This Is MS Multiple Sclerosis Knowledge & Support Community

Hi there to you both, how are things going for you? I still remain postive about my body having small improvements al beit slow and mylegs have got somewhat worse, but everything else seems to be better than before, sensory nerves are changing as pain has gone down, legs are more flexible but still ...

hi. I started to take LDN 14 days ago and started really low on 0.5mg for a week, then 1mg for a week and now 1.5mg for a day but my legs are getting increasingly stiff again which is what happened to me the last time i tried it at 2.5mg starting dose but got scared as my legs stiffened up straight ...

well done stefan. glad it all went well for you and realy hope that this time you get some great results coming through, now you need to hold onto "patience" and this is another lesson good luck for the future mate Jo xxxxx

6/5/2010 Jo Chant update Poland treatment after 6 weeks I am starting to see improvements, little things but adding up to a lot of difference in my life, as wished for. Sleeping better, turning over in bed easier Legs not as stiff No Spasm in legs Writing better, got my handwriting back again Peeled...

i just wanted to say that after my liberation on 18th March i was anxious to see results and actually believe that this anxiety was hindering my progress. I have now finally let go of "wanting to see results" and am believing that they will be there. I feel so much better for having done t...

MS HISTORY Name Jo Chant Male/Female: (M/F) F Age: 43 Lesion locations (most affected side, if known), Spinal SPMS C2,C3 MS treatments: None MS symptom before. Right leg dropped foot, weakness, Right hand weak, spasms in legs and stomach, bladder urgency and frequency, bowel urgency. Dizziness, bala...

Hi Badger REading your account of your Polish experience made me cry as I remembered our time there. WE left just as you had arrived and missed seeing you but we were there with Gwen and Rob (Fraser). It was such a magical experience to have gone through, like a spiritual bonding of souls, all going...

19 days after procedure and 2 days ago I had the best day yet :lol: Maybe because it was Easter day who knows but I was so good, along day with all the family and they all commented on how "well" I looked in the face, my appetite was markedly increased from normal and I was really enjoying...

i too thought about the repeat scan before you left Poland but I suppose this would take up more valuable time and it would indicate that they dont think it is going to work which they believe whole heartedly that it will work it is just us that worries that it wont :wink: i am exactly the same, on ...

I too had the alarming and spreading bruise down my leg and went back up to the clinic before flying home to get it checked out. The vein was closed but the bruise was spreading because of the blood thinners. 17 days after I still have a fair amount of bruising but it has sub sided considerably. I b...

What an inspiring post..thank you so much...as I am here at the beginning of my adventure 17 days after liberation and I feel like a car engine that is spurting into life, one minute I am light and everything is functioning almost normally and the next minute I am back to staggering around between t...

I am from Uk and had the procedure in Poland two weeks ago

[quote="adamt"]Hi Barry, Thats great the procedure was a duccess, im very happy for you! And to see these improvements just makes this treatment even better/ I am due to have mine in May. Only my lower body is affected by MS - Mobility - legs stregth/balance + stiffness (when first standin...

Hi Openmind, I had the same feeling of getting my symptoms back after coming home. It was a stressful experience to come home. A big familyevent the first day (not for me :( ). And two kids, who had the flu. So for almost a week my symptoms were back. But when the flu catched me after four days, it...

Oh bye the way I dont think the wire goes through your heart?? it goes through a vein in the chest.