Search found 16 matches

by Summer55
Mon Jan 11, 2010 4:41 pm
Forum: General Discussion
Topic: Thyroid problems and MS
Replies: 22
Views: 11246

I (apparently) have a thyroid problem as well. I have MS - first symptoms in November 2008 - and just this past week I found out during an ultrasound to check for a stenosis, that I have a growth on my thyroid. I now have to have it biopsied. This is a little different than the thyroid problems ment...
by Summer55
Fri Jan 08, 2010 4:36 pm
Forum: General Discussion
Topic: Phase II study of oral Fingolimod(FTY720) in MS results
Replies: 13
Views: 3129

Tickled, such a hope inspiring story!!!

Your post on this thread will be very much appreciated by many people! People come to this website to both learn, and find hope.

Your story was not sugar coated as it was, but it was a positive one!

Thanks for sharing!!!
by Summer55
Thu Jan 07, 2010 4:47 pm
Forum: General Discussion
Topic: Inclined Therapy I.T. Multiple Sclerosis & Varicose Vein
Replies: 192
Views: 76825

As far as my official results from my ultrasound - I am waiting to meet with my Doctor next Friday. I am currently only taking what I heard the technician and doctors talking about amongst each other as they performed the test on me. I'm not sure if they were referring to the internal or external ju...
by Summer55
Thu Jan 07, 2010 4:29 pm
Forum: General Discussion
Topic: Phase II study of oral Fingolimod(FTY720) in MS results
Replies: 13
Views: 3129

Of the 250 patients who entered the extension study, 173 (69%) continued to month 36. What happened to the rest 77? Did they quit because they found the drug not effective for them? If so, the results are not reliable. sou(r) Hi Sou, that's definitely a good question - why did they quit the trial? ...
by Summer55
Wed Jan 06, 2010 3:54 pm
Forum: General Discussion
Topic: Nightmares and fitful sleeps preceding MS exacerbations
Replies: 16
Views: 4877

Thanks again for the great info Jimmylegs! I'll definitely look into that. I have been skeptical of zinc as it is an immune booster and I have been told to steer clear of anything that will boost my immune system. I will check out some of your other links on the forum regarding zinc, as I'm sure tha...
by Summer55
Tue Jan 05, 2010 3:57 pm
Forum: General Discussion
Topic: Inclined Therapy I.T. Multiple Sclerosis & Varicose Vein
Replies: 192
Views: 76825

Also, in response to the question of the stenosed jugular. Yesterday I had a doppler ultrasound which showed a stenosis on my jugular. They did the ultrasound first with me lying down, completely horizontal, and then again sitting upright. The stenosis opened up when I was horizontal (and was not vi...
by Summer55
Tue Jan 05, 2010 3:51 pm
Forum: General Discussion
Topic: Inclined Therapy I.T. Multiple Sclerosis & Varicose Vein
Replies: 192
Views: 76825

I haven't tried the inclined bed therapy myself. However, I believe that if people feel better by doing it, and notice marked improvements in their condition, why not try it? Why not spread the word? Andrew, I would say that your open-mindedness and advanced knowledge of the various impacts it has o...
by Summer55
Tue Jan 05, 2010 3:36 pm
Forum: General Discussion
Topic: Nightmares and fitful sleeps preceding MS exacerbations
Replies: 16
Views: 4877

Thanks Jimmylegs. I checked it out. It is definitely interesting. Fortunately though, I haven't experienced any depression. Which is why I really don't think that my chronic nightmares are mood related. I have found some interesting info on Gaba - a neurotransmitter that can be taken in supplement f...
by Summer55
Wed Dec 23, 2009 11:16 am
Forum: General Discussion
Topic: Experience with Optic neuritis
Replies: 7
Views: 2347

Hey Kathryn! Glad our responses helped a bit!!! I also just wanted to note that they are making leaps and bounds with research / treatment for ON patients who don't regain their vision on their own. Check out these trials that are currently underway, some finishing up this year! http://clinicaltrial...
by Summer55
Sun Dec 20, 2009 11:55 am
Forum: General Discussion
Topic: Multiple Sclerosis Experts Question Vein Disorder Theory
Replies: 44
Views: 8270

There will be a number of studies underway within Canada in the next six months. Proposal for research funding from the MS Society must be submitted by January. Approval of funding in June, and allocation of funding in July. Many questions regarding CCSVI will be answered within the next year. At le...
by Summer55
Sun Dec 20, 2009 10:24 am
Forum: General Discussion
Topic: Cervical cancer vaccine Gardasil possibly linked to MS episo
Replies: 3
Views: 2393

Both me and my Father have MS. So, it's probably pretty fair to say that I was predisposed to it. I showed my first symptoms just over a year ago - Optic Neuritis. Is it a coincidence that it happened just a few weeks after getting the flu shot? I guess I'll never know for sure. But, immunizations t...
by Summer55
Sun Dec 20, 2009 9:57 am
Forum: General Discussion
Topic: Experience with Optic neuritis
Replies: 7
Views: 2347

Hey Kathryn Just over one year ago, I was diagnosed with ON in my left eye. I had almost 100% vision loss within a couple of days. They originally told me that my vision would be back to normal in a couple of months. But it wasn't. Then they said that it could take up to a year and whatever vision I...
by Summer55
Fri Dec 18, 2009 3:59 pm
Forum: General Discussion
Topic: Nightmares and fitful sleeps preceding MS exacerbations
Replies: 16
Views: 4877

Hey Andrew - thanks for the youtube video! That's the first I've heard of inclined therapy. I'll definitely do some more research. I checked out a couple threads on it in this forum and there's definitely people who seem to be benefitting from it. I have nerve damage (and pain) in my neck. I think t...
by Summer55
Mon Dec 14, 2009 5:03 pm
Forum: General Discussion
Topic: Nightmares and fitful sleeps preceding MS exacerbations
Replies: 16
Views: 4877

Thanks everyone for your insight!!!! It's good to know I'm not crazy! I'm really just starting to learn about vitamins and supplements. However, I also don't want to end up taking a million pills a day. I'm trying to eat mostly fruits and vegetables. I take Vitamin D, acidophilus, and fish oil every...
by Summer55
Fri Dec 11, 2009 5:15 pm
Forum: General Discussion
Topic: forgetting shit at work
Replies: 19
Views: 4674

Hey sewwhat!!!! This is in response to you saying that you bite your lip every time you eat your lunch..... I've found that I'm constantly biting my tongue by accident - even just when I'm talking. It's a new thing since I've had MS but I've never asscoiated the two..... hmmm..... interesting..... w...

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