This Is MS Multiple Sclerosis Knowledge & Support Community

Are there any good drugs for dizziness out there? My husband has PPMS and the dizziness has become debilitating. He was prescribed betahistine but it doesn't really help at all. A little background…he was diagnosed in 2009, went to Poland for CCSVI in 2010 and had a couple of good years with little ...

Wanted to share some info on NUCCA (National Upper Cervical Chiropractic Association)…a specialized form of chiropractic treatment. It's extremely gentle (no neck cracking!), and my husband has had amazing results (diagnosed with PPMS in 2009, and has also had CCSVI treatment in Poland in 2010). The...

Hi! Just wondering if you think it's absolutely 100% necessary to take low dose aspirin after the Liberation Procedure? My husband has been on it for a year, since the procedure, but starting to wondering if it's interfering with his sleep. Things have been good since the procedure, and his symptoms...

Hi! Just wondering if you think it's absolutely 100% necessary to take low dose aspirin after the Liberation Procedure? My husband has been on it for a year, since the procedure, but starting to wondering if it's interfering with his sleep. Things have been good since the procedure, and his symptoms...

Hope someone has some thoughts on this. Exactly almost a year ago my husband had the CCSVI procedure in Poland. Everything was great for many months and then headaches resurfaced as well as sleeping problems. After stopping Plavix, which he was on for close to a year the headaches have lessened subs...

Hi All, It's been 10 months since my husband's CCSVI procedure in Poland. Things were great for several months, and then symptoms seemed to creep back, but not nearly as badly as before the procedure. Headaches, trouble sleeping through the night, dizziness came back - headaches which practically di...

Hi All! My husband had his first followup after Poland at the end of October. Probably waited longer than we should have but not easy getting back to Poland. We found a clinic in Canada (Barrie, Ontario), close to home that does followups for MS/CCSVI patients. We've been a little nervous about the ...

Hi Steve, So glad they were able to do an angioplasty of the left jugular & brachiocephalic trunk. Maybe the angioplasty will hold and it won't need stenting?? It can often take up to 6 months to feel the improvements. So glad things went smoothly and you're doing a little sightseeing. Hope you ...

Hi!

Hope all is going well. Thinking of you lots - can't wait to hear all about
your experience. Hope your time in Poland is as wonderful as ours was.

Wishing you the very best,

Fraser

We'll it's been just about 2 months since the procedure - two wonderful months...just one little question that hopefully someone might have an answer to. Everything has been great - no regrets at all. Virtually no headaches except for last week. For close to a week my husband was experiencing kind o...

Hi Colapesce, Fraser is doing really well - he feels like a new man. Only one bad day in three weeks last Friday, because he didn't sleep well, but other than that things have been great. It's still hard for me to believe these changes are going to stick. I think because our life has changed so dram...

If you live in Canada pick up MacLean's magazine (April 26th). Great article on CCSVI and MS. Loved it because it focuses on people that have been liberated or in support of it. A really great human element to the story (especially loved what the Italian doctor working out of Belfast had to say abou...

If you live in Canada pick up MacLean's magazine (April 26th). Great article on CCSVI and MS. Loved it because it focuses on people that have been liberated or in support of it. A really great human element to the story (especially loved what the Italian doctor working out of Belfast had to say abou...

Great news! My husband worked all weekend, and survived with only normal fatigue. Could never have done it before the procedure. Just a question - were you given a stent or only angioplasty? My husband had a stent, and with all the horror stories being played up about stents, just want to know that ...

9 good days in a row!! (plus the 2 amazing days in Poland!) Aside from the occasional normal fatigue, energy has been really good (not that crippling MS fatigue). Limp is almost non-existant, clear head, sleeping well, etc. My husband was travelling on business, and one night they went to a casino a...