Search found 8 matches
- Mon Oct 18, 2010 11:45 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 762562
- Mon Oct 18, 2010 10:49 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 762562
- Mon Oct 18, 2010 9:54 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 762562
Dear Dr. Flanagan, I had Decompression surgery in 1999 for Arnold Chiari malformation. Prior to the surgery, my only complaint was sensory changes of left arm. MRI showed demyelinating lesion on C4. (Radiologist said lesion consistent with MS). Brain showed no lesions, just the ACM. Neurologist beli...
- Tue Jun 22, 2010 7:05 pm
- Forum: Avonex
- Topic: Sharps Container Disposal
- Replies: 4
- Views: 5354
- Tue Jun 22, 2010 5:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: New Surgery for Chiari...New Surgery for MS - Links?
- Replies: 2
- Views: 2905
Hi Hope66, I had the surgery for Arnold Chiari Malformation in 1999. The surgery described in your link is exactly what I had done. A portion of my skull in the occipital area was removed, to make room for the brain. At the time, my symptom was numbness in my left arm. I also had always had frequent...
- Wed Mar 10, 2010 9:21 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Pre Tysabri Energy Slump
- Replies: 6
- Views: 2662
- Wed Mar 10, 2010 5:33 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Pre Tysabri Energy Slump
- Replies: 6
- Views: 2662
So glad to hear that! Tysabri has been a Godsend for me. It stopped my steady decline in it's tracks. I am now looking at CCSVI developments with hope in my heart, and am so grateful that Tysabri is keeping me stable in the meantime. My two adult children also have MS and are doing great on Betasero...
- Mon Feb 22, 2010 9:31 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Pre Tysabri Energy Slump
- Replies: 6
- Views: 2662
Pre Tysabri Energy Slump
Hi Gymbuff, I have had 30 Tysabri infusions, and have never noticed a pre infusion slump. (Although I have read many people's accounts of fatigue & other symptoms in the week prior) At least 2 or 3 times I have had to postpone my infusion by a week, and did not notice any difference. I also do n...