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sorry to hear that all is not going so well for you now - I was treated April last year in Poland - results a little disappointing - have a stent in left jug and last time I was checked out - Sept 2010 - no restenosis - initially did feel a lot better after angio, but it never really touched my fati...

Hi, Well I had my first treatment on April 8 2010, after no immediate improvements apart from the warm feet bit, things did slowly improve, balance etc. I was treated in Katowice Poland by the Simka team and have spms, and had a stent placed in my left jugular. Anyway, after the first couple of mont...

Hi Ester Great news that your 2nd go is working well at the moment, also good to hear that he checked your arzogous upon reguest - there have been some on this forum complaining that Dr Simka didn't do this - glad to hear they are wrong! I'm going to Katowice to see Dr Simka for the 2nd time on Tues...

Hi Val - that's very true - can't understand why u can't even get checked up at a private clinic in Canada - it makes not sense at all.

Hi As far as I know they just give you a doppler at the 6 month check up - then you have to organise a second visit if it shows you have re-stenosed. All rather a big hassle if you are located far away. As for follow up before the 6 months is up - well so far that has proved to be a problem for me -...

Thats great news Rici - loads of us are behind you on this and just wishing you all the very best success with this operation.

Until I heard about ccsvi I was a very dedicated smoker! Smoking was one of my favourite hobbies, and not a lot would part me from my cigs. Even a breast cancer diagnosis in 2003 didn't stop me. I know/knew then also, that smoking made my ms worse, particularly for the first 5 mins after a cig - my ...

Hi Ted That's a question I am very interested in knowing the answer to. I was liberated in Katowice Poland 8 April, have had ms for 10 years and think that I was changing from rrms to spms. I had one stent in my left jugular and angio on the right. I am a little disappointed with my results so far -...

Just to wish you all Mutley, Sunlounger. Mags, Fiddler et al, all the very very best for your procedures. I'm about 20 days after mine now, a little disappointed with the result so far, but things are changing, so I am still optimistic. I feel much better in myself now - I use to feel sick and flu i...

Hi Rici

Sorry, but I didn't really understand your reply then - did you mean that a doctor in Poland would do your operation for you?
I hope so - keep us all up to date

All the very best to you Ted - you are in good hands and good company there and I hope very much that it has a positive impact on your symptoms.

It was a pleasure Rici - like many on this forum I follow your story - wish all the best of luck to you in your recovery - all the best - Suzanne

Hi I'm very impressed with you both for taking the bit between your teeth and driving there. Of course I wish you all the very very best with your procedure Liva - don't worry it really is a breeze. I am a whole lot better, I week after my liberation, not perfect, but life has become livable. I hear...

Hi I just wanted to wish both Mutley and Claire all the very best for their return visits to Poland, and hope so much that this ridiculous volcano in Iceland business doesn't interfere with your flights. I've been liberated for a week now and am feeling a lot better than before. I'm walking a lot be...

Hi Yeah, I'll join the Marek fan club - what a fantastic personality he is, and how great he is at his job - I wish all the very best on his walk - I'm sure he'll raised lots of money for MS in Poland. Majick - the other driver/helper is great too, and he's not leaving - the team and organisation in...