Search found 116 matches

by Brynn
Mon Jun 17, 2013 3:04 pm
Forum: General Discussion
Topic: Follow my new MS Blog.
Replies: 0
Views: 951

Follow my new MS Blog.

After living with MS for 15 years, I have a ton of history, experiences and thoughts that I would like to communicate. If you are a Facebook user, please join my conversation with your ideas, questions and wisdom! The page is: MS: My Burden Is Helping My Spirit To Soar. Thank you, Brynn
by Brynn
Mon Oct 10, 2011 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and body temperature... Long, but it might be worth it
Replies: 6
Views: 1469

Re: CCSVI and body temperature... Long, but it might be wort

Yeah, Dania, it's the same way with me with hot foods. I notice a change immediately and will try your ice chewing idea, too. After an added week with the vest, I am seeing that the temperature spike stays away for about 1 1/2 hours. The vest is making a night and day difference though! Bye, Brynn
by Brynn
Thu Oct 06, 2011 7:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and body temperature... Long, but it might be worth it
Replies: 6
Views: 1469

CCSVI and body temperature... Long, but it might be worth it

Hello everyone, it has been quite a while since I posted. I have had an extremely affecting breakthrough in the last month that I wanted to pass on to all of you, in case it might help someone else, too. In January of 2010, I went to Poland for a right side IJV stent and received tremendous improvem...
by Brynn
Sun Jul 25, 2010 2:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10555

Hi everyone! Thanks for the well wishes! I wanted to send out an update…Not meaning to sound too overly dramatic, I have had a challenging few months. I unfortunately have not seen a return of the tremendous improvements after my 2nd trip to Poland. We have found that I have been fighting reoccurrin...
by Brynn
Mon Jul 12, 2010 6:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10555

Sorry to be off the radar for so long. It has been a tough time for me for several weeks. I have improved coloring in my feet and do not have fatigue but have had four UTIs since mid-march. I am having a hard time talking, can't support myself and can only type for short periods of time, with only m...
by Brynn
Wed May 26, 2010 4:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10555

Hi Paul, I told the doctor's that I can't afford the trip again, so if it seemed at all reasonable, to please give me a stent. I got my stent. I am sure you would, too.

Thanks, Sunlounger. How are you feeling?
by Brynn
Wed May 26, 2010 9:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10555

Sorry for taking so long, I was taking a bit of a break. My procedure on May 13 went great, just real easy like my trip in January. My Doppler revealed that my left IJV had indeed collapsed again, so this time they placed a stent on that side, too. He also ballooned my azygous vein, which I don’t th...
by Brynn
Sun May 09, 2010 6:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone decided to "reschedule"?
Replies: 42
Views: 4930

Johnson, thumbs up for your optomistic posts! I totally support your positive attitude and get so tired of these folks that take so much energy trying to slap down the possibility of improvement. For me, there is a life time to feel sorry for myself IF I should find that my symptoms DO NOT go dramat...
by Brynn
Sun May 09, 2010 9:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 10555

Hi everyone! My husband and I made our way across the pond on 5/6 from Seattle into Frankfurt, rented a car and drove down to northern Spain to spend the weekend with my brother and his family. It has been a year and a half since we saw them, so it has been really nice! Tomorrow, we are driving thro...
by Brynn
Tue May 04, 2010 6:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland!!!!!!!!!!!
Replies: 69
Views: 11601

Wonderful luck, Mags! :D :D
by Brynn
Tue May 04, 2010 6:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 9480

Have a wonderful couple of life changing days, Esta! It will happen! :D
by Brynn
Sun May 02, 2010 10:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 20330

Livabird- I got a bladder infection when I got back, too. I think the catheter that we are on for the procedure gets those going! Get on some antibiotice quick and get well! :D All in all, you will look back on this as a really wonderful time! Take care! Sunlounger- I would love to hear how this tri...
by Brynn
Sun May 02, 2010 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 9480

Esta, have a fantastic trip! I am a week behind you on the 13th! Good luck to everyone!
by Brynn
Sat May 01, 2010 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Once is never enough
Replies: 32
Views: 4704

I never have the energy right now to get too scientific, but I had a couple thoughts to share, based on my experience thus far. My right leg has gotten progressively non-functioning, every since my footdrop began about 5 years ago. Two years ago, I purchased a Walk-Aide cuff, that straps just below ...
by Brynn
Thu Apr 29, 2010 6:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Once is never enough
Replies: 32
Views: 4704

Hi everyone, I had one stent placed in January with tremendous improvements for 6 weeks then apparently re-stenosed on my left side, which had only been ballooned. I am scheduled in Poland for May 13th, so it will be interesting to see what is found and how I feel afterward, this time. I believe I w...