Search found 68 matches

by judipom
Thu Feb 23, 2012 11:15 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: The cost of your Tysabri infusion?
Replies: 22
Views: 38566

Re: The cost of your Tysabri infusion?

my cost at duke univ. hospitals is 20,850.00 per infusion. the cost for facility is 662.00
when i mentioned this to my neuro at duke, he said that his understanding was that tysabri cost around 40k per year.

i am getting my 4th infusion right now and typing with one hand. another day, another 20k
by judipom
Fri Jul 16, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201145

One question, if you don't mind. In your entry in the tracking thread, it mentioned they found reflux in both jugulars using the Doppler ultrasound. But they only found a problem in the right IJV. Did the doctors mention anything on this? PatientX:No. Dr. Neville and I didn't talk about the bi-late...
by judipom
Fri Jul 16, 2010 10:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201145

Ok, sorry if came across like that also just posting my thoughts :wink: Wish you all the best Zeureka: Thanks, I really appreciate that. I busted my hiney this past fall trying to get a research hospital interested in CCSVI--and was able, with some excellent connections, to instigate things at Geor...
by judipom
Fri Jul 16, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201145

Zuereka: Just posting my results. Didn't need a lecture.

Judi
by judipom
Thu Jul 15, 2010 6:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201145

Hello--I had the procedure done at Georgetown University 8 days ago. I had a considerable stenosis of the right IJV which was opened with balloon venoplasty. My left IJV and azygous were fine. To date I have not seen improvement in my MS symptoms. My circulation seems better which I judge from the w...
by judipom
Thu Jun 10, 2010 4:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Truncular Venous Malformation Facts- PAPER ONLINE NOW!!!!
Replies: 19
Views: 8310

:D Thanks for posting Cheer. Judi
by judipom
Thu Jun 03, 2010 12:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NDwannabe is IN Poland!
Replies: 61
Views: 12709

Just want to thank you all for posting your experiences about the procedure. It really helps to know what to expect. Judi
by judipom
Thu Jun 03, 2010 10:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DR. SIMKA reply about re-stenosis
Replies: 77
Views: 24615

This is excellent. Thanks so much. Judi :D
by judipom
Mon May 24, 2010 9:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Should I wait?
Replies: 16
Views: 4325

You guys are funny. Good luck Sandy--you will make the right choice, and then you will make another, and another, and another.... :P Judi
by judipom
Fri May 21, 2010 4:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Should I wait?
Replies: 16
Views: 4325

Sandy--I have been going through the exact same thing. Congratulate yourself on being a prudent and thoughtful individual! I don't think anyone knows what the right answer is here. Certainly,many people have seen great benefit, some have seen little or no benefit, and a few have had complications an...
by judipom
Tue May 18, 2010 12:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who is checking veins+performing angioplasty-N. America
Replies: 5
Views: 2208

Georgetown University is doing the diagnostics and intervention upon recommendation of a neurologist. Use your own or one of theirs. Judi
by judipom
Tue May 18, 2010 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Just back from Poland with Dr Kosteki
Replies: 63
Views: 15671

Excellent news. Thanks for keeping us updated. Judi
by judipom
Tue May 18, 2010 12:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MORE BEFORE AND AFTER FOOTAGE-POST ANGIOPLASTY
Replies: 2
Views: 1843

you tube
by judipom
Mon May 17, 2010 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vascular disease worsens MS progression
Replies: 10
Views: 3847

Really, all this study says is that if you have MS and diabetes or heart disease....you're going to be worse off. Which really isn't rocket science...but they got some money to study it. cheer I love this. It's like the million dollar studies to find out why 60% of Americans are obese. The answer: ...

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