This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Dr Flanagan I have been following this thread and indeed others regarding the atlas misalignment. I sustained whiplash in a car accident 2001and I had first symptoms in 2002, very minor nothing showed on mri except spondylosis in neck. Then seven years later had more severe relapse and mri showed...

Hi
Does anyone know or have experience of taking ldn while on tysabri? Is it contraindicated?

thanks and regards
M

Hi Dr Sclafani, I know some may consider this question not relevant to ccsvi but I think it might. Would you recommend use of the vibrating/power plate as part of an exercise plan or do you think that the vibrations may damage further already compromised veins. (Have tried it once and it feels like ...

Hi Dr Sclafani, sorry to bother you with this question but I have tried to get an answer from my gp who didnt have a clue about 'sticky blood syndrome' tested me for facor V and told me I had no problem. You had advised me sometime ago to have my blood tested for this condition before I would attend...

Best wishes from ireland

Will say a prayer for you!

M

Hello Brenda, I have a consultation with the neuro on the 8th which is the first part of the process for me. You will be able to tell us about the MRV when we meet...It almost feels like you know people already having spent so much time reading Tims. Good luck for your journey over- its only a short...

Hi AmcG Thanks for explaining the stent situation. I am nervous about having one I know I may not need it and I might not even have ccsvi either. As my brother was told he had an irregular venous system in his abdominal cavity when he was being checked out for sticky blood and blood cloths, I am mor...

Hi everybody I have been reading avidly on this site and on this thread in particular and you all seem happy with Tchy and the set up there. I am glad for all of you that have improvements and hope everyone improves over time. I have a date for June 8 with Dr Kostecki ( I think) Have to e-mail Kathe...

Good luck Ted

I hope it all goes well for you. My thoughts and prayers are with you

Maureen

Hi Dr Sclafani Thanks for all the time you give us! My question is and you may have covered this before - but it is a real anxiety I have about the treatment - Is it possible for the valves to be damaged during the procedure thus making the situation worse as one poster on this site reports. I think...

Hi Wonderfulworld,

Well done on finding someone in Ireland that will do an ultrasound. Is s/he open to testing others? I am on the list for dr Simka in Poland but would be interested in getting tested here in Ireland if it was available first.

Thanks
Maureen

Hi Michelle Sorry to hear that Ella's improvements haven't been sustained and that you have to return for further treatment. I have a date for April and should any problems be discovered, would prefer to go with angioplasty initially also. What I have been wondering about is - does one have to pay f...

Hi Alby

thank you for that.
As I am due to go in late April, Its reassuring to hear how it all works.
May your improvements continue...

M

Edser great to hear you are doing so well. I saw somewhere cant remember where on this site you said i didnt answer a pm. I never received any from you! I sent you one to acknowledge it. Just had a visit from the copaxone nurse was all enthusiastic about ccsvi but didnt know much about it. said ther...

Sorry....
was excited wanted people to see it live as there were differing versions/interviews.

m