Search found 8 matches

by Vii
Mon Oct 18, 2010 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762562

Thank you, Doctor....I will pursue the venous diagnostics, too.
by Vii
Mon Oct 18, 2010 10:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762562

Thanks for your reply.... I am a 51 year old female, Hispanic (born in Cuba) I am 5'4" tall. I don't have any low back or lower leg complaints. (except for drop-foot, left leg which came after the surgery) My daughter does not have scoliosis, is 5'2" tall. None of her MRI's have mentioned ...
by Vii
Mon Oct 18, 2010 9:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762562

Dear Dr. Flanagan, I had Decompression surgery in 1999 for Arnold Chiari malformation. Prior to the surgery, my only complaint was sensory changes of left arm. MRI showed demyelinating lesion on C4. (Radiologist said lesion consistent with MS). Brain showed no lesions, just the ACM. Neurologist beli...
by Vii
Tue Jun 22, 2010 7:05 pm
Forum: Avonex
Topic: Sharps Container Disposal
Replies: 4
Views: 5354

Check with your city or county Fire stations. Some will accept and properly dispose of your full sharps containers.
Vii
by Vii
Tue Jun 22, 2010 5:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Surgery for Chiari...New Surgery for MS - Links?
Replies: 2
Views: 2905

Hi Hope66, I had the surgery for Arnold Chiari Malformation in 1999. The surgery described in your link is exactly what I had done. A portion of my skull in the occipital area was removed, to make room for the brain. At the time, my symptom was numbness in my left arm. I also had always had frequent...
by Vii
Wed Mar 10, 2010 9:21 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Pre Tysabri Energy Slump
Replies: 6
Views: 2662

Thanks....yes, it's tough, but we're okay. My son and daughter are each happily married, and we have our first grandchild, 18 months old. I think we treasure the "normal" times more, because we have been through the dark downs of MS, and right now, "Life is Good". I would, of cou...
by Vii
Wed Mar 10, 2010 5:33 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Pre Tysabri Energy Slump
Replies: 6
Views: 2662

So glad to hear that! Tysabri has been a Godsend for me. It stopped my steady decline in it's tracks. I am now looking at CCSVI developments with hope in my heart, and am so grateful that Tysabri is keeping me stable in the meantime. My two adult children also have MS and are doing great on Betasero...
by Vii
Mon Feb 22, 2010 9:31 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Pre Tysabri Energy Slump
Replies: 6
Views: 2662

Pre Tysabri Energy Slump

Hi Gymbuff, I have had 30 Tysabri infusions, and have never noticed a pre infusion slump. (Although I have read many people's accounts of fatigue & other symptoms in the week prior) At least 2 or 3 times I have had to postpone my infusion by a week, and did not notice any difference. I also do n...

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