Search found 116 matches

by Luvsadonut
Sat Oct 27, 2018 5:28 am
Forum: General Discussion
Topic: brain plasticity
Replies: 12
Views: 1090

Re: brain plasticity

After a bit more than 2 weeks: I can clearly see improvements during physical exercises.
Are the improvements related MS diminished functions re: walking, balance etc?

I was thinking of using this when doing MS related physio

Thanks
Darren
by Luvsadonut
Fri May 25, 2018 5:04 am
Forum: General Discussion
Topic: How did your walking issues start? Trouble with walking
Replies: 7
Views: 1131

Re: How did your walking issues start? Trouble with walking

Hi Tash, I echo what Scott1 states for an approach. My walking (and MS) has been a very gradual decline (18 years) without obvious relapses although the relapses in my case probably happen at a sub-clinical level. Anyway, I previously benefited from Yoga as it stretched hips and core muscles. I curr...
by Luvsadonut
Thu Feb 15, 2018 3:15 am
Forum: General Discussion
Topic: Giulia Enders
Replies: 3
Views: 958

Re: Giulia Enders

great book ..

Another great book to read after the gentle introduction offered by Enders is..
I Contain Mutlitudes by Dr Ed-Yong..massively informative and interesting.
by Luvsadonut
Mon Nov 27, 2017 12:14 pm
Forum: General Discussion
Topic: Giulia Enders
Replies: 3
Views: 958

Re: Guilia Enders

Great book as is I contain multitudes by Dr Ed Yong.
by Luvsadonut
Wed Nov 01, 2017 11:36 am
Forum: General Discussion
Topic: Fats and oils impact disability in MS patients #ECTRIMS
Replies: 12
Views: 1070

Re: Fats and oils impact disability in MS patients #ECTRIMS

Agree NHE we've had this high level info for ages now...more in depth analysis would be nice... I also get annoyed when coconut oil gets 'lumped' with all other saturated fats without taking into consideration the type of sf.
by Luvsadonut
Wed Sep 20, 2017 8:17 am
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2280

Re: Interesting Gut Microbiome results

Interesting news on the PNAS site - http://www.pnas.org/content/early/2017/ ... 35114.full which links a little to my own findings of high Akkermansia via the American Gut Project. Fingers crossed they start to piece the puzzle together.
by Luvsadonut
Wed Jul 19, 2017 6:24 am
Forum: General Discussion
Topic: TH17 immune cells linked to gut bacteria...
Replies: 9
Views: 769

Re: TH17 immune cells linked to gut bacteria...

does that mean we should be aiming for higher levels of Prevotella which will lower the TH17? Or does it mean that the body or gut flora is keeping the Prevotella levels down due to TH17 and maybe inreasing them will make the Th17 or inflammation worse?
by Luvsadonut
Sat Jun 24, 2017 3:09 am
Forum: General Discussion
Topic: Low Nfl's (Nurofilament levels) in Lumbar Puncture results
Replies: 1
Views: 540

Low Nfl's (Nurofilament levels) in Lumbar Puncture results

I had another spinal tap done recently and my nuero pointed out that my Nfl levels are lower than the average Joe. When I was diagnosed 18 years ago I didnt have a ST so this is the first time Ive come across Nfl's. My spinal lesions were still in abundance but Id like to know a little more about th...
by Luvsadonut
Sat Jun 03, 2017 11:47 am
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2280

Re: Interesting Gut Microbiome results

Hi David, Ive always found it difficult to classify a relapse, I was diagnosed after seeing the doctor for numbness which only lasted for an hour or so. Ive had similar very small issues but nothing compared to what other people seem to suffer from. Maybe my relapses are subclinical? I was about 27i...
by Luvsadonut
Sat Jun 03, 2017 3:16 am
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2280

Re: Interesting Gut Microbiome results

My symptoms have been slowly progressive since diagnosis 18 years ago, walking, stiffness, fatigue, bowel etc. My neuros used to say I was benign but my new neuro tells me Im SPMS. I work full time (12 hours a day) 5 days a week, support a family etc. My walking is down to about 1/2 a mile, I see an...
by Luvsadonut
Tue Apr 25, 2017 10:11 am
Forum: General Discussion
Topic: Potential cause found - another RAB32 link
Replies: 8
Views: 1312

Re: Potential cause found - another RAB32 link

Is it not possible that this could cause CCSVI which in turn creates MS symptoms for some people?
by Luvsadonut
Mon Apr 24, 2017 7:38 am
Forum: General Discussion
Topic: Potential cause found - another RAB32 link
Replies: 8
Views: 1312

Potential cause found - another RAB32 link

Breakthrough in multiple sclerosis research as scientists discover possible cause of the disease http://trib.al/NaAauSM Scientists have long suspected that mitochondria, the energy-creating "powerhouse" of the cell, plays a link in causing multiple sclerosis. Using human brain tissue samples, resear...
by Luvsadonut
Tue Apr 04, 2017 12:11 pm
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2280

Re: Interesting Gut Microbiome results

8O Not more food groups to consider!! 8O
by Luvsadonut
Sat Apr 01, 2017 1:06 pm
Forum: General Discussion
Topic: Yoga for MS?
Replies: 3
Views: 619

Re: Yoga for MS?

I did yoga once a week about 12 years ago, at the time it helped my mobility greatly, it made my legs/core more flexible. I gave it up as I changed jobs tho' I wish I had continued it. Ive since tried to reintroduce without success due to job/time constraints although in an ideal world Id love to do...
by Luvsadonut
Tue Mar 28, 2017 10:18 am
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2280

Re: Interesting Gut Microbiome results

Well the thing is that I was already taking high dosage probiotics, making/drinking kefir+kombucha, making sauerkraut, eating prebiotics (onions, garlic etc) but stopped them a few days prior to my sample so as not to get results based on the probiotics taken, this is because probiotics have a short...