This Is MS Multiple Sclerosis Knowledge & Support Community

After living with MS for 15 years, I have a ton of history, experiences and thoughts that I would like to communicate. If you are a Facebook user, please join my conversation with your ideas, questions and wisdom! The page is: MS: My Burden Is Helping My Spirit To Soar. Thank you, Brynn

Yeah, Dania, it's the same way with me with hot foods. I notice a change immediately and will try your ice chewing idea, too. After an added week with the vest, I am seeing that the temperature spike stays away for about 1 1/2 hours. The vest is making a night and day difference though! Bye, Brynn

Hello everyone, it has been quite a while since I posted. I have had an extremely affecting breakthrough in the last month that I wanted to pass on to all of you, in case it might help someone else, too. In January of 2010, I went to Poland for a right side IJV stent and received tremendous improvem...

Hi everyone! Thanks for the well wishes! I wanted to send out an update…Not meaning to sound too overly dramatic, I have had a challenging few months. I unfortunately have not seen a return of the tremendous improvements after my 2nd trip to Poland. We have found that I have been fighting reoccurrin...

Sorry to be off the radar for so long. It has been a tough time for me for several weeks. I have improved coloring in my feet and do not have fatigue but have had four UTIs since mid-march. I am having a hard time talking, can't support myself and can only type for short periods of time, with only m...

Hi Paul, I told the doctor's that I can't afford the trip again, so if it seemed at all reasonable, to please give me a stent. I got my stent. I am sure you would, too.

Thanks, Sunlounger. How are you feeling?

Sorry for taking so long, I was taking a bit of a break. My procedure on May 13 went great, just real easy like my trip in January. My Doppler revealed that my left IJV had indeed collapsed again, so this time they placed a stent on that side, too. He also ballooned my azygous vein, which I don’t th...

Johnson, thumbs up for your optomistic posts! I totally support your positive attitude and get so tired of these folks that take so much energy trying to slap down the possibility of improvement. For me, there is a life time to feel sorry for myself IF I should find that my symptoms DO NOT go dramat...

Hi everyone! My husband and I made our way across the pond on 5/6 from Seattle into Frankfurt, rented a car and drove down to northern Spain to spend the weekend with my brother and his family. It has been a year and a half since we saw them, so it has been really nice! Tomorrow, we are driving thro...

Wonderful luck, Mags!

Have a wonderful couple of life changing days, Esta! It will happen!

Livabird- I got a bladder infection when I got back, too. I think the catheter that we are on for the procedure gets those going! Get on some antibiotice quick and get well! :D All in all, you will look back on this as a really wonderful time! Take care! Sunlounger- I would love to hear how this tri...

Esta, have a fantastic trip! I am a week behind you on the 13th! Good luck to everyone!

I never have the energy right now to get too scientific, but I had a couple thoughts to share, based on my experience thus far. My right leg has gotten progressively non-functioning, every since my footdrop began about 5 years ago. Two years ago, I purchased a Walk-Aide cuff, that straps just below ...

Hi everyone, I had one stent placed in January with tremendous improvements for 6 weeks then apparently re-stenosed on my left side, which had only been ballooned. I am scheduled in Poland for May 13th, so it will be interesting to see what is found and how I feel afterward, this time. I believe I w...