will keep you posted.

81% at 1050

Thanks Gordon. Those are very encouraging words.

Just wanted to bump this topic back to the top again. Anybody scheduled for Poland around this time? We have just over two weeks until we leave so we are getting pretty excited. As we have been advised here, Kate has arranged everything and has made the preparation very stress free. WheelieBob conti...

Hi Val. Thats what we did. We sent an email to Kate and she replied within a couple of days for some preliminary info. Then a month later she contacted us with our dates for treatment. We go in Sept It was really easy.

Mrs. Wheelie

Hi Whitey. More very helpful information. We need to be tested for Lyme Disease? How do we do that (Canadians)?

I will check with my GP about the records. There is no way the neuro would provide them

We have already submitted the basic info to Kate.

Mrs. Wheelie

Hi solney. I was just offered these dates last night so I don't know how long it will take to get a reply. I emailed back accepting this date. I'm not sure if Kate will confirm or not. I know what you mean about not having the time to wait. Hubby is (my assessment) about 6.5 on the EDSS scale and ob...

Thank you so much for the info Whitey. It is very helpful. It's nice to know there are things to do and time to do it while you are there. Thanks for the info about the laptop, I will definitely bring it. Good luck on your procedure :D We are proceeding with cautious optimism. WheelieBob has been sp...

We just wanted to share that we got an email from Katherine tonight offering us some dates in September. We have picked September 12th for the procedure. We will probably go around the 4th or 5th, they want us there by the 7th; and we'll stay until the 16th or so, they want us to stay at least until...

Going for liberation procedure on September 12. We are very excited. We will probably go to Poland around the 4th and probably stay til the 16th. Please keep the stories coming about your Poland adventure with Dr. Kostecki. We are hanging on every word until it is our turn.

Mrs. Wheelie

CCSVI TRACKING [Please use date format MM/DD/YYYY] Mrs. Wheelie (caregiver), posting for WheelieBob MS HISTORY Name (if want to give other than TIMS login name): Bob Male/Female: (M/F) M Age: 51 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): RRMS 1994 SPMS 2006 Lesio...

We went to the neurologist in April and asked for a referral to the clinic in Montreal for the testing. Unequivocally NO. Repeated the question three times. "Will you refer us for testing" -- "NO". Ended up getting into a heated discussion about CCSVI and he walked out on us. Fas...

WheelieBob is going to Poland too!! Thanks to everyone on this thread for all the information leading to our decision to travel to Poland to be tested and (hopefully) treated by Dr. Kostecki for CCSVI. Now that the decision has been made I have questions. When the PwMS is being tested and treated, i...

"This study is not a placebo controlled trial."