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[quote="maxmum"]Hi, (...) I suppose to avoid confusion with the MS Society of Canada who announced last week that they would be funding CCSVI research, it was phrased as the US Multiple Sclerosis Society instead of the National MS Society. So it's the national one. But they are going to fu...

Maximum - The article says "U.S. Multiple Sclerosis Society" - there is not a US Multiple Sclerosis Society. There is: MSAA -Multiple Sclerosis Association of America and NMSS - National Multiple Sclerosis Society. It is unclear which society the article is referring to. Sharon I believe ...

It is very small but you get the general idea. http://www.themcfox.com/multiple-sclerosis/ms-world-map/world-map-of-ms.htm Oh! Thank you! mmm... at first sight, the high rate areas of continental Europe look more like those of Burgunds, Saxons, Alamans, Franks ...and Poles ethnicity, rather than Ce...

The abortion pill kills mothers ! Can you please get more in details: we had once no other possible choice, because of a (probably Rebif-related) hughe myom. Becoming pregnant at this time would have threatened her life! And now, we can't have kids anymore Do you have articles references please :(

Is there anywhere a MAP of the MS prevalence?

with a feeling of guilt... " I feel guilty being healthy at times." I understand so much! But well, so "healthy", I'm not all the time. Maybe a bit less guilty as yourself I may feel. I happen to have sometimes RLS and at other times Chronic Fatigue. Annemarie is the only person...

I complain since decades that the research remains done only by specialists. It needs a systemic, pluridisciplinary approach as well. The dogma remains: one disorder=one cause. Then you find different "chapells" each one thinking they others are wrong. I suspect this to be one of the reaso...

Well, in Middle Age, they were just called "disabled"...
And other dideases show/have shown similar symptoms (like syphillis prior to peniciline),
don't you think?

Sharon, you're right. I will have to learn becoming patient.
I really thank you for the notice. I'm not the one who is ill, often I believe it's even harder. Because the frustration, feeling so powerless, with a feeling of guilt...

Where my partner comes from, the folks are supposed to be alamans. (they alamans settled the high alpine valleys here in the 9th century) but the native inhabitants were celts (also archeologicaly proven). I was told that in Oberwallis the MS rate was clearly over the average, although pretty health...

My bigest worry will be now that the relatives of the one I love will do anything they can to keep her away from this operation.
Learning about CCVSI should have brought me an immense hope... but the good new came one month too late.
It won't be easy to get her to the operation now