Search found 12 matches

by Bobble43
Thu Jan 19, 2006 9:56 am
Forum: Rebif
Topic: Hypothyroidism and Rebif
Replies: 4
Views: 7047

Hi, I've been on Rebif for almost two years. (started March 04). It's kind of like "what comes first, the chicken or the egg". I was borderline hypothyroid before starting Rebif. Then for the last year and a half, my TSH levels were all over the place. I have 75's, 88's, and 100 doses in my cabinet....
by Bobble43
Fri Jun 17, 2005 1:43 pm
Forum: General Discussion
Topic: confused doctors
Replies: 5
Views: 3076

I cannot imagine how frustrating your situation must be! Is this neuro. an MS Specialist? How many MS patients does he treat? I was diagnosed at age 60 by a PHD MS Specialist (head of an MS Clinic) This Dr. was so different from the general neuros (2) that I had seen over the course of 4 yrs. He was...
by Bobble43
Fri Jun 10, 2005 9:11 pm
Forum: General Discussion
Topic: Copaxone reduces relapase rates more than interferons
Replies: 5
Views: 2389

This study appears to be misleading. I'm on Rebif and the literature seems to state the normal dosage is 44mcg. 3 x week. Just saying that the outcome may have been quite different with the standard dosage. Why, for instance, didn't they cut the standard dose for Copaxone and Avonex in half? Unless ...
by Bobble43
Fri Jan 14, 2005 12:17 pm
Forum: Rebif
Topic: site reactions improving with 29 gauge needles?
Replies: 10
Views: 4915

site reactions improving with 29 gauge needles?

Love those smaller needles! I guess it doesn't take much to make me happy. Although the 29 gauge needles are only about 15% smaller, they have made a world of difference. At one point I stopped using my upper arm sites due to large red marks with severe itching and some swelling. Since I've been usi...
by Bobble43
Wed Aug 25, 2004 8:00 am
Forum: General Discussion
Topic: Benign MS....or not?
Replies: 17
Views: 7247

My MS Specialist does not use the term "benign". Even "Mild" is an iffy term. In my case, I have significant cognitive deficits documented by neuropsych. testing. The EDSS scores, as far as I know, do not take into consideration the inability to process information, short term memory deficits, decre...
by Bobble43
Fri Aug 06, 2004 7:22 am
Forum: Rebif
Topic: Air Bubble
Replies: 10
Views: 6702

Air bubble in Rebif

The air bubble is there for a purpose. The syringe should be held so that this air bubble is the last thing injected. It helps disperse the med. and seal the site--less chance of Rebif leaking out. Since Rebif is a subcutaneous injection, there is no problem or danger injecting the air bubble. Hope ...
by Bobble43
Mon Jul 19, 2004 3:56 pm
Forum: Rebif
Topic: Newly Diagnosed - Just Started Rebif
Replies: 4
Views: 3598

New Rebifer

Hi SandyInPa, This is Bobble43 from Pa.Sounds like the first injection went okay (I won't say fine, since we all know it isn't the fun thing to do!) I am one of those that manually inject. For me, it doesn't sting as much, in fact not at all, if I push that plunger in slowly. It didn't really bother...
by Bobble43
Mon Jun 28, 2004 3:03 pm
Forum: Rebif
Topic: rebif---
Replies: 32
Views: 19837

Lynn45--Been on Rebif since 3/04. Reddened areas from injections but no itching or hives. I always think of hives as not only reddened areas that itch, but elevated and swollen. Perhaps you're having an allergic reaction? Maybe an antihistamine would help. I would certainly let your neuro. know abou...
by Bobble43
Wed Jun 16, 2004 6:37 am
Forum: Rebif
Topic: Just starting...
Replies: 4
Views: 3574

Just starting........

Hi k8jsl, I agree with Momsboyz. Better to get into the habit of doing shots at night , just in case you do have reactions. I started off by taking 2 Tylenol and 3 Advil one hour before injecting. Only had a reaction once, and strangely enough, it was when I was still on the 22mcg. dose--joint and m...
by Bobble43
Wed May 19, 2004 11:05 am
Forum: Rebif
Topic: I would like to hear how people are doing on Rebif.
Replies: 28
Views: 15180

How I am doing on Rebif?

I've only been on the full dose since April 11 this year. I have noticed the sensory issues have calmed down a lot. No internal vibs-- tingling, crawling,itching have decreased. More fatigue, but I credit that to adjusting to the interferon. Provigil is helping a lot. Trying to focus on the long ter...
by Bobble43
Tue May 18, 2004 10:33 am
Forum: General Discussion
Topic: Fatigue & Treatment
Replies: 34
Views: 13525

Fatigue & Treatment

Yes that bone numbing, mind frying fatigue is a major issue with me. I have learned that pacing my daily (I no longer am employed) activities is a must. I take Provigil--half a pill. I tried the full dose and I felt wired for sound!! very nervous, heart just racing--not a good feeling. I do notice a...
by Bobble43
Tue May 18, 2004 10:16 am
Forum: Rebif
Topic: Anyone feel worse on rebif?
Replies: 23
Views: 14630

Anyone feel worse on Rebif?

Started Rebif 8.8 in March this year. Graduated to full dose on April 11. I did feel "funky" the day after injecting, this lasted a full month. Now, I seem to be tolerating it much better. A lot of the sensory stuff has diminished in intensity. I try to look at this long term---not how I feel now (a...

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