Search found 398 matches

by fiddler
Tue Nov 27, 2012 2:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sure glad I didn't wait!
Replies: 5
Views: 1003

Sure glad I didn't wait!

Just over three years ago I heard about CCSVI and its treatment. After a couple weeks of fevered research, I decided that Zamboni's theory made a lot of sense, and that given the rapid deterioration in my MS symptoms, I should take the earliest possible opportunity to be tested and, if appropriate, ...
by fiddler
Tue Aug 21, 2012 5:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New study challenges controversial MS treatment
Replies: 12
Views: 1962

New study challenges controversial MS treatment

Interesting... a meta-study soon to come out soon will say that there are no studies that have been appropriately undertaken that can attest to the efficacy or otherwise of CCSVI treatment for MS symptoms.... yet this neurologist KNOWS that this one study (which may or may not have been appropriatel...
by fiddler
Sat Jun 09, 2012 10:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: more of the same
Replies: 17
Views: 1386

Re: more of the same

Yes, jugular, that is something that shouldn't be forgotten: drugs (which all seem to have dangerous side effects) are "effective" if they slightly seem to slow down disease progression or help some symptoms even just a little... but Liberation isn't effective unless there is a marked and permanent ...
by fiddler
Fri Jun 08, 2012 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: more of the same
Replies: 17
Views: 1386

Re: more of the same

So, though they don't say it was among the things measured, they do mention reduced fatigue and improved balance (two of the three things that markedly improved for me) as initial benefits that went away in three months. In my case those benefits (plus improved autonomic functions) remain much impro...
by fiddler
Fri Jun 08, 2012 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: more of the same
Replies: 17
Views: 1386

Re: more of the same

Thanks Scorpions, thanks Cece.
by fiddler
Fri Jun 08, 2012 7:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: more of the same
Replies: 17
Views: 1386

Re: more of the same

By the way, 1eye, maybe you should restart this thread with a different title... it could lead to a good discussion of what SHOULD be in the observational studies, so it would be unfortunate if it was missed because of an ambiguous title.
...Ted
by fiddler
Fri Jun 08, 2012 7:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: more of the same
Replies: 17
Views: 1386

Re: more of the same

Do we have an idea of how the study was conducted? If it was done improperly, then the authour (and minister) should be taken to task. Of it simply measured the "wrong" things, those that the procedure is not known to help (for example, lesions or even mobility instead of the more successful impacts...
by fiddler
Thu May 10, 2012 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FDA Issues Warning on CCSVI
Replies: 70
Views: 6847

Re: FDA Shutting Down CCSVI Research

I've been away from TIM'S for most of this last year.. But this headline made me think I'd gone back two years in time since the same BS game was being played then, with the same falsehoods and arguments... Time for them to get a new scriptwriter. You'd think that with the billions backing the effor...
by fiddler
Thu Feb 09, 2012 10:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nature of Things
Replies: 50
Views: 4985

Re: Nature of Things

My wife saw it and said it was quite good. I'm out of country (business) so will have to catch a repeat, if I can. It's not up on iTunes yet.
...Ted
by fiddler
Mon Sep 19, 2011 3:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Am I restenosing?
Replies: 3
Views: 982

Re: Am I restenosing?

Thanks, Cece and Mark
by fiddler
Sun Sep 18, 2011 10:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Am I restenosing?
Replies: 3
Views: 982

Am I restenosing?

Over the last few weeks I've had a few days where I felt tired during the day and had a nap/laydown, even twice one of those days. Now, I know that's a long way off from what it was like before liberation when I had a deep, devastating fatigue that required me to take at least a couple of naps every...
by fiddler
Mon Aug 15, 2011 7:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Massive study disputes Zamboni theory of multiple sclerosis
Replies: 9
Views: 1834

Causes

I didn't see where the results of their study justified saying that CCSVI is bogus or that it doesn't warrant further study with respect to MS symptoms. Interestingly, they say that their research shows that MS is "clearly" an immunological disease that is somehow triggered by some unknown environme...
by fiddler
Thu Aug 11, 2011 4:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Massive study disputes Zamboni theory of multiple sclerosis
Replies: 63
Views: 7305

No facts

In "fact", scorpion, with respect to your response to MrSuccess, there are almost no facts actually available to rely on with respect to any part of this debate. Lots of conjecture, some research results, some contradictory evidence and very few real "facts" that can't be contested by someone. So, i...
by fiddler
Thu Aug 11, 2011 5:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Massive study disputes Zamboni theory of multiple sclerosis
Replies: 63
Views: 7305

Puzzle

More pieces to the puzzle, it seems, but it hardly rules out a vascular component to MS initiation or MS symptoms, just doesn't provide support for it. Since they weren't looking for genetic markers for vascular diseases, they didn't find any - SURPRISE! And for some of the researchers to say that "...
by fiddler
Wed Jul 27, 2011 4:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'The internet racing ahead of the scientific evidence' paper
Replies: 19
Views: 3429

Cochrane review

Folks, I have been asked to help in a Cochrane review of CCSVI research to date. Cochrane reviews are well respected and provide an opportunity to steer the medical community toward adopting new techniques quicker, if warranted, and to identify gaps in current research. I would like our CCSVI commun...