This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks Algis

I have only managed to find one reference in Google dating from 1988 from Spain where carbamazepine was used successfully:-
http://www.ncbi.nlm.nih.gov/pubmed/3340424

Havn't coughed up the fee for the full article yet but will do if I don't have any luck with my GP.

Hi Algis Sorry to hear you've been experiencing similar problems. I had a cystoscopy (not recommended!!), physical prostate examination and massage, ultrasound scan and numerous blood tests, none of which showed any obvious problems. Until recently, the Sativex was making things tolerable and, as th...

Hi Just wondering if anyone else was suffering from pelvic pain which has been attributed to MS and if they have had any luck with treatments. I am PPMS (10 years) and have been experiencing bouts of excruciating pelvic pain for the last 2 years. The doctors have gone down the prostatis road and I h...

Rokkit wrote: I just wish someone would publish a good-sized, venography study comparing pwMS to healthy controls. I could not agree more. I have seen plenty of XRay venograms of pwMS clearly showing severe blockages of IJVs etc., including my own. But if I was asked "don't these occur in peopl...

This is BRILLIANT!!

Many thanks for getting this up, 1eye. I know its probably best to keep things to a minimum, but would it be possible to have a tick box for "Type of MS"
Cheers
Will

Well done Cheerleader and a big THANKYOU for you and your team's hard work.
The "Gold Standard" resource in the advancement of CCSVI research and treatment.

pklittle wrote:

I'd like to see this thread stay on topic, reporting post-liberation results and not get riddled with this kind of stuff.

Hear Hear!

Hi Please see Tracking Thread for details:- http://www.thisisms.com/ftopic-8346-75.html#111395 I have not experienced any benefits at all from the treatment, not even the warm hands and feet or fatigue improvements that so many people get. In fact, I am not sure that the stress and anxiety of the bu...

Can I just offer a BIG THANKYOU to TIMS and its many contributors for the information and support that you've provided over the last year or so and the last 6 months especially! I was diagnosed with PPMS in 2007 having experienced a very slow deterioration in leg strength over the previous 8 or 9 ye...

MS HISTORY Name : willm Male/Female: Male Age: 49 Date & type of neurological diagnosis: Diagnosed PPMS September 2007 (first symptom 1998) Lesion locations: Unknown MS treatments: Baclofen (45 - 60 mg per day) LDN (4.5 mg per day) MS symptoms before stenosis intervention: Progressive weakening...

Hi Zap You might want to look up a condition called Micturition Syncope. I have had the exact same experience as yours and my GP said it was this. I believe it has something to do with low blood pressure - mine is low as are many MSers. I also experienced it when self-catheterising which is well-doc...

Something that worries me about these findings is that they do not support an important part of Dr Zamboni's research. If I remember rightly, Dr Zamboni's study did not find CCSVI in any of the controls - something that I have been quoting to anyone who will listen for the last 3 months. Um, I don't...

Thanks Sunlounger

Just signed up for information when it becomes available.

How are you getting on. Do you think you will need to go back to Poland for more treatment?

I agree - they really got the message across clearly.

It's a shame that the presenter kept going on about the money side of things especially as, long-term, CCSVI treatment would save the NHS millions.