Search found 59 matches

by Richardk
Thu Jul 15, 2010 7:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201381

Hello all I had the procedure done in Katowice, February this year....was diagnosed by Dr Simka with blockage in the azygous and right jugular veins....Given I am SSPS, I was not expecting miracles and was not surprised by the results....there were small noticeable changes, ie could lie down on my b...
by Richardk
Sun Jun 13, 2010 8:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: mtf goes to Poland
Replies: 12
Views: 2910

Congratulations mtf on your trip, and I wish you the best possible outcome.. I just had the passing thought of how similar the individual stories of our trips from all parts of the world to Poland resembles Chaucer's Canterbury Tales... we each have our own unique tale to tell in our pilgrim's trip ...
by Richardk
Sun Jun 13, 2010 8:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberals successful in bringing MS debate into House of Comm
Replies: 17
Views: 5268

Stacemeh wrote:
I hope they're well researched on the issues
We know Dr. Duncan is. :D :D

It will be interesting to see what happens. I wonder how often specific medical treatment like this gets a full debate in the House?
Does anyone know when/where you can watch it?
by Richardk
Sun Jun 13, 2010 4:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberals successful in bringing MS debate into House of Comm
Replies: 17
Views: 5268

A 4 hour debate?....I hope they're well researched on the issues....this is excellent news, and if it has been accepted for debate must indicate that the government has this issue on their radar screens....excellent work on behalf of Dr Duncan
by Richardk
Fri Jun 04, 2010 9:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plodding to Poland with Johnson...
Replies: 92
Views: 17176

So its finally pedal to the metal for you , not Johnson, I look forward to your insights on your journey, and wish you the best outcome possible....maybe then your restless movement in B.C. will diminish.
Cheers

Richard
by Richardk
Fri Jun 04, 2010 8:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: back to Poland because of restenosis...
Replies: 8
Views: 2660

Hi Alby Your question is on my mind as well....while my improvements were minimal at best, its hard to tell if there has been restenosis, and I am debating returning to Poland after 6 months for a followup...there is discussion of the issue in Parliamentary committee here, and it may be better to st...
by Richardk
Fri Jun 04, 2010 4:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: article "MS drug trial a fiasco"
Replies: 140
Views: 26787

I have forwarded the link from the BMJ to the MS Society of Canada asking for their response to this news, and commenting that it would be beyond ironic that neurologists are cautioning against moving too quickly on CCSVI while simultaneously prescribing drugs that may be worsening the progression o...
by Richardk
Thu May 13, 2010 2:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CEO of the MS Society of Canada testifies re CCSVI
Replies: 18
Views: 6313

Re: .

That's funny, I found all these discussions positive. I might got them all wrong... should read the french version :wink: I agree with you Belou...I thought the transcripts, both English and French, gave an accurate picture of where we are today, and where we want to go wrt CCSVI...I found it amazi...
by Richardk
Wed Apr 14, 2010 1:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Marek keeps us all smiling !
Replies: 12
Views: 3158

Hey!! somebody is writing here about me?? :)))) Thx to lelo i found it:))) MUCHAS GRACIAS!!!!!! but we all are making this atmosphere :))))))) i will tell u that it took me 20 min sitting here and reading without any idea what to write so.... sorry for such a deep message :)))))) uhh I hope that ma...
by Richardk
Mon Mar 29, 2010 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Alby in Poland 'liberation'
Replies: 14
Views: 4928

Re: UPDATE

(update March 2, 2010) Since yesterday, I can stand for 30 seconds, being able to look around and move my arms around, without losing my balance. I only tried 30 seconds, I might be able to stand more. (update March 22, 2010) I now can stand without support for one to two minutes depending on the d...
by Richardk
Thu Mar 25, 2010 4:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Richard in Poland
Replies: 8
Views: 2873

Hi Richard, Great to read your update. I would "Love to dance in the street" after my procedure, but we all need to be realistic in our personal expectations, because we all have such varied symptoms and different vein issues. I was trying to explain to my husband how a MS person has to r...
by Richardk
Thu Mar 25, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Richard in Poland
Replies: 8
Views: 2873

Re: Richard was in Poland!

So good to read your blog and thank you for sharing it with us all. "May the force be with you" Thanks for your encouragement.....As I attempt to follow Terry Wahl's diet to allow for faster blood flow, http://terrywahls.com/index.php?page_id=281# , by eating lots of vegetables, including...
by Richardk
Wed Mar 24, 2010 1:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Richard in Poland
Replies: 8
Views: 2873

Richard in Poland

I have been slow in posting the details of my trip to Katowice, partly to get a better assessment of where I stand (lol), and partly out of sheer inertia, but here goes. Left mild Vancouver on February 7, and arrived in blustery, cold, and snowy Krakow the next day, travelled via Lufthansa and LOT P...
by Richardk
Thu Mar 18, 2010 2:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Zamboni words of caution on stents.
Replies: 31
Views: 14210

Re: Follow-Up Question

Not sure I'm posting on the right thread, but I was wondering - if you go to Poland for the treatment, are you supposed to go back for a check-up to make sure things haven't closed up again? If so, what is tge time lapse - ie. one month later? I had angio on azygous and RJug veins in Feb with Dr Si...
by Richardk
Thu Mar 18, 2010 1:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CBC national tonight
Replies: 18
Views: 5133

Re: CBC national tonight

Story about me and my brother going to Poland on CBC national tonight. (Also covered in today's Globe and Mail) We're trying to bang the drum! ...Might be the only wake to wake up local IRs, etc. -d The attached 2 CBC reports seem to cover your story...interesting that CBC will accompany you to Pol...

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