This Is MS Multiple Sclerosis Knowledge & Support Community

Blossom, He didn't actually say when to use it- he just said it would offer "additional benefits" to the procedure due to ease of circulation when using IBT. If you are unsure, start gradually. The reason I said 3 months was because this was the time that he mentioned it to me. I was corre...

FYI to all regarding IBT.
Dr. Simka personally suggested that I use it (this was 3 months after the procedure).
Now, even my husband prefers it to sleeping flat!

Gosh, I remember everyone as this was such a huge life experience for me. Glad things are moving in the right direction Esta and thanks for keeping us informed. hey Suzanne, sorry I'll miss your return to Katowice- I'm planning a follow up visit in October or November. Good luck! As for me, the past...

Congratulations! Wishing you continued success.
Jo

PS We met in Katowice in May ( i was returning to support a friend after an April procedure).

FYI
I have been to Sanoviv twice to treat MS. Wonderful place! They sent me an email that they now offer CCSVI testing and procedure- but I don't know of their experience or protocols used.

PS they are great but expensive

Initially the results were fantastic- but now, three months later I am pretty much back to where i started. Dr. Simka said to give it 6 months but I am planning to get a followup doppler in the next few weeks to see what, if anything has happened. My neuro knows that I had a procedure but I did not ...

FYI
treatment now is also available at Sanoviv Medical Institute (sanoviv.com).
I have no idea how/what kind of experience they have- but I can say that this is an amazing place. I have been there twice.

thornyrose,
I too am from Winnipeg - went to Poland in April. Decided that I will have a doppler at false creek to see where things at at with my veins- figure vancouver is much closer than Poland.
jo

CCSVI TRACKING [10/06/2010] MS HISTORY Name Jo (TIPSY TURTLE) Male/Female: F Age: 44 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): RR 1987 Lesion locations (most affected side, if known), number: don't know MS treatments: have refused all meds- including steroids. T...

Didn't Zamboni have at least 60 people in the original study?

Ted,
Happy to hear that things are moving in the right direction.
So sorry I haven't posted since my own liberation - been hanging out with friends and family in europe.
Soon,
jo

Ted,
You have been on my mind so much this week.
Will anxiously wait for your updates.
godspeed my friend,
jo

I am thrilled for you Rhonda! You have been an inspiration to so many of us- thank you again and again.
I'm sitting in my hotel room here in Katowice waiting for the MRV which is scheduled for tomorrow. Hoping and praying for success like yours.
cheers!

I feel the same way as do you Inge! (Am leaving in a couple of days.)
Thank you again for your informative and generous posts Fraser. I am so touched as are so many others.
Thank you, thank you, thank you!
jo

Interesting discussion ( and i totally relate to the "you look so good comments"). Just a side note: I noticed that in California, many patients' insurance covered the procedure- not as an MS procedure per se, but as a "structural issue" that needed repair. Is there not an argume...